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Worst flare since dx in 2002!

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  • Worst flare since dx in 2002!

    This is crazy! I can't for the life of me figure out what is causing this but I feel like I did when I was first diagnosed and everything was out of control. I am peeing every few minutes. It burns so bad when I pee and at the end of peeing there is this horrible feeling of having to still go really badly. When I am just sitting around my urethra is burning like fire. This is a symptoms I have never had! I am on my 2nd week of this and realize how spoiled I have been with symptoms being somewhat consistent and not totally out of control. This is NOT acceptable - I just have to figure out what to do next! Call the uro tomorrow will be the first thing!

    Thanks for listening - I just had to vent a little!
    Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!
    _____________________________

    DX: IC - November 2002 after hysterectomy
    Interstim implanted March 2006 - died May 2011
    Interstim replacement June 2011
    Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
    Docs: Pain management doc, urologist, family practice

  • #2
    Have you been checked to be sure you don't have an infection working? If not, I think that would be a good idea.


    Donna
    Stay safe


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    [3MG]

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    • #3
      Oh no... so sorry to hear this! I wonder what's going on, because for the last few months I've felt worse for the first time in about 3 years! I don't have an infection and I'll be seeing my uro next week to see if he's got any bright ideas, but man, it's frustrating... I know EXACTLY how you feel!!
      ****
      Jen

      *Diagnosed with severe IC in 2004
      *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
      *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
      *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

      **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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