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  • feeling so much pain

    Hi...I have been in a flare for quite a while and just found out from my 2nd urodynamics test that I have no bladder contractility. I have an Interstim and that helps but I now also have a prolapsed urethra and bladder that I have an appt. with the surgeon on 12/19 to decide which surgical approach he will take. I am feeling blue, really blue. They say that sometimes writing about your feelings sometimes helps, but it is not helping yet.....nope...not yet...! My mom just called and said, "Well, it could be worse!" and I know she is right, but I am tired of telling myself that. Anyway, writing definately didn't help, and I have to run to the bathroom again...TinaC. frown

  • #2
    Tina,
    Hang in there. There are times with this disease that you can definatley have those blue times. I hope your Dr.s can get this figured out soon. Thinking of you. Hey, go check out Club UTI, if nothing else maybe the humor from that thread can put a smile on your face today.

    Jolene grouphug
    Jolene

    "Life is what happens when you are making other plans" John Lennon

    IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

    Information for Patients can be found here.
    http://www.ic-network.com/patientlinks.html


    Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




    Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

    "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

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    • #3
      Oh, Tina.... You sound so sad. kissing

      Listen, do you have a favorite male celebrity? One you think is hottie hot? Can't tell you why yet, but if you do post his name.
      Kim

      Diagnosed August 2001

      Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


      Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

      I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

      *****************************

      “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

      “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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      • #4
        Awww Tina...

        I hope everything goes okay. I'm so sorry that this is all happening. But once you get surgery maybe you will be fixed up!!!

        I'm interested in what Kim's getting at LOL!

        Hugs and love,
        Jess
        Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

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        • #5
          Oh Tina, so sorry that you are going through a blue time right now, do hope that whatever Kim is up to, it brings a smile to your face, keep us posted as to how you are doing, love and soft hugs Iris kissing grouphug
          Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

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          • #6
            grouphug grouphug grouphug Tina I feel your pain with your prolasped bladder and the urgency and frequency. I had a bladder supension done on sept 5 and it has helped me so much. I still flare from time to time and I am flaring right now and people at work know when I am in pain, they can tell by my eyes and the way I look. So I am drinking more water. GEtting up three times a night isn't helping me any either. I hope you feel better soon. Please keep us posted.

            I am also wondering what Kim is getting at too. She is so funny.
            Let me know how you are doing.
            Hang in there , There is hope.
            There is hope. Prayer works.

            Love, Debbie

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            • #7
              Do you have pain meds?

              G

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              • #8
                i will be praying for you i hope everything works out fine on the 19th if you have pain medicine please take them if they are not helping call your uro if you dont have any call them and ask for some.
                best wishes
                hope you feel better soon keep us posted. grouphug
                Medicine taken daily or as needed:
                1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
                2. MS.Cotin 100mg 3x daily
                3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
                4. Fentanyl 100 mg Change every 48hrs.
                5. Gentamicin 80mg install after each rescue treatment
                5 Leviquin 500mg self start as needed.
                6. Klonopin 1 or 2 daily as needed.
                7. Prosed/DS as 1 every 6hrs as needed.





                I have IC, but IC doesn't have me anymore!

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                • #9
                  I do understand. I just had surgery in mid November to put my abdominal organs back where they belong. My surgery was done vaginally. I'm feeling pretty well recovered now with the exception of some vaginal drainage --- and I'm not allowed to lift anything or do things that put any strain on my abdomen --- like running the vacuum cleaner.

                  I know it's scary to look forward to surgery. I know I was. But even though I am one of those rare people who tend to have drug reactions, overall it went smoothly. It may not help my IC, but we'll know about that as time goes on. My uro did my surgery and I have absolute trust in him.

                  Please be sure to let us know what you find out.

                  Sending healing thoughts,
                  Donna
                  Stay safe

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

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                  • #10
                    What kind of surgery are yall talking about??? JUSt curious and did it help??? Let me know Please!!!!!

                    Tami
                    [email protected]

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                    • #11
                      Aww Tina so sorry. I hope things improve real soon. grouphug
                      Faith, Hope, and Love,
                      Katrina


                      I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

                      IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                      or find me on facebook http://www.facebook.com/kat671?ref=profile
                      Be the Miracle! & Pay it Forward!

                      [email protected] please contact me...I am here to help!

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                      • #12
                        kim, well my favorite male hottie is Kevin Costner....I think there is something very yummy about him.
                        Well...my surgery is scheduled for 12/30. I will be in the hospital or about 3-4 days. I am having a version of the "Birch procedure" which will support my vaginal tissue, wall, urethra and bladder and anything else that has fallen. I will be in the hospital for New Year's Eve but my hubby is going to convince the nurses to let him stay. They have all private rooms anyway. Wish me luck!!!
                        Tina frown

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                        • #13
                          {{{{{{{{{{Tina********************

                          I'll be thinking of you. Please keep us posted. That's sweet that hubby will be with you for New Year's. Maybe you'll bring in the new year with some good news!

                          Hugs and love,
                          Jess
                          Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

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                          • #14
                            Hey Tina. I had my son on New Year's Eve and they treat you really great during the holiday season. Take care and get well. I'll say a prayer for you.

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                            • #15
                              Thank you all for all the kind words. I hope everyone has a wonderful holiday...Tina grouphug

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