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Oh this pain!

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  • Oh this pain!

    For the past few days the pain in my vulva, urethral area has been so bad to the point that I can hardly sit down. It is so bad this morning and I want to sit with my legs spread apart, which I can't really do in this constricting office chair! Today the burning has started to come back and my shooting pain that I get down my leg sometimes is back, which I think is from my Endometriosis. I am going to my Urologist on Tuesday to rule out Vulvodynia, but I don't know how I will last until then! Sorry to vent, I just needed to get it out.
    cussing
    "Give what you have. To someone else it may be better than you dare to think."
    -Longfellow

    History of IC, Vulvodynia, Endometriosis, Adenomyosis, Polycystic Ovaries, and Cyst's on my Spine.
    Update as of 6/27/07- Endo, Adenomyosis & Polycystic Ovaries are gone because I had a Hysterectomy in May of 2005! Still battling IC and what was thought to be Vulvodynia, now thought to be PNE.
    Meds: Paxil 40 for IC, Clonazepam 1 for Restless Leg Syndrome, Seroquel 100 for Bipolar, and pain pills as needed.

    You can find more info on me here:
    www.bellaperlina.etsy.com
    www.bellaperlina.blogspot.com

  • #2
    Hillary,
    I wish I could offer some help. I don't have this as part of my IC and don't know what to offer. I just hope you can get some help soon. I can send you a hug. grouphug
    Jolene

    "Life is what happens when you are making other plans" John Lennon

    IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

    Information for Patients can be found here.
    http://www.ic-network.com/patientlinks.html


    Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




    Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

    "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

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    • #3
      I also wish I could help. But I am glad you have an appointment with your doctor soon.

      Sending warm healing thoughts,
      Donna
      Stay safe

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        I am having the same pain as you are describing! I went to the doctor yesterday! She changed my pain med's but the pain only intensified last night! This morning it is my much better after a miserable evening! My doctor did test for Vulvodynia and ruled it out !! She did take some cultures and said she would get back to me today!
        I'll let you know if I find anything out or if anything works for the pain!
        I hope you get some relif soon and good luck with your appointment !
        Kelly
        To the world you might be one person but to one person you might be the world..
        I am a newbie Angel ~IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment


        • #5
          Oh I want to thank all of you for all of your support! How did they do cultures for the vulvodynia? Was it with a Q-tip? I pray that you don't have that, and I hope that I don't have it either, it's hard enough dealing with the IC and Endo. I am so glad we all have each other to support and give advice! grouphug
          "Give what you have. To someone else it may be better than you dare to think."
          -Longfellow

          History of IC, Vulvodynia, Endometriosis, Adenomyosis, Polycystic Ovaries, and Cyst's on my Spine.
          Update as of 6/27/07- Endo, Adenomyosis & Polycystic Ovaries are gone because I had a Hysterectomy in May of 2005! Still battling IC and what was thought to be Vulvodynia, now thought to be PNE.
          Meds: Paxil 40 for IC, Clonazepam 1 for Restless Leg Syndrome, Seroquel 100 for Bipolar, and pain pills as needed.

          You can find more info on me here:
          www.bellaperlina.etsy.com
          www.bellaperlina.blogspot.com

          Comment


          • #6
            Different doctors do it different ways. Some use the Q-tip but some diagnose on symptoms.

            Ginny

            Comment


            • #7
              Isn't Vulvodynia treated pretty much the same way that IC is? Right now I am on Elmiron, Paxil Cr and Atarax, but I have only been on them for a week and a half. If I do have Vulvodynia can I expect to have the same treatment?
              "Give what you have. To someone else it may be better than you dare to think."
              -Longfellow

              History of IC, Vulvodynia, Endometriosis, Adenomyosis, Polycystic Ovaries, and Cyst's on my Spine.
              Update as of 6/27/07- Endo, Adenomyosis & Polycystic Ovaries are gone because I had a Hysterectomy in May of 2005! Still battling IC and what was thought to be Vulvodynia, now thought to be PNE.
              Meds: Paxil 40 for IC, Clonazepam 1 for Restless Leg Syndrome, Seroquel 100 for Bipolar, and pain pills as needed.

              You can find more info on me here:
              www.bellaperlina.etsy.com
              www.bellaperlina.blogspot.com

              Comment


              • #8
                My gynecologist did the Q-tip test and also asked about my symptoms. I have vestibulitis, so it was easy to see the tender areas, because they were read, lesion-like areas. But not all of the pain I experienced with vulvodynia/vestibulitis was external.

                The treatments I received for IC (Elmiron, Urocit-K, Detrol LA) as well as for vulvodynia (Elavil, continuous birth control, calcium citrate) have kept my symptoms pretty much under control. I think both treatments eventually helped provide relief for both conditions over time. But the treatments are not necessarily interchangeable, nor does one treatment apply for all types of patients.

                Good luck!
                Namaste

                "You must be the change you want to see in the world." - Mahatma Gandhi

                "The most important medicine is tender love and care" - Mother Teresa

                Proud mother of Ahleia, born on April 9, 2007

                -----------------------
                Diagnosed with:
                IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great!

                Meds:
                Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35

                Health treatments/practices:
                Kripalu yoga, Chiropractic, Massage therapy and Reiki

                Comment


                • #9
                  Thank you so much for all of your help. Everyone here is so great, and so understanding. I am so glad to be a part of this group!
                  grouphug
                  "Give what you have. To someone else it may be better than you dare to think."
                  -Longfellow

                  History of IC, Vulvodynia, Endometriosis, Adenomyosis, Polycystic Ovaries, and Cyst's on my Spine.
                  Update as of 6/27/07- Endo, Adenomyosis & Polycystic Ovaries are gone because I had a Hysterectomy in May of 2005! Still battling IC and what was thought to be Vulvodynia, now thought to be PNE.
                  Meds: Paxil 40 for IC, Clonazepam 1 for Restless Leg Syndrome, Seroquel 100 for Bipolar, and pain pills as needed.

                  You can find more info on me here:
                  www.bellaperlina.etsy.com
                  www.bellaperlina.blogspot.com

                  Comment

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