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  • OUCH....infection

    i had been feeling TERRIBLE so i got lucky and was able to get in to see my IC specialist on 1/5 who said my urine looked really bad and that he was going to culture it.....he explained that IC patients have a harder time getting rid of bladder infections and that they make us feel way worse than those with normal bladders.....he put me on 100mg of Macrobid 2x per day for a week, upped my pain meds a little and told me to keep in touch with him, otherwise see him back to follow up in 2 months. I had been feeling a little better.....

    So....yesterday i get a message from his nurse who said that my culture was back and that i indeed had a bad infection and that he wanted me on another full week of the above Macrobid dose, and that i was to take one 100mg pill a day thereafter......he also wants to see me in one month instead of two.

    I just left his nurse a message. I FEEL TERRIBLE again....actually worse now than i felt last week.....except i am nauseated now.........stabbing pains in bladder and back, shooting pains running down my inner thighs....fever.......why is this happening when i was feeling so much better a few days ago?

    Praying that i get a call back.................anyone dealt with this before?

    Any thoughts are greatly appreciated..............

    Meredith
    Dx's: Moderate IC, PFD, Infertility, ADHD, Anxiety/Depression.
    Current Meds: Zoloft, Adderall, Seroquel, Gabapentin, Hydroxyzine, Claritin, Pyridium, At-Home Instills, Macrobid, Lidocaine Gel
    Meds that Didn't Help: Ultram (Severe Retention), Tylenol 3 (Itch), Paxil, Effexor, Cymbalta.
    IC Handbook Link: http://www.ic-network.com/handbook/

  • #2
    The only thing I can think of is that I get very nauseated from pain meds unless I take an anti-nausea medication with them. I hope you feel better soon.


    Donna
    Stay safe


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    • #3
      That kind of sounds like what happens to me when my bladder infections move to my kidney. I hope that's not what's happening. It could be that the macrobid is not the right drug. But you should talk with your doc or nurse before they leave today. A kidney infection is very serious and you don't want to end up in the ER over the weekend. Good luck.
      Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
      Lexapro-20 mg
      Aciphex
      Ambien-as needed
      Percocet-7.5 up to 3 per day as needed
      Valium-10 mg x2 per day
      Phenergan-1 at night
      Prelief w/everything
      Now recovering from acute pancreatitis

      Currents treatments that help somewhat:
      Heating pad
      Hot baths
      Ice
      Being VERY still while lying down with legs elevated

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      • #4
        Did you get a call back? I know I can get nauseated with a bladder infection, and yes, it can take longer to get relief. I hope you feel some relief soon.........
        Julie Beyer, MA, RDN
        IC Dietitian, Patient Advocate, Speaker, & Author


        Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

        Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

        You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

        ........ ........


        Other IC Diet Resources:

        IC Diet Webinar
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        For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
        Free IC Diet Booklet: What Can I Eat?
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        IC Diet Newsletter


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        • #5
          Update

          Thank you ladies for responding.....i did get a call back about 4:45pm on Friday from his nurse who basically just said the infection was causing me to flare badly and to keep taking my medications as he prescribed.....she said that if i got worse over the weekend to call the on-call doctor. Hmmmmm.........that is what i was trying to avoid doing by calling Friday since my doc is the only IC Specialist on board.....i didn't know what good it would do to call the on-call Urologist who knows nothing about me or my diagnosis.

          I am still having all of the symptoms i mentioned before, except for that the nausea has gone away....feels like the area around my kidneys are hurting now.......not really sure what else i can do except for ride this out?

          Meredith
          Dx's: Moderate IC, PFD, Infertility, ADHD, Anxiety/Depression.
          Current Meds: Zoloft, Adderall, Seroquel, Gabapentin, Hydroxyzine, Claritin, Pyridium, At-Home Instills, Macrobid, Lidocaine Gel
          Meds that Didn't Help: Ultram (Severe Retention), Tylenol 3 (Itch), Paxil, Effexor, Cymbalta.
          IC Handbook Link: http://www.ic-network.com/handbook/

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