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  • #1

    Flare

    Wow, I am in one of those flares that the pain is so intense that I am having trouble breathing.
    Do all of you get the pain in the abdomen? It seems to start there for me, then the bladder pain, then the pain all the way down my legs and around to my back. Pain meds are not doing anything to help.
    I never understand that abdomen pain and all my doctors (except for Urologist) tell me the pain in my back is not related to IC but I know it is.
    Just real tired of this.
    Ginny
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  • #2
    Ginny,
    Make sure you don't have an infection and if this is a new pain and that severe you should check with your Dr. Hugs coming your way. grouphug
    Jolene

    "Life is what happens when you are making other plans" John Lennon

    IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

    Information for Patients can be found here.
    http://www.ic-network.com/patientlinks.html


    Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




    Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

    "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

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    • #3
      I don't think it is an infection but yes, if it continues I will have a culture done.

      Ginny

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      • #4
        hugs ginny, I get pain so bad i literly am curled in a ball and can't move hope you feel better soon.
        Brat
        'The will of God will never take you where the Grace of God will not protect you.'

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        • #5
          Hi Ginny, I totlly understand with the back pain, I have never had back pain untill now, and I know I am sure mine is IC related. I know what you mean and Brat, at times I used to just curl up in a ball, and feel so bad. Now touch wood, and cross fingers, the meds I am on, really seem to help the pain, but not unfortunately the back. My heating pad gets used a lot, on my back and my side which also bothers me a lot, never did before IC. Take care and soft hugs, let us know how you are doing Iris. hi grouphug
          Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

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          • #6
            Ginny,

            I know just what you're talking about when you say the pain is so bad it hurts to breathe, let alone move and get up to pee. Those are the days I lay still with my heating pad and pray. Recently my uro sent me to a pain specialist and that's helping. The valium and percodan from uro were no longer helping and the stronger meds do. So, if you haven't seen a pain specialist yet I highly recommend. I really dragged my feet but am now glad that I'm relief. My system is still adjusting to new meds so I'm groggy most of the time and sleep a lot. I'm not driving, wouldn't do that.

            My frequency and urgency is way down, it's the sharp stabbing pain in my pelvis and abdomen that's the worst. My pain dr. has suggested a nerve block and I'm reading up on that.

            Good luck to you and sure do hope you get relief soon. Sending you hugs, grouphug

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            • #7
              hugs ginny you know that pain you said you get and me too.. well it arrived... with no return address
              Brat
              'The will of God will never take you where the Grace of God will not protect you.'

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              • #8
                Do any of you get the abdominal pain that I mentioned? It's so bad. I'm asking because I really don't know which of my many illnesses it is coming from. Could also be colitis. I don't know anymore.
                Back pain - I got a prescription for Lidoderm patches that I use on my back for IC pain. They help a lot.
                Ginny

                Comment

                • #9
                  Hi Ginny, got your PM. What are Lidoderm patches for, the pain itself in the back. Right now I have one of the Bodi Heat patches from the ICN on my back and it feeels great. Tell me more about the patches, thanks for the PM, hugs Iris. hi hat
                  Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

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                  • #10
                    Mum Iris,

                    I used Lidoderm patches and they did nothing for me. I used them on my abdomen for bladder pain. They are just lidocaine in patch form. Wet and sticky, they just numb the area affected.

                    Hugs and love,
                    Jess
                    Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

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                    • #11
                      Hi Jess,thanks for letting me know about the lidoderm patch. I know right now I just put on one of the bodi heat stick ons and they help. Also got one of the microwaveable warm whiskers, through the ICN shop, the lamb and tried that last night, seemed to work really well on my side that is painful at times. Hugs and thanks Jess, luv ya mum Iris. hi kissing grouphug
                      Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

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                      • #12
                        Hi Mum,

                        I get side pain too. Isn't it strange how IC just spreads?? Anyway, sounds like you are hurting, and I hope you feel better...I hate to see you in pain!!

                        Hugs and love,
                        Jess
                        Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

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                        • #13
                          My heart goes out to you I hope and pray you feel better soon i'm sending you prayers and get well wishes. grouphug
                          Medicine taken daily or as needed:
                          1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
                          2. MS.Cotin 100mg 3x daily
                          3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
                          4. Fentanyl 100 mg Change every 48hrs.
                          5. Gentamicin 80mg install after each rescue treatment
                          5 Leviquin 500mg self start as needed.
                          6. Klonopin 1 or 2 daily as needed.
                          7. Prosed/DS as 1 every 6hrs as needed.





                          I have IC, but IC doesn't have me anymore!

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                          • #14
                            Hi Ginny,
                            I get pain from the bottom of my ribs right on down to the pelvic area... banghead .... I wished they made one shot or cortizne and could give it to me and my hole body would stop hurting... lmao
                            hugs
                            brat
                            'The will of God will never take you where the Grace of God will not protect you.'

                            Comment

                            • #15
                              Hi gals, and thanks for the well wishes, I feel for you Cindy, I know just with my side and back hurting, and the bladder pressure is enough. I wish they could give you something to help you, especially with your whole body hurting. I just keep cuddling the warm whiskers lamb and it helps a lot. going to try the yoga tape from IC and see if that helps me out as well. Take care gals, hugs and love Iris. hi kissing grouphug
                              Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

                              Comment

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