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BIG BIG FLARE

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  • #1

    BIG BIG FLARE

    Ok, so it's been building. For weeks or months probably. But it hit hard. About an hour and a half ago. I feel like my bladder is a baloon about to burst. I've had so much stress in my life lately that it's not wonder. But I HHHHHUUUURRRRRTTTTT so bad right NOW.

    banghead cussing banghead cussing banghead cussing

    Michelle
    Tags: None
  • #2
    I've been reading your posts, Michelle, and I feel badly for you. It's definately YOUR TURN for something good to happen!
    Jen


    "When you get to the end of your rope, tie a knot and hang on" -Franklin D. Roosevelt

    Comment

    • #3
      kissing grouphug grouphug

      I'm so sorry you are having a big flare. frown
      ****
      Jen

      *Diagnosed with severe IC in 2004
      *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
      *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
      *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

      **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment

      • #4
        Oh Michelle, I feel for you, I hope that you can get some relief from your flare really soon. I am not surprised with all the stress you have been going through, take care, soft hugs and keep us posted as to how you are doing, Iris. grouphug grouphug
        Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

        Comment

        • #5
          Hi Michelle,
          You will be better, I know it. It will take time and your flare eventually will go away.
          All my warm wishes to you! grouphug
          Hugs,
          Olga

          Comment

          • #6
            I'm so sorry you are flaring. I know it must be the stress you've been going through.

            I hope your tomorrow will be a better day.

            Sending warm hugs and prayers,
            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.             [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment

            • #7
              grouphug grouphug grouphug Praying for you and hoping the flare goes away; Pray Michelle. Prayers works
              Hang in there , There is hope.
              There is hope. Prayer works.

              Love, Debbie

              Comment

              • #8
                Michelle...I am so sorry that you are flaring...you certainly have had enough stress for a long time...it was inevitable. Take a deep breath, and take care of you. Best wishes grouphug
                Wishing you the best, today, tomorrow, and always! Sheri G

                Comment

                • #9
                  I hurt so badlt. I couldn't even enjoy church or Sunday School today. Of course, the well had issues at our church so I had to walk out to the outhouse - 3 times! Brrrr. I am taking another pill and going back to bed. Urologist appointment at 9:30 tomorrow. I just hurt. Michelle.

                  Comment

                  • #10
                    Hi Michelle. I hope this flare is just a really short one for you but I will be sending warm hugs and lots and lot's of prayers your way.. grouphug grouphug angel angel .....love Brea
                    Friends are an important part of sharing the burden and worry of each day. Thank you for the gift of your friendship....Brea

                    Comment

                    • #11
                      Michelle,
                      Sorry to hear you are flaring. You have had a lot of stress lately, so I am sure that is not helping. Hopefully you will be feeling better soon.

                      Jolene grouphug
                      Jolene

                      "Life is what happens when you are making other plans" John Lennon

                      IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

                      Information for Patients can be found here.
                      http://www.ic-network.com/patientlinks.html


                      Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




                      Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

                      "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

                      Comment

                      • #12
                        Hey Michelle
                        Sorry you are in pain!! Flares are no fun in fact this whole disease is no fun. Please know you are in my prayers. Hope your uro will give you some help tomorrow.
                        Luv n hugs kissing kissing
                        IC diagnosed in 2002
                        Endometriosis (per gyn)
                        Tubal ligation 1992
                        MVP

                        Meds:
                        Fem Con Fe,Prosed DS, Rescue Instillations,Vicodin (as needed), Valium (as needed),Aloe Vera Caps and Cystoprotek

                        Meds tried:
                        Elmiron (fuzzy thinking)
                        Neurontin (fuzzier thinking)
                        Allegra
                        Enabalex(bladder felt like a rock)
                        Ambien CR (severe flare after one dose)

                        Mother of two grown boys, RN ,wife and mother of a golden retriever and a gray tabby
                        Antique collector and love a good flea market

                        Just trying to find peace in the maddness of my IC world
                        Cynthia

                        Comment

                        • #13
                          I'm so sorry you are STILL haveing it bad the last thing you needed was this flare.
                          You are welcome to email me anytime i know how it is i have been there.
                          I'm sending you lots of prayers and hugs your way. grouphug grouphug grouphug grouphug grouphug grouphug grouphug grouphug
                          Medicine taken daily or as needed:
                          1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
                          2. MS.Cotin 100mg 3x daily
                          3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
                          4. Fentanyl 100 mg Change every 48hrs.
                          5. Gentamicin 80mg install after each rescue treatment
                          5 Leviquin 500mg self start as needed.
                          6. Klonopin 1 or 2 daily as needed.
                          7. Prosed/DS as 1 every 6hrs as needed.





                          I have IC, but IC doesn't have me anymore!

                          Comment

                          • #14
                            8:51 AM 2-2-04
                            I am on the way to the uro. If I don't get relief I am going to the Emergency Room. I can barely drive. And the truck is a stick shift. No one to drive me. They all decided to sleep late and my hubby is at work. I'll update you later. Michelle.

                            Comment

                            • #15
                              Michelle,
                              I am glad you are going to go get checked out. Let us know how you are doing. grouphug

                              Jolene
                              Jolene

                              "Life is what happens when you are making other plans" John Lennon

                              IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

                              Information for Patients can be found here.
                              http://www.ic-network.com/patientlinks.html


                              Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




                              Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

                              "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

                              Comment

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