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Help I wanna scream !!

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  • Help I wanna scream !!

    I feel yucky right now being diagnosed not even a week yet. Eating almost nothing cause I cant tolerate it! Drinking tons of water its all I drank for the 2 years!
    Been on my heating pad for 3 days and it's all coming back again kidney pain(severe),pressure,frequency,fever and I'm feeling soooo sad!!!!Taking my med's (except vicodin) caused me seizures.The dilaudid seems to cut the edge but it still is pretty painful!!! I feel bad saying why is this happening to me ! Because its happening to so many other people. It just seems so unfair to have to be in this condition for sooo long. My biggest mistake I'm learning is thinking there is going to be a quick fix. I do have a doctor appt. tomorrow so hopefully they can help me cause this pain feels worse than any I have had before !
    banghead
    To the world you might be one person but to one person you might be the world..
    I am a newbie Angel ~IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  • #2
    Welcome, Kelly! hi I am sorry you are feeling so badly, it is so discouraging. You are right to think that there is no quick fix...at least for most of us. It may take a bit of time for you and your doc to come up with the right combo of meds. Did you see out IC diet? Maybe it can help you with what you can start adding into your diet. Best of luck at your doc appt. Please continue to post and let us know how you are doing. Warm wishes, grouphug Sheri
    Wishing you the best, today, tomorrow, and always! Sheri G

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    • #3
      I am sorry you are feeling so bad. Hopefully the Dr. can help you. Sending healing hugs your way. grouphug
      Jolene

      "Life is what happens when you are making other plans" John Lennon

      IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

      Information for Patients can be found here.
      http://www.ic-network.com/patientlinks.html


      Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




      Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

      "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

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      • #4
        Kelli,
        I am so sorry you are in such pain. I wish I had a solution so instead I am sening you a big gentle hug grouphug .. feel better soon
        Brat
        'The will of God will never take you where the Grace of God will not protect you.'

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        • #5
          Thank you for the huggs and kind words. I am so sad that so many people have this problem! BUT I am sooo greatful that I am no longer alone! You all r so wonderful this is the first week in the last year that I have not had to sit and cry all by myself.I am still struggling with was I better off not knowing or am I better now that I know I have IC. I am glad I know finally I am not crazy and my pain is real . I just wish so many people did not have to suffer.
          Thanks for all the support grouphug
          To the world you might be one person but to one person you might be the world..
          I am a newbie Angel ~IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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          • #6
            I'm glad you are seeing your doctor soon. Hopefully you will get something to help with your pain without side effects. And If you do have a side effect from a medication, it's always okay to call your doctor as soon as it happens --- often they will be able to order something different without your having to wait for an appointment.

            Sending healing thoughts,
            Donna
            Stay safe

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

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            • #7
              In my case I have no doctors willing to help me right now. I have a new uro and pcp appointments set for next week so hopefully I'll get the help I need.
              The only doctor I still have is obgyn I did call her and she told me we will discuss our options tomorrow!
              To the world you might be one person but to one person you might be the world..
              I am a newbie Angel ~IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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