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  • Help! Flare up on blood pressure medicine...

    I am on my 4th blood pressure medicine. I have to be on it. There is not choice or stop it and be at high risk. All of the meds including the one I am on are making my frequency/pressure even worse. I did not think it was possible but it is. I literally go to the bathroom and before I leave have to go again. It is horrible. I have been up about 6 times on an average night. I am lucky to get 5 hours a sleep per night. I was diagnosed in 1993. I have tried all medicines you can think of. Had luck with some but can;t be on the few that helped because of the blood pressure medicine. Have you had any luck with any blood pressure medicine?

    Thanks.

  • #2
    I have not had any trouble with BP meds.. I was on Macardis.. You might want to check and see if the ones you are being put on has diuretics in them, some of them do..And this could be causing the problem..
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3
      I'm taking benicar with no IC problem. It does have 25 mg of a diuretic, but if I take it first thing in the morning, I only have frequency for about an hour or two.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        Please read this thread about Blood Pressure meds!

        http://www.ic-network.com/forum/showthread.php?t=57781

        Good luck to you. I take Clonidine and Bisoprolol, they work great and don't flare my bladder. You know to follow a strict low sodium diet?

        Cheers,

        Laura
        -Laura
        • 61 yrs old
        • Diagnosed Feb 2009, but had IC for years before that;
        • Also horribly progressive, debilitatingly painful, severe vascular rosacea and erythromelalgia.

        • Stuff that helps me--
        - the IC diet
        - CystoProtek (wonderful stuff, highly recommended)
        - Vagifem (vaginal estrogen)
        - Remeron (Mirtazapine)- 30 mg nightly for depression and IC nerve pain
        - Hydroxyzine- antihistamine for IC

        Comment


        • #5
          I'm on Toprol XL & Azor (combo of Norvasc and Benicar) w/o any issues.
          (\__/)
          (o.O )
          (> < ) This is Bunny. He's on his way to world domination.

          Comment


          • #6
            I am on Toprol-XL without any problems.

            Comment


            • #7
              Blood pressure meds

              I also have pain and frequency with high blood pressure meds. I've tried about 14 drugs, one from each class, and my bladder/urethra could not tolerate any of them. The only exception was Cozaar, but it caused continual suicidal thoughts which were unacceptable. I'm very discouraged since even the blood pressure specialist that I was referred to didn't have anything new other than Bystolic to offer, but it also caused pain. I have to weigh living in unacceptable pain or possibly having a stoke some day. Neither choice should have to be made by anyone, but for now, I have no choice but to not take drugs that cause that kind of pain.

              Hope you have better luck.

              Shirley


              Originally posted by adamedward View Post
              I am on my 4th blood pressure medicine. I have to be on it. There is not choice or stop it and be at high risk. All of the meds including the one I am on are making my frequency/pressure even worse. I did not think it was possible but it is. I literally go to the bathroom and before I leave have to go again. It is horrible. I have been up about 6 times on an average night. I am lucky to get 5 hours a sleep per night. I was diagnosed in 1993. I have tried all medicines you can think of. Had luck with some but can;t be on the few that helped because of the blood pressure medicine. Have you had any luck with any blood pressure medicine?

              Thanks.
              Shirley M.

              Comment


              • #8
                Have you tried Cardura? It's also one of the meds that helps relax the muscles and is sometimes used to help with urination --- but it also lowers blood pressure.

                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help: http://www.ic-network.com/patientlinks.html

                Sub-types https://www.ic-network.com/five-pote...markably-well/

                Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

                Comment


                • #9
                  Is high blood pressure common in ICers? My bottom number stays at least at 92 usually higher, depending on how bad I'm hurting. And sometimes I feel light headed like I'm going to pass out. My doctor wants me to wait and do some IC treatments and see if it doesn't go down.
                  xoxo, Lacon






                  belle michelle, my <3

                  Comment


                  • #10
                    High blood pressure is common among the general population, not just with ICers.

                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment


                    • #11
                      I'm sure you know this, but there are additional ways to lower your blood pressure. Stick to a very low sodium diet, which is hard, and means essentially no processed foods; exercise, hard; and try to stay a few pounds underweight. good luck with that! I have trouble with all three of these...
                      -Laura
                      • 61 yrs old
                      • Diagnosed Feb 2009, but had IC for years before that;
                      • Also horribly progressive, debilitatingly painful, severe vascular rosacea and erythromelalgia.

                      • Stuff that helps me--
                      - the IC diet
                      - CystoProtek (wonderful stuff, highly recommended)
                      - Vagifem (vaginal estrogen)
                      - Remeron (Mirtazapine)- 30 mg nightly for depression and IC nerve pain
                      - Hydroxyzine- antihistamine for IC

                      Comment


                      • #12
                        that seems so hard...but, since I've started the DMSO weekly instillations, I've lost about 20 pounds, because I stay in so much pain I'm nauseated and hurt too bad to eat. ughh
                        xoxo, Lacon






                        belle michelle, my <3

                        Comment


                        • #13
                          If blood pressure is only slightly elevated, some of the things like limiting salt and more exercise can help. If it's very high however, it's wise to work with your doctor to get it lowered.

                          Donna
                          Stay safe


                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help: http://www.ic-network.com/patientlinks.html

                          Sub-types https://www.ic-network.com/five-pote...markably-well/

                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                          [3MG]

                          Anyone who says something is foolproof hasn't met a determined fool

                          Comment

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