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UTI and IC flare

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  • BBB
    replied
    Corum
    I haven't tried the silver. I've been googling it. Thanks for the suggestion and inspiration!
    Bee

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  • Coram Deo
    replied
    Hi BBB,
    It is so nice to have you welcome me and it is comforting to know you are not alone in this. I am allergic to a lot of meds. Especially antibiotics. My other problem is I only have one kidney, so I have to be really careful what I ingest. Have you tried Colloidal Silver for infection? It is supposed to work really well and can be bought at the health food store.
    Wishing you well,
    Coram

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  • Coram Deo
    replied
    Thanks Krisi, I am calling him on Monday. It seems to have calmed down some since I stopped taking the Macrodantin but I will probably have to wait a few days to see. It will depend on how long it takes to get out of my system. I hope you are feeling a little better now.

    Coram

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  • BBB
    replied
    Sulpha

    Corum,
    I see you just joined and this is your first post! It is nice to have you, wish it was under better circumstances...

    How long have you been allergic to sulpha? I am also allergic and think it is so weird that so many people with IC are too.

    Is that true for anyone else? If so, do ya'll know why that is?

    B

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  • Krisi
    replied
    Coram,

    You could always ask them for a different antibiotic. There should be another one it is susceptible to. I am on keflex for mine atm. I am almost finished with it so I am just hoping it is working. Sometimes the cultures come back with bacteria in them it is just they don't have a high enough count (over 100,000 bacteria/ml). Some doctors like mine will give it to you if it is over 10,000. Generally it shows one is coming. Also, depending on the culture and stain testing that is done they might only check for gram negative bacteria and not gram positive bacteria. Mine does both, because I have had both before. Also, generally when mine starts and I am in pain it won't show up on the urinalysis. If it is spun and then inspected by a doctor under a microscope you can sometimes see clumping of some of the white cells. Anyway, I hope your infection is getting better.

    Krisi

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  • Coram Deo
    replied
    Macrodantin is Terrible!

    Originally posted by jen74 View Post
    Hi Krisi.
    I was also diagnosed by a regular cystocsopy. The urogyne who did my cystoscopy took pictures of my bladder, but he did not take a biopsy. He said there was no reason to take a biopsy. He said they can tell the difference between something that is just bad inflammation and something that may be more serious( i.e. cancer)
    I know what you mean about being in pain. I also get the UTI's alot since getting IC, it sucks because I cannot take antibitotics because they mess my stomach and digestive tract up soooo bad, that is why I am so scared about getting these UTI's. I took a couple macrodantin three weeks ago for a UTI that was coming on, and it stopped up my bowels and stomach, I was sooooo constipated. It took me a couple weeks to feel better and still I am not right. That was only after taking 2 macrodantin.
    Anyhow, Just know you are not alone, and I do feel for you and hope you get some relief soon.
    Jen



    I was diagnosed with Trigonitis several years ago and have been having ups and downs since then. Most Doctors don't even think it is real when you tell them about it. This past month I have had a terrible time with urinary frequency. The first culture showed nothing, but I was given Omnicef. Never again will I take that. I had trouble peeing after taking it. A couple of weeks later I had gone back to the Doc with the same symptoms and this time it was a full blown UTI. They gave me Macrodantin! Well I am allergic to sulfa drugs and I asked if it was sulfa and both the Dr and the pharmacist said no, however I have been reading and it is indeed a derivative of sulfa. My bladder bothered me so bad I could not leave the house! I was peeing every 5 minutes and felt horrible. I stopped taking it and will pray I get back to normal. I have ordered the Cystoprotek and pray that will help. I know how you feel

    Coram Deo

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  • Krisi
    replied
    Jen,

    That sucks soo much about the anti-B's. I really don't know how long you would have to stay in there. I know the last time I had anti-B's was when I had a ligament transplant from a donor. I was in there for like 4 days but I think I just got anti-B's for like 2 or 3 of the days. I don't know how they do it with UTI's, like if it is just one bag or like 2 or 3 that you have to go through. I wish the health insurance would be better, so it wouldn't cost that much when you have to go to the hospital. I hope you are feeling better. I am better today.. I am having some pain but not nearly as bad as the past few days. Keep me updated on what is going on. I will be praying for you.

    Krisi

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  • jen74
    replied
    Hi Krisi.
    I am sorry you are not feeling any better. I am in the same boat. I had to stop the cipro due to the reaction I was having. I called the doc on call and he said it looks like I am allergic to all the meds that treat UTI's. He called in bactrim for me to try, though he said he is not sure if it will help. He mentioned maybe me going to hospital and getting IV anti-B of gentamicin.
    The only thing is, I cannot afford to go to the hospital and stay there just to take anti-B's. Our insurance sucks and they charge a ton just to stay in the hospital which I am assuming I would have to if I have to have IV anti-B's right? That is just not going to work. I am getting these UTI's every month it seems and there is no way I could afford to go to the hospital every month just to have anti-B's.
    I cant believe I am allergic to all these meds. The weird thing is that I never use to be allergic to them until this past year. Really weird.
    Anyhow,, I sure hope you get to feeling better soon Krisi. Big hugs!
    Jen

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  • Krisi
    replied
    Yesterday was ok until the middle part of the day and evening when I was in so much pain I almost went to the ER I wish this would just go away or give me a break until I can see this new doctor. I thought the anti-b's would have helped. I think they are but I don't know what is causing the flares. I haven't eaten anything with preservs or anything. Maybe it is the anti-B's or the tylenol or the pyridium. Or maybe it is me trying to do too much when it doesn't hurt. I tried to relax yesterday.

    I hope you are feeling better Jen.

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  • jen74
    replied
    Hi Krisi.
    I am glad you got the anti-B's. I got mine also, cipro. I did take macrobid before and was fine with it, but then a couple weeks back I took a macrodantin and it caused me severe stomach upset and stopped me up bad ( constipation). So now I do not want to take the macrodanton again.
    I swear I am becoming allergic to everything. I hope to God I am not becoming allergic to cipro. I took my first pill last night, and now I am feeling a little itchy all over ( which happens when I am going to have an allergic reaction.). I have no clue what I will do then since I already cannot take alot of meds. Is it even possible to be allergic to everything? I think my body is just rejecting everything. I broke out in hives last week from taking miralax, good greif!. I hope you feel better soon.
    Jen

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  • Krisi
    replied
    They are going to call in something if the office doesn't get the sensitivity test back. I know what you mean about pain medicine and getting sick. That is why I never ask for it. But it is just getting really bad. I know if they give it to me I will have to have phenegran which makes me not get sick. I am seeing a Pelvic Pain Specialist on Thursday.. well at least the WRNP.

    Oh btw I have only ever asked for something for the pain twice and one was because I was out of town and working and in really bad pain.. kinda like today or this week... but this week has been worse. My IC alone can hurt really bad and the UTI just isn't helping the situation out. I wish there were more doctors or more specialists in the area. Sometimes I wish I lived where there were some really good doctors that would help with the problems. Anyway, this is the place I am going to try I hope they are good.
    http://www.pelvicpainkentucky.com

    Jen I hope your UTI gets better too! I wish this would just all go away and none of us would have any of the problems we do, but that isn't reality.

    OOOHHHHH I just got a script.. the same stuff I had last time(Macrobid). I wonder if it was cause they didn't give me enough the time before.

    Krisi

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  • jen74
    replied
    Oh Krisi, I know how aggravating some of these doctors can be. If you dropped that culture off on Tuesday, they should have it by this afternoon. If not, I would call their office and tell them to call the lab and have them fax them the results. It could be just the lab tech that is not doing their job.
    A culture only takes 48 to 72 hours to be complete. If you are really desperate and in pain, is there a urgent care place you can go to? They will prescribe some antibitoics for you. Most doctors do not like to give pain meds out for some reason, I think more to cover their a** more than anything. They do not want to be responsible and some are to lazy to fill out the paper work.
    I wish I could take some pain meds, but they all make me feel soooo sick and I have to many side effects from them. Maybe you should look into seeing a pain specialist as they deal more with pain meds and maybe will be able to help you better than this doctor. I dont know why the doc just did not call you in an antibitoic so you could at least start it if there happens to be an infection brewing. UTI's are awful on IC if they are left go to long a time. I know!!
    Krisi, I would call them and ask them to call the lab and get the results. If not, ask them to prescribe you an antibitoic over the phone and tell them you do not want to be in pain all weekend, and you dont have the money to run to the ER when you already left them a urine sample! I do feel feel your frustration hon. I hope you feel better soon. I think I am also coming down with a UTI. I just left a sample at my docs office. Ughhhh I hate this disease.
    Jen

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  • Krisi
    replied
    Jen,

    They said they ,ight not get the culture back. This is silly and it makes me mad. I understand how long it takes, but what really is making me mad is they said, "This office won't give pain meds for IC." I was like are you kidding me? It is a chronic severe pain problem. They said well we can give you a referal to you pain specialist. I said, "No thanks, I have BlueCross I don't need your referal."

    Mind you I have been in tears on the phone with them all day. My ARNP is out because of a death in the family and my uro is also out.

    I am not going back there ever again, for an appt. I am only going on Tuesday to pick up my medical records and pay the 5 dollars I owe them for some stupid lab... which is probably 10 now.

    I am going to a place that is supposed to treat that and like 6 other problems at a pelvic pain center. He is a gyno and not a uro but I would rather have someone that is going to look out for my wellbeing as a whole and not just when I am not in pain. I hope they are nice there I got on Thursday.

    Currently I am taking 3 Elmirons a day, Pyridium Plus, and lots of water and lots of tylenol and a heating pad on high constantly. I have probably burned my stomach legs etc.

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  • jen74
    replied
    Hi Krisi.
    Speaking of UTI's, I feel like I may be coming down with one as well. I did my bladder instill on Wednesday and started feeling bad Thursday. This sucks! I always get sick on the weekends when no doctors are around. I hope my doc is in today, I may have to give him a call.
    That was nice of your dad to buy you a heating pad
    The heating pad is my best friend when I am not doing good. I am getting so frustrated with these UTI's though. I dont have a clue what is causing them. I am SOOOO clean. It is weird that I usually get them right after I get over my period though. Maybe hormones are related to this.
    I hope you are feeling somewhat better or at least you got the results of the culture back by now. I think they should have treated you if you are feeling this bad though. Alot of doctors will just treat you.
    I am worried sick if I have a UTI, I have no clue what to take as far as antibiotics go. The last macrodantin I took messed my stomach up but good. The digestive motility issues I have make it real hard for me to take anti-B's, not to mention I seem to be allergic to everything
    Let me know what you culture says. I hope you get to feeling better real soon. Big Hugs!!
    Jen

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  • Krisi
    replied
    mean urologist office

    I have been drinking tons of water, more than 2 liters a day.

    I am in soo much pain and the urologist won't give me anything. I have cried all morning and on the phone with them.... They said they won't give it for that "UTI". I told them I have IC and so it is only worse than a normal UTI. The lady on the phone said that well your elmiron should help with that. I am not even for sure if elmiron really works. She told me if I am in that much pain i should go to the ER.... and what wait 4 hours to be seen or for any pain meds. I know if they would have asked the doctor or the NP that I would maybe have gotten something. Anyway I am done with them. I am picking up my medical records on Monday or Tuesday and am never going back. I don't deserve to be treated like that. I just hope this new doctor is better. I am soo tired of being treated so bad.

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