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  • Holy smokes!

    Oh man...Just when I decided to get active on these boards again I got slammed with a flare that I think I going to die (or hope) from.

    At 3:00AM I woke up feeling like my whole midsection was on fire. I also felt nauseated and like I was going to have diarhea. My assumption was that I ate something bad. But I couldn't think of anything, and everything I ate yesterday, my family ate. I cried, in a ball for the next 12 hours, in and out of dozing and taking my pain meds....They didn't touch my pain and its morphine and valium for Pete's sake! I considered the hospital I hurt so bad but figured they wouldn't do anything but send me a $500 bill.

    I am obviously feeling a little better now. I am so scared to eat anything although Im drinking water by the gallons. (Yes, and peeing but it is calming down and clear) I hurt across my midsection (like transverse colon) and up and down from my pubic bone up through my belly button and to the pain in the colon area. (like a T) Some pain off to either side but not like earlier. I go to the bathroom (BM) earlier but it was normal...(at the hieght of my pain). The pain keeps coming back in a stabbing way.....especially in my bladder and colon.

    I really hate this. I did have plans today. They didn't involve curling around a stuffed animal and heating pad.

    Thanks for listening.
    I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

    Medications I CURRENTLY take:
    90 mgs Ms contin (45 mgs Am/PM)
    Percocet as needed
    Topomax 100mg day
    Ambien 10 mg bed
    desipramine 25 mgs




    If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
    Albert Einstein

  • #2
    ((((((((((((((hugs)))))))))))))))
    Ouch, sorry you went through such a very bad time. Not sure what happened but if something affected your colon that could affect your IC...I know it does me. Glad you are feeling a little bit better and hope you continue to improve.

    Hugs, grouphug
    Faith, Hope, and Love,
    Katrina


    I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    or find me on facebook http://www.facebook.com/kat671?ref=profile
    Be the Miracle! & Pay it Forward!

    [email protected] please contact me...I am here to help!

    Comment


    • #3
      Aw, MakinIT. I hope you are feeling better now. Flares suck! kissing
      Kim

      Diagnosed August 2001

      Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


      Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

      I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

      *****************************

      “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

      “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

      Comment


      • #4
        I hope you are feeling better too. If the pain continues, I would think it might be time to check with a Dr. to make sure something else isn't going on.

        Take Care,
        Jolene
        Jolene

        "Life is what happens when you are making other plans" John Lennon

        IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

        Information for Patients can be found here.
        http://www.ic-network.com/patientlinks.html


        Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




        Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

        "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

        Comment


        • #5
          Am still sore today but better. I actually got the nerve up to eat something. I'm so pooped from the whole thing . I slept 14 hours last night ( except to pee) and am just kinda laying here with a heating pad and blankie. But it's much better and I can think. Phew. I am seeing my reg. doc tomorrow (not the uro, the guy who coordinates my care ) so I'll mention it to him. I'm sure he'll rub his chin and say "hmmmm".....I''ll ask him to check out my belly since I do have such a nasty history with adhesions and see if he finds any odd spots. I can barely touch myself, it hurts so bad. I may do better with someone else.

          Thanks All...Oh yeah...I was in trouble this morning because the kitchen was a mess from yesterday ...my hubby was scrubbing the kitchen and giving me the cold shoulder because I didn't pick up after myself yesterday. (actually, the kids went a little wild but I didn't care) What is one to do? :p
          I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

          Medications I CURRENTLY take:
          90 mgs Ms contin (45 mgs Am/PM)
          Percocet as needed
          Topomax 100mg day
          Ambien 10 mg bed
          desipramine 25 mgs




          If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
          Albert Einstein

          Comment


          • #6
            Glad to read you are seeing a doc tomorrow, hope he can help you out with your pain, it certainly does sound nasty. I am glad to read, that I am not the only one that cuddles up with a heating pad, and a stuffed animal, when not feeling good. Mine is a big soft teddy bear, he has see a lot of wear and tear in his time. Hope that you can find out what is going on, let us know how you are doing, soft hugs. Iris. hi grouphug
            Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

            Comment


            • #7
              Sounds like one fun way to spend the weekend! NO WAY!!
              I hope the Doc has some helpful answers for you tomorrow, I hope you are blessed with the patience to get through this, pain, painful husband stares,and the pain we sometimes endure to love our little ones.
              Good luck to you Monday!
              JessicainArkansas

              Comment


              • #8
                Curling up with a heating pad and a stuffie! Sounds like my weekend. Take care and my thoughts are with you! You will be in my prayers tonight-as is everyone with IC
                alan grouphug

                Peace, Love, Health, and Happiness!
                Alana

                Comment


                • #9
                  saw my GP today...good guy but all he said was, with a wince " man, I've had IC patients, but you are the worst....do you want me to up your MS Contin?" I told him to hold off for a while...see how it goes. Today, my tummy muscles are very sore. I feel like someone has made me do about 300 sit ups while hurling. I'm going to call my Uro tomorrow. I adore her. I went to my reg doc today just cause it was time and I needed torefill MS contin.

                  Do you guys find with a flare it very slowly recedes...like the soreness just takes forever to go away?

                  Bye...Thanks for the kind words.
                  I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                  Medications I CURRENTLY take:
                  90 mgs Ms contin (45 mgs Am/PM)
                  Percocet as needed
                  Topomax 100mg day
                  Ambien 10 mg bed
                  desipramine 25 mgs




                  If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                  Albert Einstein

                  Comment


                  • #10
                    I wanted to ask a question about the adhesions you mentioned. I had adhesions removed a year ago but lately I feel the same kind of pains I was having before the surgery. A lot of pressure on the bladder and painful pelvic area. I'm not sure if it is just my bladder or have the adhesions come back. Does anyone else have this problem?

                    Thanks.

                    Comment


                    • #11
                      Hope you are doing better today.
                      did they check you for a uti? I know how awful those flares can be. we are here for you please keep us updated on how you are. grouphug
                      Medicine taken daily or as needed:
                      1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
                      2. MS.Cotin 100mg 3x daily
                      3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
                      4. Fentanyl 100 mg Change every 48hrs.
                      5. Gentamicin 80mg install after each rescue treatment
                      5 Leviquin 500mg self start as needed.
                      6. Klonopin 1 or 2 daily as needed.
                      7. Prosed/DS as 1 every 6hrs as needed.





                      I have IC, but IC doesn't have me anymore!

                      Comment


                      • #12
                        Hi there Pink22, I had adhesions removed when I was diagnosed with IC in June 2002. My surgeon remarked at the time, that they could come back. I do not know if that is part of your pain, but I know that if I experienced the same type of pain again, I would question whether my adhesions had returned. Please let us know how you get on, I am really curious if yours have returned. Take care and hugs Iris. hi grouphug
                        Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

                        Comment


                        • #13
                          PLEASE doncha all mention adhesions. My god, that is such a fear of mine that I would have to have surgery and who knows what crazy disease I'd get after that. (I have not much left to screw up!!!) Just the thought is making me do me deep breathing exercise. (You'd think 9 surgerys would make me a pro but in fact each makes me more nuerotic...my docs prescribe IV sedatives the night before surgeries now because I'm such a wreck!)

                          Flare is coming back. sides hurt...hands are killing me...and my bladder is going bananas..I'm thinking I'm tolerant to my morphine dosage. My doc and talked about that yesterday. I think I need to up it dammit. Sucks. I guess another 15 mg morphine every 8 hours ..... we shall see.

                          I just keep a smilin' though bound and determined to beat this damn thing.
                          I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                          Medications I CURRENTLY take:
                          90 mgs Ms contin (45 mgs Am/PM)
                          Percocet as needed
                          Topomax 100mg day
                          Ambien 10 mg bed
                          desipramine 25 mgs




                          If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                          Albert Einstein

                          Comment


                          • #14
                            I know how you feel about more surgeries. I've had so many surgeries that hubby and I have begun to refer to my surgical history as "total body replacement, one piece at a time." One of my surgeries was for adhesions, and mine never did come back.

                            I hope you feel better soon.

                            Warm healing thoughts,
                            Donna
                            Stay safe

                            Have you checked the ICN Shop?
                            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                            Patient Help: http://www.ic-network.com/patientlinks.html

                            Sub-types https://www.ic-network.com/five-pote...markably-well/

                            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                            [3MG]

                            Anyone who says something is foolproof hasn't met a determined fool

                            Comment


                            • #15
                              Thanks for everyone's replies. I haven't been to the doctor since the pains have started again, mainly because of the fear that it is adhesions again. Can the doctor tell if it is without surgery? Hope everyone is feeling well soon!

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