Announcement

Collapse
No announcement yet.

Starting off 2011 with a flare

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Judy Gee
    replied
    Hi Katie, I was glad to get your note at 6 am this morning. Well, the devil got me last night. Here I was having a pretty good day and trying to remian positive when he showed up last night again. I was up every hour, I have that nocturia thing going plus a little pain. Funny thing is I can straighten things up a bit during the day, for the most part. Anyway, I sure know what you mean about seeing a new doc. I was terrified of going to the doctor for a long time. My first visit to the uro I was hysterical and I'm not just kidding. I felt bad for the doc who had to listen to me. Now I'm just hysterical about any medical procedures. Wow, has this been a journey. Please let me know how the doc appointment went and what they want to try. Maybe there are some new meds out there that I need to know about or try. Glad you weren't offended. I thought about it again when I was up 6 times to visit the bathroom. Hope it's a better day. Judy Gee

    Leave a comment:


  • KatieB
    replied
    Judy

    You did NOT offend me. I know that if ANYBODY "gets" this stupid disease it's the people here. I'm having a very hard time being grateful today and I'm scared of this new doctor appt tomorrow. So I needed to reminded that I DO have things to be grateful for. Please don't feel as though you have done anything wrong by trying to make someone feel better. What a crappy world that would be, huh?
    I hope that we're all feeling better tomorrow and all this IC crap is just a bad dream!!!
    Good night!!

    Leave a comment:


  • Judy Gee
    replied
    I am so sorry that you are in so much pain, I didn't realize this and very much appoligize if I came off not having any understanding about how awful it feels. I surely didn't mean to offend anyone and feel pretty cruddy myself at times. It's the pits to say the least and hard to look ahead when you feel so terrible and feel that there is few people who understand. I have really, really been there and am not always much beyond it. I again apologize if I came off like I "just didn't get it" because believe me I do. I just can't explain it all on this site, wish I could. I fight everyday to keep my head above water so-to-speak. Again, I am sincerely sorry for anything I wrote that may have been offensive. I do feel awful for everyone that is out there going through all this. It goes on and on. Judy G

    Leave a comment:


  • KatieB
    replied
    @Vicki, I'm so glad you're feeling better. And hopefully that was just one of those crazy "I don't know why it happened" flares!! Good luck!! I hope it continues to get better!!

    @Judy, yes, I know it's not going to always be fair. But, frankly, I'm in pain like most other people here. And I think it's only human nature to wonder "Why me? This is not fair!". I want to grab onto one good day. But so far (since October) I haven't really had one. But I am very grateful for the people I've met here. And I'm grateful for the new doctor's appt I have tomorrow. So, there's that.

    Leave a comment:


  • KarenAnne
    replied
    Vicki, I'm sorry that I just saw this & that a flare reared it's ugly head on the holiday. I'm glad that today was a little better for you. I'm sending healing thoughts your way! Feel better soon!

    I always love seeing your latest painting. This one is especially adorable.

    Leave a comment:


  • Judy Gee
    replied
    Yes, Katie and Vicki it is unfair. But much of life isn't anyway. We have to remind ourselves of the things we could be thankful for. And believe me, I'm sincerely not trying to be rightous here. I have had many of my down days myself. I think we all share in that. But then I look around and see how many other struggles others go through, and then there are the things we can't see. The best part of all this is the IC network and some of the great people I have met along the way. I pray that all of us have better days and those of us who have had a re-occurence find some hope in the fact that it could all turn around again for us. I pray so strongly for that and for everyone out there who is struggling along with us. Maybe this is a lesson in patience for me or maybe it's just something else I can't understand. I'm just grabbing onto one good day at a time and trying to make the most of it. I can only hope that tomorrow will be brighter for all of us. Hope I didn't go over board here. Just some quick thoughts. What the heck, tomorrow I could be singing a different song. Glad you gals are out there no matter what. Judy G

    Leave a comment:


  • VickiB
    replied
    Originally posted by KatieB View Post
    This whole thing is unfair!!! Holidays or no, I just can't get to the place where I'm adjusting to it. I didn't do anything wrong!! You didn't either!! Sorry. Been awake for too long and my righteous indignation is getting the better of me. I'm still in a flare. Or I guess, I'm just in my "life". I've been living it since October. Hope you feel better today!!
    Yes, it is terribly unfair! When I was at my worst I would have some thoughts that I don't even care to admit to now. It only adds to the unfairness of IC that somehow I managed to catch a break and now feel pretty good most of the time, while others continue to struggle 24/7. Why? The one good thing about that is if it happened to me (and others) it could very well happen for you too.

    On the other hand these occasional flares that strike without warning are a grim reminder that my good luck could also end. I try not to think about that.

    Today I seem to be almost back to normal. Still a sore, bruised feeling in the bladder but the pain is finally gone. I wish everyone else could say the same!

    Leave a comment:


  • KatieB
    replied
    Originally posted by VickiB View Post
    Is it just me or does it also seem to you that it's especially unfair to have a flare during holidays?

    Shopgirl & Katie, I'm sorry to hear you two were ringing in the New Year with a flare as well. Rotten luck!


    Was this the first time you'd tried this or has it worked for you before like that too? At one point I thought about ordering the Desert Harvest Aloe but then never followed through with it. I think I'll go ahead and give it a try now.

    I hear you Katie,..I hate this too! Has your 2011 flare run it's course or are you still flaring?
    This whole thing is unfair!!! Holidays or no, I just can't get to the place where I'm adjusting to it. I didn't do anything wrong!! You didn't either!! Sorry. Been awake for too long and my righteous indignation is getting the better of me. I'm still in a flare. Or I guess, I'm just in my "life". I've been living it since October. Hope you feel better today!!

    Leave a comment:


  • VickiB
    replied
    Is it just me or does it also seem to you that it's especially unfair to have a flare during holidays?

    Shopgirl & Katie, I'm sorry to hear you two were ringing in the New Year with a flare as well. Rotten luck!

    I took 6 Desert Harvest Caps (they say you can do this when a flare comes on) and it totally took my flare away!
    Was this the first time you'd tried this or has it worked for you before like that too? At one point I thought about ordering the Desert Harvest Aloe but then never followed through with it. I think I'll go ahead and give it a try now.

    I hear you Katie,..I hate this too! Has your 2011 flare run it's course or are you still flaring?

    Leave a comment:


  • KatieB
    replied
    I'm so sorry that you guys were ringing in the New Year with a flare. I was too. I hope you're feeling better now, or at least soon! I hate this!!

    Leave a comment:


  • shopgirl06
    replied
    Hi ladies, I am on Cystoprotek and Desert Harvest Aloe Caps. I have to say I started 2011 with a flare too. I have to tell you what helped me. I took 6 Desert Harvest Caps (they say you can do this when a flare comes on) and it totally took my flare away! If you need to, you can take another 3-6 in 4 hours, but I didn't have to. I think eating alot of junk over the holidays brought my flare on, but I am going to the doctor tomorrow to make sure I don't have an infection. I really hope this gives you girls some hope. I have been on both of these drugs 8 months now and they really do work. I have the occassional flare, but I ususally can always figure out why I'm having it. The heating pad works well also when I feel it coming on.

    Leave a comment:


  • VickiB
    replied
    I like northern Nevada but you do get the weather in that high country! And it seems this year you've really been taking a beating!

    Last year my hubby & I stopped in a little town and met some of the nicest people. Even though they had just closed their store for the night they let us sneak in anyway to make a few purchases before getting back on the road. We drive through your state at least once a year.

    I will be heading down to Nevada again soon, but flying to avoid those unpredictable road conditions this time of year.

    My email: [email protected]
    Last edited by VickiB; 01-03-2011, 10:02 AM.

    Leave a comment:


  • Judy Gee
    replied
    Hi again, I am in Nevada, up north. We have had an unusual amount of snow this year. Usually we only have it about 3 or 4 times and it melts by noon. We are in the high desert. My husband and I moved up here from CA about 11 yrs. ago. If you would like to e-mail me at my personal address you are welcome to do so. I would love to have the support and would love to correspond with you. Thanks for helping me out today Vicki, it's been helpful. Judy Gee
    [email protected]

    Leave a comment:


  • VickiB
    replied
    No, I've never tried Prosed, but I know there are several people here who have mentioned it helps them. I believe it's the 'pee blue' med. There was a thread on Prosed vs Urelle a while back that you might find interesting:
    http://www.ic-network.com/forum/showthread.php?t=64271

    Your diet sounds about as bland as mine has been. Yesterday I had oatmeal for breakfast, scrambled eggs with toast for lunch, and homemade chicken soup for dinner. Coincidentally, I was planning on white spaghetti with hamburger for dinner tonight. I drink milk with my meals but otherwise have been sticking to water throughout the day.

    Yes, certain foods do set my symptoms off, but the foods that I must totally avoid make up a pretty short list. I've found that as long as my IC is behaving there are many things I can sample in small amounts without consequences. Occasionally I misjudge that and get into trouble though. Generally, I stick fairly close to the bladder friendly column of the IC diet on this site.

    If you're 'snowed in' I'm guessing you're in the north like me. I'm not currently in the snowed in mode and am keeping my fingers crossed it stays that way. Do you find that cold weather aggravates your symptoms at all?

    Leave a comment:


  • Judy Gee
    replied
    Back again, just called the uro's office to see if I could get some more samples for frequency and try the Prosed. Have you ever tryed the Prosed? I'll try anything at this point. If you have info about the Prosed could you let me know, side effects, blue or orange in the potty??? I will try the baking soda also. What kinds foods have you been eating lately. I had toast yesterday with butter and half a pear. Lunch I had some cheese and bread. Dinner I made a spaghtetti that had a white sauce and crab, a bit of cheese. I sipped on cinnamon tea during the day. As I mentioned, I was up every hour. Feel a lot better today but not 100%. Do you know if certain foods set you off? I was able to handle almost anything until now. Very discouraging but I am making myself get up and get out even though we are snowed in. Went to Curves at 6:30 am, I've gotta get moving or it's disaster for me. Thanks so much for being out there for me, it's been very comforting. I have met a great friend in IN who has really been a wonderful mentor and has so much knowlege about this. I would have never dreamed I would be discussing this subject at this point in my life. Sometimes it's good that we don't know what's ahead of us. Thanks again and hope to hear from you again. Judy Gee

    Leave a comment:

Working...
X