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I feel so hopeless

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  • #1

    I feel so hopeless

    I hurt all day every day. I just got in to see a urologist that I waited 3 months to get in to and she gave me Vesicare. The Vesicare pretty quickly made it almost impossible to urinate. I was worried I was going to have to go get catheterized. After waiting a week to finally have my many phone calls returned by the nurse, she tells me that I'll have to wait 2 months to get back in to the doctor. I have no idea what to do. I am so desperate for relief.

    It is so hard to find doctors that take new patients in DC. I worked so hard to find this urologist and have no idea what I'm going to do.
    ~Star B.

    Conditions:
    Interstitial Cystitis
    Fibromyalgia
    Chronic Fatigue
    Endometriosis
    Neurally Mediated Syncopy
    Tags: None
  • #2
    I'm so sorry you're in this position! I don't know anything about Vesicare, -it's an overactive bladder med isn't it? I remember you mentioning in a past post that you were diagnosed with IC.

    It seems two months is a long time to leave you hanging in pain if the prescribed treatment isn't working out. Perhaps you could call the office and ask about being put on the list to call in case there's a cancellation. Or try to find another uro who might see you sooner. I know you said that's a problem in your area. I don't know if you'd have any luck looking further out of your area?
    "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

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    • #3
      Some Gynos are very good at treating IC.

      Comment

      • #4
        Originally posted by Tuckersmom View Post
        Some Gynos are very good at treating IC.
        How would you suggest finding one? I could just start calling and asking if they treat IC. Thanks for the suggestion.

        And thanks for the support guys.
        ~Star B.

        Conditions:
        Interstitial Cystitis
        Fibromyalgia
        Chronic Fatigue
        Endometriosis
        Neurally Mediated Syncopy

        Comment

        • #5
          Yes, you would just have to call and ask. I have a Uro and he treats my IC, but I found out later that my Gyno treats IC also.

          Comment

          • #6
            Good Doctors - Hard to Find

            It's a job to find the right doctor. I have been through many over the years. I do have a uro I see once every two years, but my primary care treats me for everything. When she first met me, she promised she wouldn't give up on me and that she would get me feeling better. She did.

            But, I did not find her without struggles and numerous trips to doctors who seemed like they didn't care. I wanted to give up. PLEASE DON'T. Call and ask questions, use the listings on this website, go to a support group, post a threat in the forum for your neck of the woods to find others with IC, but DON'T GIVE UP. It's a tiring and stressful hunt, but when you find the right doctor there is hope. Hang in there! Best wishes to anyone looking for a good doctor, I hope you find one soon. (It took me several years).

            ~~Heidi~~
            My issues:
            Adenomyosis -Diagnosed 2010
            Fibromyalgia - Diagnosed 2009
            IBS - Diagnosed 2007
            IC - Diagnosed 2003
            Endo - Diagnosed 1998
            Cystic Acne
            Migraines



            My meds:
            Elmiron orally 100 mg 2x per day
            Effexor 75mg 1x perday
            Welburtin 150 mg 1x per day
            Maxalt (as needed for migraines)
            birth control pills


            Comment

            • #7
              I suggest you see your primary care physician. You may be able to get a referral to a urologist through that office. Two months is a long time to wait for an appointment if you're already a patient there --- you might want to look at making a change.

              Warm hugs,
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.               [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

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              • #8
                Thank you everyone for the encouragement. I'm looking at some doctors outside of the D.C. area now. Hopefully I will find the right one.
                ~Star B.

                Conditions:
                Interstitial Cystitis
                Fibromyalgia
                Chronic Fatigue
                Endometriosis
                Neurally Mediated Syncopy

                Comment

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