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  • Help!

    Hi Everyone,
    I had to go to the er on Friday from work because my bladder pain was so bad. Before I went to the er I talked to my uro's office and they said that my last urine specimen showed no infection and they want me to have an instill. When I reminded them that the instills only make me worse, they said that I need to be patient. Be Patient! and I should go to the er if pain gets worse. Well, I did go to the er. The doc their gave me percacet which helped some. They tested my urine and said their is a small infection and put me on my third different antibiotic Cipro. I'm eating yogurt and taking probiotics. I'm scared I'm going to get sick from all of these antibiotics. I am hurting so bad right now. I will probably not be able to go to work tomorrow. I pray I don't lose my job. I'm going to call my pain specialist and uro tomorrow. I am so tired of being in pain and my life is falling apart. I am seriously wanting to have my bladder removed. All it does is get infected over and over again. My life consists of lying on the coach and crying in pain. I pushed my self thru the pain earlier and went to the grocery store with my husband. I was miserable. Walking is enough to put me in to much pain. My husband wants the old me back. I've never been so sad in my life. I feel very alone and isolated. Most of our family lives far away. I'm scared I will have to go on disablility. I have a great husband and family and a few good friends, so I have reasons to live but lately I haven't wanted too. So, I just want to say to everyone else who is suffering you are not alone, I suffering right here with you. For anyone else who has gone thru this and found relief, please let me know how. Any advice or hope would be wonderful right now. Thanks for listening, Rachann Meds I'm on Elmiron. Atarx, Elavil, Ditropan, Prosed DS (turns urine blue and is suppose to help with urethral burning, but is not helping me now) hydracodone every 6hrs when needed and it is always needed, tylenol pm, ibuprofen, and I just orderd MSM gel
    When life hands you lemons make lemonade. But when life hands you a load of crap, don't make anything. Trust me on this one.

    Diagnosed in 2001
    Meds
    Elmiron, Elavil, Atarax, Ditropan, Prosed DS, Hydracodone when needed

  • #2
    Briza

    Thanks so much for caring. I was diagnosed in 2001. I've been on all of these meds for awhile. My uro just increased my Atarax from 25mg at night to 50mg at night. She thought it might help with the constant inflammation but it hasn't. I've been pretty stricked with my diet but last night I had a tiny bit of Ketchup and that was probably a big mistake. I do use prelief and I bought baking soda to mix with water. How much do you mix with water and how many times a day? I hope that helps. My uro also messed with my head by telling me that out of all of her ic patients I was the worst case. Nothing like kicking you when you are already down. I'm hanging on by a thread and she tells me that. I will just keep on praying for some relief but thank you so much to your concern. I don't know anyone one near me who has ic so this forum is the only way I get to speak with other icers. Thanks again, Rachann
    When life hands you lemons make lemonade. But when life hands you a load of crap, don't make anything. Trust me on this one.

    Diagnosed in 2001
    Meds
    Elmiron, Elavil, Atarax, Ditropan, Prosed DS, Hydracodone when needed

    Comment


    • #3
      Yikes, sure hope you start to feel better and the flare eases up. Take care and rest

      Comment


      • #4
        so sorry yu are flairing. I hope you feel better soon.
        'The will of God will never take you where the Grace of God will not protect you.'

        Comment


        • #5
          Rachann

          I sent you a PM

          Comment


          • #6
            Thank you Myca

            Thanks for the PM it really means a lot. And to everyone else who has responded to my thread. I will just keep on praying for all of us who are having bad flares. I going to get glucosamine and msm and fish oil capsules to see if they help.

            My pain doc just called. They are getting me in today. Thank God.
            I called my job and I am not fired yet. At this point they are concerned. I just pray they give me time to get better. My uro is out of town today but will be in the office tomorrow. I hope there is something she can do for me. I haven't had a distention in 2 years. I want her to do one and see if anything has changed in my bladder because it sure feels like something has changed.
            I'm going to order some cysta Q wish me luck. Rachann
            When life hands you lemons make lemonade. But when life hands you a load of crap, don't make anything. Trust me on this one.

            Diagnosed in 2001
            Meds
            Elmiron, Elavil, Atarax, Ditropan, Prosed DS, Hydracodone when needed

            Comment


            • #7
              sunny dawn

              Thanks for the wonderful pm. Do you think it will be ok if I start all of the supplements at the same time? Rachann
              When life hands you lemons make lemonade. But when life hands you a load of crap, don't make anything. Trust me on this one.

              Diagnosed in 2001
              Meds
              Elmiron, Elavil, Atarax, Ditropan, Prosed DS, Hydracodone when needed

              Comment

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