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Know what I miss most???

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  • Know what I miss most???

    So, I got up at 5 am to pee and while I was sitting there I was thinking that the thing I miss the most since having IC is RELIEF. You know before IC when you have to pee really badly and then when you go it feels so good and you get great RELIEF!? That is what I miss - that feeling of RELIEF! It just always feels like I have to go and when I pee it feels even worse.

    Anyway...just a thought I had this morning. Anyone else know what I mean?
    Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!

    DX: IC - November 2002 after hysterectomy
    Interstim implanted March 2006 - died May 2011
    Interstim replacement June 2011
    Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
    Docs: Pain management doc, urologist, family practice

  • #2
    Absolutely! I keep a crossword book in my bathroom and site there and work a puzzle for a few minutes and just relax. It really seems to help.

    Stay safe

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    • #3
      I know exactly what you mean! Those were the good ol' days!


      • #4
        What I miss most

        I also know exactly what you mean.
        I have magazines in the bathroom and will sit and read an article and relax so my bladder can empty more.


        • #5
          I feel the same way you all do. Before IC came along I never realized how good I had it when peeing was just a simple act and it invloved no pain. Oh, how I long for those days. Nowadays even whenever I am relatively pain free I still have to deal with frequency and urgency. Since I am currently 5 months pregnant that has even become a bigger nuisance. As my sweet litttle angel grows inside of me I suppose that will even become a bigger problem.
          Rebekah - Diagnosed with IC and Hunner's Ulcers in March 2009

          Two Hunner's Ulcers were removed by laser surgery surgery Jan 15 , 2010

          Proud Mother of Jeremy Jr. Born on Wed May 4, 2011

          "For every door that is closed a new one is opened"

          The Lord's Prayer

          Our Father, who art in heaven,
          Hallowed be thy Name.
          Thy kingdom come.
          Thy will be done,
          On earth as it is in heaven.
          Give us this day our daily bread.
          And forgive us our trespasses,
          As we forgive those who trespass against us.
          And lead us not into temptation,
          But deliver us from evil.
          [For thine is the kingdom,
          and the power, and the glory,
          for ever and ever.]


          • #6
            Yes know what you mean but, I also miss coffee.
            <a href=";current=Picture005.jpg" target="_blank"><img src="" border="0" alt="Photobucket" ></a>


            • #7
              Oh yes, Bob spends so much time in the bathroom and always has reading material. I said if we could put a TV, refrig and phone in there he could just live there. Jill, wife of Bob


              • #8
                I truly understand. Usually, I sit, relax, and pray. It never fails as soon as I get up, BAM, I feel as if I have to go again. Gotta love IC


                • #9
                  I miss being able to have a nice drink at the end of a long day! Oh, and a coffee to wake me up!



                  • #10
                    Originally posted by momw/ic
                    That is what I miss - that feeling of RELIEF!
                    It's been so long that I'm not sure I remember what that felt like!
                    "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."


                    • #11
                      I think the worst part of this disease is that you're in so much discomfort and for some a lot of pain and on top of it you have to give up the little pleasures in life that get us through hard times. I'm sure most of us would be able to deal a lot better with all of this if we could go out and have a few drinks and a lovely meal with family and friends or a good strong coffee when we've been up all night. It's ridiculous how isolating this disease is. I really think it's worse than a lot of things out there. Yeah, you don't die, but your quality of life is horrible. I'm doing okay now but I feel so deprived!



                      • #12
                        I completely understand what you feel. I have had this disease/condition for 3.5 years and I recently realized that I do not remember what normal feels like. Even though I am able to keep the pain mostly under control, its never completely gone and then I have to deal with the side effects of my medication. Since starting Lyrica I have gained over 20 lbs, which to be mostly pain free is worth it but still. Then having to keep to this diet all the time can just sometimes be soooooooo frustrating, I miss Strawberries soooooooooooooo much they have been my favorite food since I can remember.

                        In addition the fatigue that the Lyrica causes, and lastly what you already brought up which is I never fully feel relief after using the bathroom. It's funny everytime I come on this site, someone has already expressed exactly what I have been thinking/going through. Even though it sucks for all of us, it is sometimes nice to see that other people have been where you are or understand what you are going through.


                        • #13
                          totally agree!!! I hate when I go into public bathrooms & hear the ladies around me peeing their brains out like they turned on a faucet & all I do is little drip dops. i would LOVE to be able to hold that much pee & just feel that AHHHHHHHHH moment.
                          I miss it too.
                          Currently Taking:
                          20 mg Celexa
                          fentanyl patch 12.5 mcg chgd every 3 days
                          morphine IR 15 MG, up to 3x daily
                          Xanax 1mg as needed (not taken daily)
                          900 MG Oxycarbizine (mood disorder)
                          300 MG Welbutrin
                          Tizanidine 4 mg up to 20 mg daily as need
                          Prevacid 30 mg
                          Ambien as needed

                          my heating pad is my best friend, use daily on my lower back & pelvic area
                          blessed to be able to receive massage & Amma , along with Avazzia therapy 3x weekly

                          Been diagnosed for 10 years now, consider myself pretty well versed in this disease & would love to help out with new IC sisters or brothers, feel free to message me.