Tender in the pelvic area?????

[Tami Stambaugh]

I was just wondering that if any of you keep that tender, sore, achey feeling in your pelvic area at all times??? It seems as though when I am not in a horrible flare that my pelvic area and lower back are always sore and tender. I have gotten to the point to where I just go on and take my pain meds. daily as prescribed. This seems to work better for me. When I don't usually by 11:00 a.m. I can feel it coming on. My doc. told me to take them daily if my quality of life is better that way, which it is. I have the inner-stem scheduled for March 1. I wonder if this soreness goes away or is still there?? I guess I should post that question on the inner-stem therapy board. I would appreciate any input from other IC sufferers.

Thanks and hope all is doing well,

Tami hi angel

[dyno]

HiTami,
In my case for the most part I really only hurt when I am having a flare. Before I was getting treatment, I don't know if hurt is the right word, but I was always aware that my bladder is there. I am one of the fortunate ones that pain is not one of my main symptoms. I have the frequency, and urgency more than anything else. I have my IC under control for the most part now, I still have my share of bad days, but it is nothing like it used to be. I wish you luck and hope you find the help you need.

Jolene

[ICNJess]

Hi Tami,

I am generally tender, but when my flares are going, I can't even cough without having pain!

I hope you feel better soon,
Jess

[tigger_gal]

Tami
I have horrible pelvic pain and it worsens thu-out the day. I was just dx'ed with pfd (pelvic floor dysfunction) I was set up for therapy and they done biofeedback, and I have a severe case I have no pelvic floor movement...
I would not count on the interstim helping for any type of pain, its not for pain at all..
hugs to you
brat

[rachelm]

Tami,
I have the same kind of pelvic pain. I call it a cramp in the bone or deep tissue. As the day goes on it starts to twist and pull and by the end of the day if I've been up and active it becomes sharp and refers further down my leg. When I'm in a flare like right now I am in constant sharp pain that is dulled with the pain meds. My pain dr. keeps switching my meds because I get tollerant quickly. He just gave me Percocet 10 today. Do you know how that compares to Morphine? I was taking Morphine 30mg every 4 hours. Sometime heat and reclining or laying down with a pillow under my knees helps the pelvic pain. Eventually my flare will go away and I'll just have the ache.

[tigger_gal]

I have only taken darvocet and vicodnine I too get tolerent to pain meds, ready to ask for an upgrade lol I would be terfied to try morphine. have you been tested for pelvic floor dysfunction by biofeedback?.. just a thought.
Brat

[khouse]

Tami,
I do have the pain you describe most of the time!!!! Now i have a question for you guys, what exactly is pelvic floor dysfunction. I don't have a clue!!! Going to a new Dr. on Friday, comes with wonderful recommendation from Tami(thanks Tami) I pray for a good visit!
Love,
Kim kissing blah

[rachelm]

Brat,
I was scared to even go on Lortab 10 (hydrocodone) last year but my uro convinced me that I would be better off in the long run if I could slow the pain cycle down. I agreed and took 1-2 Hyrdrocodone 10 for several months until the flare went away and then I was able to go with no pain meds for several months. I started taking the Hydrocodone again a few months ago and uped the dose to 2 every 4 hours but it would only last for an hour and then I would be in so much pain. My pain dr. switched me to Morphine at which I first said no way but I decided to try it for a day. It doesn't make me feel sleepy or even a little funny in the head but it helps dull the pain. I take 30 mg every 4-6 hours but during the day I always am ready at 4 hours. It seems to have started wearing off around 3 hours so my dr. switched me to Percocet 10. I was in so much pain walking from one place to another for my pre-op testing on Fri. It just didn't seem to work as well as the morphine so I went back to the morphine until I talk to my pain dr. again.

I have done PF therapy with biofeedback. My dr. diagnosed me with pelvic floor disfunction and set me up for the therapy. After the therapy last spring and summer I was much better but since this flare I'm having really bad spasms and muscle tension again. He wants me to start the PF therapy as soon as I'm through the worst of this flare. He wants me to wait because it can sometimes agrivate a flare especially when the urethra is so inflamed. We were both very pleased with the results last time as I was able to go off all my pain meds.

Rachel hi

[tigger_gal]

Hi there,
the pt lady said that all my muscles in spasams. lmao, like she was telling me something I didn't know.. I don't mean to sound disrespectful, but for over 2 years I go only where I have to go. Other wise I am house bound and resent it... My life has all but been taking away from me... I go to pt she presses on my tender points for 90 seconds on the fibro and myofascial and presses so hard I cry.. I do actually mean I cry.. and I leave in pain and my bladder is totally ****** .. and I sit here or lay here in more pain then when I got out of bed.. Sorry to be such a crybaby but.. well I just am sick of it. I want to quit pt... I am gonig for pelvic floor dysfunction not to be poked at and feel abused..... I have every intentions of asking my dr this I cant deal with it it hurts too much.
ok I rattled on and got off the subject.. thanks rachel I will ask about the lortab..
and kim
This link was sent to me from jess
http://www.b-p-s-a.org.uk/pelvic_floor_dysfunction.htm

[jillian]

Hi Brat:

You may want to try flomax and oxycontin for the pain. I was like you on norco (strongest form of hydrocodone). You will probably have to see your doctor once a month for the oxycontin, but its not too bad. I think we have the same doc. I am sure that last sentence will get edited out. I had a nice visit with him yesterday, we talked about cats for a little besides by bladder...lol

[Julie Smith]

Brat,

I did take a break from pelvic floor therapy after experiencing intense pain, tears and in worse shape. My uro was fine with it, if it's not helping only hurting no need to continue. Plus the pt doesn't want to hurt you either. I tried for about 3 1/2 months praying it would get better. Talk about BAD Pelvic floor muscle, couldn't even relax with machine.

Hope you're feeling better. Sending you hugs, grouphug

[tigger_gal]

Jillian
I was there at 10 for pain therapy, i was going to pm you but i can't lol.. email me k
[email protected]

Brat

Julie I have to make my 4 wek check up from my hydro and i am gonig to talk to him about stopping..
Brat

[franya]

Hi,
Listening to you guys I feel that I am not alone I have all these symptoms and the pain is killin me. I was told to start this pt but I am afraid it will hurt to much. I just went thru a 6 week pt therapy and the woman did not even know what IC was. What a waste!

Go figure

[tigger_gal]

I really am about to quit.. or should I say I want to.. I cant tolerate the pain.. I go for pfd and she finds the triggerpoints in my legs from my fibro and myofascial pain and presses on them for 90 seconds I cringe at the thought and there are places she hits and I literly cry....
I called in today for 2 reasons: because
#1 Tuseday my eye started itching and wed I wole up with a severe case of pink eye and I know the only place I was, was pt. I think I got it from there pillow.
# 2 On Monday I went and came home in so much pain it ran thru my hips and pelvic area I could not walk.. and the pain intensified as the day moved on.. Today I am in alot of pain and cant hardly walk....
Wednesday, I went for a pelvic ultra sound, which didn't help any if you know what I mean.. also while I was there I got drops for my pink eye. He said it was really really bad I had direct contact, sssoo thats how I know it was from the stupid pillow at pt. I looked like I been punched my eye lid is purple and underneath my eye is red....alos had my dr give me cortizone shots in my lower back which yet needs to kick in.....
ok this is moere of a vent then anything else...

hugs to you
Brat

[rachelm]

Brat, I would absolutely not want to go back to pt if it was hurting me. I have a wonderful Occupational therapist that I've been seeing. She just resigned so now I've got to look for someone with her same treatment philosophy. I have done trigger point therapy where they press on the part that hurts for 90 sec. My O.T says that she doesn't want to do anything to hurt me. She uses counter holding therapys where she finds the place that hurts and puts her finger or hand over it and then moves my legs into a position where it doesn't hurt any more. I completely relax my leg into her hand and she holds it in this comfortable place for 90 sec. then she proceeds to move it and repeat the process until she is able to go back to the original place where it hurt and usually the pain is gone. It's very different than any physical therapy that I got from a chiropractors office after my car wreck. She also does lymphatic therapy which is just a gentle movement over my lymph areas all over the body in an attempt to ease them into normal movement that rids the body of toxins. She also does myofacial release but again she moves my hips only as I'm comfortable. She gave me a list of the therapies that she did so that I can find a therapist that specializes in that type of work. She also gave me some suggestions of therapies that she is not trained in but that she thinks would be beneficial for me. Cranial sacral and viscereal manipulation.

I go to my urologist office for the internal biofeedback therapy. That's where they put the probe in me and it gives little impulses and then mesures the tension levels at a relaxed state. This was a little uncomfortable at first but it never hurt and once I got used to it I was fine. It was kind of like when the first turned on my interstim box. At first I really noticed the pulses but then it wasn't as noticable.

I hope this has been of help. I think success in a PT or O.T. program really depends on how well the patient responds to the therapist. It shouldn't be painful. Maybe you could search for another therapist. My therapist was a women's health specialist and I just happened to find a good match on my first try. I might not be so lucky next time around. When I looked for a therapist I asked about their experience and while mine had never treated I.C. she was very knowledgeable about the pelvic area and how to use gentle soft tissue work to improve my tone and pain level. Good luck with this. I'm sorry they have been hurting you.

grouphug Rachel