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Meds not working may even be making matters worse

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  • Meds not working may even be making matters worse

    I don't have alot of time so this will be short a sweet. I just recently had a cystoscopy with hydrodistention and a laparoscopy (2/22/11). Laparoscopy showed endometrios and cystoscopy was done to help me find some relief from the pain I have been going through. After all that I was given Elmiron and Lupron Depot with add back theropy. My pain is worse and now I am gaining weight. These new treatments seem to be working great (yes that is sarcasm)! Any thoughts? Do I just need to give it more time or could they be the cause of my increase in pain?
    Darcy

  • #2
    has your uro reccomended rescue treatments or other cocktail instills?
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    • #3
      The instills cause me increased pain. I have pain meds and sometimes a ice bottle helps. Currently the pain meds aren't even helping much. Other than the diet no other rescue treatments have been recommended. Do you know of some?
      Darcy

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      • #4
        sometimes its finding the right mixture cocktail, there is also tens you can consider.
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        <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
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        • #5
          I don't know about lupron but I believe it's prescribed for endo. Elmiron can take six months or longer to become effective --- it shouldn't be making your bladder pain worsen. It does have some side effects.

          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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          • #6
            Lupron essentially puts you into a medication menopause so that might be causing you to have some more troubles. A lot of people have increased symptoms during times of hormonal shifts like during their periods. My Dr wanted to put me on Lupron but I decided not to go ahead with it. You might want to try and do some research on IC and hormones to see what other's have said about those things.
            Good luck,
            Sandra
            Link to the patient information, everything from What is IC? to Disability
            http://www.ic-network.com/patientlinks.html

            American Urological Association Clinical Guideline
            Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
            http://www.auanet.org/content/guidel...ent_ic-bps.pdf

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            • #7
              It's very possible you are still healing/flaring from the cysto/hydro. It's very common to get an increase in symptoms for a while after that procedure. Plus you had the LAP at the same time! You may still be in recovery from all that trauma to your body. Hopefully a few more weeks and you will be back to your pre-op level of symptoms.

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