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  • #1

    Allergic to Sundays?

    Okay, obviously I'm not but this is getting crazy! This is the third Sunday in a row that I have felt like utter dog crap! Two Sunday's ago I flared in the evening so bad that I got not sleep whatsoever that night and ended up calling out of work on Monday.

    Last Sunday I woke up and my back and bladder were both killing me. I figured it was from cleaning the house for my parents coming on Saturday and the stress of my dad being here (we have a strainted relationship at best) I pretty much laid on the couch with the heating pad all last Sunday.

    I woke up this morning and my back hurt but my bladder felt okay. Not anymore, the only way I know how to describe it is my entire middle section is killing me. My back, clear through the middle of my body to my front, my pelvis, my bladder. When it moves it almost feels like my middle section may split in half. I used to get this all the time in the beginning of my IC but since I started the Elavil it had pretty much stopped, guess that's another sign that it's time to up the dose.

    I took a vicoden a couple of hours ago when I was on the phone with my mom but it did nothing whatsoever so I just took another one, I really hope that helps, I am so sick of this sh*t
    Hopefully Griffin is going to go down for a nap so that I can go pass out with the heating pad, god I hope I can make it through work tomorrow!
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus
    Tags: None
  • #2
    So sorry!!!!!

    I am so sorry you have been having such a bad time. I don't really have any advice, but I totally flair if I let myself get stressed. The more stressed I get the worse I flaire, the more I flair the worse I stress. I just fianally have to break the cycle and not care anymore about anything. I really hope you get feeling better so soon.
    Redmowii

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    • #3
      Do you think you might be stressing about going back to work each Monday? I know that, as the situation at my job got worse, the worse I flared each Sunday... I am certain it was from subconscious stress about returning to work after the weekend.

      I hope you feel better soon.
      ****
      Jen

      *Diagnosed with severe IC in 2004
      *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
      *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
      *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

      **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment

      • #4
        I work two jobs and take classes part-time toward my degree. The only day that I absolutely don't have to leave the house is Sunday. I find that is often the day that I feel worst. I sometimes think that my body knows that and therefore waits until then to hit me! It's like I make a subconscious deal with myself that if my body gets me through the first six days of the week it can then go on strike the seventh day.

        Hope you feel better soon.

        Comment

        • #5
          Thanks everybody,

          No Jen, I don't really stress about work, other than I don't want to feel like crap and be at work. I like my job, I love my boss, my favorite co-worker is coming back from vacation on Tuesday so I'm looking forward to this week.

          The only thing that I can imagine is the problem is that I have to run errands and stuff on Friday and Saturday and maybe I'm over doing it? I have no idea, but it's starting to get on my last nerve! I laid down for awhile and honestly I feel almost as bad as I did before I laid down. Oh well, at least I see my uro on Tuesday. I'm wondering if some of this could be PFD, I'm going to ask if I can get evaluated for that.

          Hubby said that my belly seems to be bloated today, maybe this is partly the IC belly that a lot of people talk about?
          Christine



          I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
          1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
          2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
          I have tried every oral medication as well as rescue instills and DMSO.

          I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

          Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
          Also proud mom to the best Bullmastiff on earth, Claus

          Comment

          • #6
            Maybe it is just the fact after a long week at work and doing all the catch up at home, by Sunday you wore completly out. I know there are times that by Sunday I am ready to call it over for awhile. Hugs hope you feel better.

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