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Newbie having a flare AT WORK!!!

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  • Newbie having a flare AT WORK!!!

    Owww... suddenly I think I am flaring!! Lots of back pain, and I swear I can literally FEEL my bladder sitting in my abdomen!! It feels swollen and throbs/spasms when I move. Add all this to the fact that suddenly I have a constant, urgent need to pee (even though when I try only dribbles come out, and these dribbles feel "hot" and irritate my urethra..no burning, not like a UTI, but just irritating). I have been to the bathroom 4 or 5 times in the last half hour. I even feel nauseated because the feeling in my abdomen is so intense. I am one miserable newbie

    It is worse because I am at work and can't just curl up in a ball and hide from the world like I want to...

    I took a Urised (the only med I have right now until my next uro appt on Feb 16) hoping the analgesic/antispasmodic will help. For the back pain I took some ibuprofen and am using one of those BodiHeat patches (my husband made me take it to work today to keep in my desk in case... I am SOOO glad he did). And I am working on a big bottle of water as I type.

    Arrgh... any ideas on how to make it go away fast???

    I am trying to figure out what on Earth I ate yesterday that could have caused it... it is either food or the fact that my husband and I attempted sex last night (it was nice but I really hurt after for several hours). banghead
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  • #2
    Sorry you're flaring right now. I wish I could tell you how to stop it, but I don't know how to get rid of my flares. Good luck today and hope it goes away soon. You will be in my prays. Stress can make it worse.
    Love,
    Kiyoka

    Comment


    • #3
      Hi,
      Sorry you are having a rough day. You are doing the things I would have suggested to help you through the flare. You may still want to make sure you don't have an UTI if the pain continues. Sorry to say it is possible the sex last night might be contributing to this. Sometimes that does happen.
      Take care and be sure to follow-up with your Dr. if this pain continues.

      Jolene
      Jolene

      "Life is what happens when you are making other plans" John Lennon

      IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

      Information for Patients can be found here.
      http://www.ic-network.com/patientlinks.html


      Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




      Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

      "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

      Comment


      • #4
        Thanks for the replies! I am feeling better now... the Urised and ibuprofen seem to have taken away a lot of the urgency, etc, and my back is feeling better (still a bit sore, but I'm functional) Thanks for listening to me vent during that flare I hate this disease already....
        ****
        Jen

        *Diagnosed with severe IC in 2004
        *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
        *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
        *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

        **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment


        • #5
          grouphug grouphug grouphug You are doing all the right steps. I suggest that you call your uro and see if you have and infection. I will be praying for you and hoping that you will feel better soon. Let us know how you are doing. Hang in there. There is hope.
          Hang in there , There is hope.
          There is hope. Prayer works.

          Love, Debbie

          Comment


          • #6
            I just had a urine culture done on Monday as part of my uro visit, and they called today and said it was negative again... I suppose a pretty virulent infection could crop up in a few days, I could call and see if I should come back in or not. Although I do feel much better now, no burning when I pee or anything. Just the usual dull pain way down low in my back near where my bladder would be...
            ****
            Jen

            *Diagnosed with severe IC in 2004
            *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
            *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
            *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

            **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment


            • #7
              It is not unusual for me with a bad flare to have some lingering, dull pain after the worst of the flare is over. You are the best judge as to whether you think you should call your Dr., just see how you feel.

              Jolene grouphug
              Jolene

              "Life is what happens when you are making other plans" John Lennon

              IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

              Information for Patients can be found here.
              http://www.ic-network.com/patientlinks.html


              Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




              Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

              "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

              Comment


              • #8
                Well, I am feeling much better today... just my normal frequency/urgency issues. However, my period is supposed to start today, so that may be contributing to everything (in addition to having sex the other day). However, I'm grateful the flare didn't last too too long!!!
                ****
                Jen

                *Diagnosed with severe IC in 2004
                *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment


                • #9
                  Sarojini
                  I too have the hot feeling when i void, and always have clean cultures.. ok not always but 8 out of 10 lol... I am sorry you were flaring..
                  sex can cause flares it dose with me I was just dxed with pfd and will start therapy he said it will help with painful sex... also I flare horribly during periods, my dr put me on megace to stop them...
                  BRat
                  'The will of God will never take you where the Grace of God will not protect you.'

                  Comment

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