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...another flare!

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  • ...another flare!

    Well, I just got over of my most recent flare up from taking a muscle relaxer and now I have another one! I had a terrible cold on the weekend and had to use my ventolin inhaler. Wow, has it ever caused a flare up! It's crazy because I need to use my inhaler to breathe (only when I am with a cold) and it then causes a flare up. I am in pain everyday, but the flares are just horrendous! I just don't know what to do with myself, except take pain meds. My gp is looking if there is an ic clinic in Canada that I could go to and she also put me on the wait list in Vancouver for the pain clinic there. Strange that my gp has suggested all of this, but my uro hasn't. That's right, he told me that I was at the 'end of the road'. I know that I sound bitter towards him, but when you tell your uro that you are down (also almost in tears!) that he would say something like that. Thanks once again for listening to my rant.

    Peace, Love, Health, and Happiness!

  • #2
    I'm so glad you have a good GP, sounds very compassionate. Your urologist sounds frustrated, like they don't have anything more to offer & is down about it him/herself. Maybe you're at the end of their road, but if your GP is still looking at options for you, you're not at the end of your road! Perhaps there's another urologist to consult in your area? (I changed all my doctors this summer when I was repeatedly misdiagnosed, told there was nothing they could do, and/or treated rudely. I am so glad I found other doctors!)
    Wishing you better days soon!

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest

    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!


    • #3
      Hi Alana,
      Sorry you are having a rough time. Sometimes it is a real juggling act with meds because of the flares we get with some of them. Your gp sounds great, now if you can find a uro to work with you and try to find some more options that would be great. I am assuming you are watching your diet too. If not maybe that is more of a problem flare wise than the meds are. Good Luck and stay in touch so we know how you are doing.

      Jolene grouphug

      "Life is what happens when you are making other plans" John Lennon

      IC diet cheat sheet....

      Information for Patients can be found here.

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      Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

      "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."