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Meds not working may even be making matters worse

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  • Briza
    replied
    It's very possible you are still healing/flaring from the cysto/hydro. It's very common to get an increase in symptoms for a while after that procedure. Plus you had the LAP at the same time! You may still be in recovery from all that trauma to your body. Hopefully a few more weeks and you will be back to your pre-op level of symptoms.

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  • sailawaygrl
    replied
    Lupron essentially puts you into a medication menopause so that might be causing you to have some more troubles. A lot of people have increased symptoms during times of hormonal shifts like during their periods. My Dr wanted to put me on Lupron but I decided not to go ahead with it. You might want to try and do some research on IC and hormones to see what other's have said about those things.
    Good luck,
    Sandra

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  • ICNDonna
    replied
    I don't know about lupron but I believe it's prescribed for endo. Elmiron can take six months or longer to become effective --- it shouldn't be making your bladder pain worsen. It does have some side effects.

    Donna

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  • Linda May
    replied
    sometimes its finding the right mixture cocktail, there is also tens you can consider.

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  • ItIsWhatItIs
    replied
    The instills cause me increased pain. I have pain meds and sometimes a ice bottle helps. Currently the pain meds aren't even helping much. Other than the diet no other rescue treatments have been recommended. Do you know of some?

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  • Linda May
    replied
    has your uro reccomended rescue treatments or other cocktail instills?

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  • Meds not working may even be making matters worse

    I don't have alot of time so this will be short a sweet. I just recently had a cystoscopy with hydrodistention and a laparoscopy (2/22/11). Laparoscopy showed endometrios and cystoscopy was done to help me find some relief from the pain I have been going through. After all that I was given Elmiron and Lupron Depot with add back theropy. My pain is worse and now I am gaining weight. These new treatments seem to be working great (yes that is sarcasm)! Any thoughts? Do I just need to give it more time or could they be the cause of my increase in pain?
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