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Help! don't know how to get through day!
omigosh this is awful!!!!!!!! my doc prescribed me Cymbalta and it not only put me into the worst flare I have ever had, it also made me dizzy nauseas and super emotional!!!!!!! I can't stand this I feel like I have a bladder infection but I just don't know! I'm picking up a prescription for urised today but I'm kindof afraid to take it! has anyone taken it? I can't handle this right now, I have a 1000 word essay I need to finish plus a bunch of other homework! how am I going to go to work tomorrow? I just can't stand this! anybodys thoughts and prayers would be so greatly appreciated!!!!!!!!
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Caitlin
Diagnosed December 2004
Cytoscopy April 2007: 1000cc's capacity, no visible "IC", looked perfectly normal. Hydrodistention August 2007: again appearance of “normal looking” bladder. Surgery for bladder reflux in 1990, chronic bladder infections before that.
Medications: Oxycodone, Amitriptyline, Tizanadine, Lyrica, Ambien, Prilosec, Zantac, Zyrtec, low does Aspirin, (In the past I tried all the typical natural therapies out there without successL)
I don’t have “typical” IC symptoms,… I have a very large bladder (my Dr.’s eyes almost jumped out of his head when he saw my CT scan!) It seems to feel better the fuller it gets & the more I go to the bathroom, the more it hurts. My pain intensity doesn’t seem to be affected by diet or alcohol, that being said pain is my main issue, MAJOR PAIN!!! It sux!!
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Sorry honey, I've never taken the Cymbalta or the other. I react that way to anti depressents also, that's why I can't take them. Try to just relax and wait for the effects to wear off, I know it's an aweful feeling. Hopefully by morning you will feel better and be able to go to work. Just don't take anymore if your feeling that bad until you talk to your doctor.
Kari
Kari 
I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong! -
So Sorry that you're feeling so horrible. I've never taken the med but I agree with Kari, just try to relax and wait for it to wear off. If it's bad enough I would call the uro's office and maybe have the answering service get a hold of someone for you? I hope you feel better soon!Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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you will like the urised. it helps alot there is a numbing agent it. I take one a day all the time, if I beging to flair I will take 2. I am allowd to take 4 a day if needed.
'The will of God will never take you where the Grace of God will not protect you.'
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((((((((hugs))))))))
I hope you feel better soon Caitlin.
Maybe a hot bath or an ice pack for now?
I've never tried those meds but have heard good things from others.....
It will get better! I don't know when---but it will!!! It has to!Lee Ann
Current Rx Meds:
Atarax, Ditropan, Elmiron
Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
Hooray for babies!
Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
Didn't work for me:
Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
IC (Mod-Severe) since 1996
UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).
My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...
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feel better soon
Hi sweete,
I know just how you feel. The pain is so unbearable. I am now on a "natural approach" regimine that I feel has saved my life as I am nearly %100 better. I gathered many tips from others with success stories. Yes, it can get better, so much better, you must believe this.
I take: ( *all found at hi health)
*4 entertic coated fish oil capsules a day (to coat irritated bladder and urethera)
*1000mgs of glucosamine a day
*1000mg of MSM (both promote increase of healthy tissue)
*Cysta Q, 2 a day, got it from ICN store
*Tums with symptoms ( up to max dosage a day w/ lass of water)
*detoxifier to help eliminate excessive toxins from overactive hormones-I use daily detox and daily detox II at hi health ( this helped me feel much better)
*also you must eat nutricious food and have scheduled excercise to try and get your hormones and stress better regulated. You must find time to excercise.
*drink water and take tums/fish oil with ify food for max protection. Tums ae awesome I so glad I dicovered them
For flares try:
*ice pack
*tums (these have stopped many flares for me
)
*light streching
*if in a car, driving helps
*stress reduction- try will ferrel movies or Dodgeball- so funny and you will feel better.
I've heard great things about freeze dried aloe vera and cystoprotek at ICN shop.
God Bless and all the best
Last edited by ICNDonna; 06-18-2007, 02:48 AM.Comment
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That is the first thing that came to my mind to, an heating pad, or ice pack, or a warm bath. I know it is temporary but when you hurt that bad even the little things helps. If you have any pain pills that might help relief some pain. I hope you find out if it is an infection so you can start on antibotic then. If not an infection then you will know for sure to try other treatment with it.
I hope you start feeling better soon,
Take care, TrishannComment
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You have been given great advice already. Maybe talk to your pharmacist about the Cymbalta and see if it is mixing with another one of your med and if so will it stop soon. Take it easyComment
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wow!!!!!!!!
you guy's are AMAZING!!!!!!! thankyou sooooooo much for all the tips, prayers and happy thoughts! I'm happy to say that I'm feeling much better now! the urised works! it does not hurt my tummy either like pyridium. My doc switched me to oxycodone instead of vicodin and it works much better for the pain. Anywho I hope that everyone is doing well
Aloha
Caitlin
Diagnosed December 2004
Cytoscopy April 2007: 1000cc's capacity, no visible "IC", looked perfectly normal. Hydrodistention August 2007: again appearance of “normal looking” bladder. Surgery for bladder reflux in 1990, chronic bladder infections before that.
Medications: Oxycodone, Amitriptyline, Tizanadine, Lyrica, Ambien, Prilosec, Zantac, Zyrtec, low does Aspirin, (In the past I tried all the typical natural therapies out there without successL)
I don’t have “typical” IC symptoms,… I have a very large bladder (my Dr.’s eyes almost jumped out of his head when he saw my CT scan!) It seems to feel better the fuller it gets & the more I go to the bathroom, the more it hurts. My pain intensity doesn’t seem to be affected by diet or alcohol, that being said pain is my main issue, MAJOR PAIN!!! It sux!!
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Man I've been there
They put me on Elavil or Atarax a few years ago and I took it at night and when I woke up in the morning I felt like I was in dreamland. I could barely drive to work and I couldn't concentrate on anything I was so sleepy. So I refuse to take any of those anti-depressant type things. THey make me so emotional and crazy and I just don't feel right.Comment
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Elavil is an antidepressant but Atarax is just an allergy medicine. If you were still super sleepy it was probably the Atarax. I get Atarax Hangover sometimes but if I remember to take it around dinner time (instead of bedtime) I don't get that feeling.Lee Ann
Current Rx Meds:
Atarax, Ditropan, Elmiron
Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
Hooray for babies!
Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
Didn't work for me:
Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
IC (Mod-Severe) since 1996
UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).
My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...
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The Cymbalta made me really nausea and tired and just plain flu like for about 2 weeks. Then all the sx went away. I hope you are on a low dose like 20 or 30 mg.
I'm glad you are some relief. If you can tolerate I wouldn't give up on the Cymbalta until it's had a chance to get a good response time.Comment
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