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Help!!! in a flare and regret what I did....

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  • Help!!! in a flare and regret what I did....

    OMG... I am so regreting riding a four wheeler with my family..2 saturdays ago I was working out in the yard and deciding to go for a ride on the four wheeler to cool off. My family went riding down some trails and stuff for about 45 minutes to and hour and when I got off I immediately started to feel as if I was having period cramps. I was taking cystoprotek for about a week and noticed a difference right away in my symptoms. I was perfectly fine before I took that ride( no pain at all for a week). Now I am on all of my IC medications when I was only on cystoprotek. It is so aggrevating because I love to go riding and working out in the yard. Is this what you guys call a PFD flare? Oh and another thing happended to me that I have never had before was... about a day after the rode I began to itch around the vaginal region. I have never had that. I thought maybe I had a yeast infection but the itching was not inside the vagina. I went to the gyno and he said that there was no infection going on. The itchiy feeling was almost like a tingly itch that would come and go during the day and was worse at night. It went away without any treatment. Was that nerve pain you think? Please help I am still in a flare and am regretting riding the four wheeler.. I just wanted to have some fun.....
    _____________________________________________

  • #2
    What could be going on is that when you were riding you iritated you pudendal nerve, it can cause that exterior itch feeling but it is actually from the nerve. Do some research on vulvodynia, see if that sound like what you are experiencing. I have vulvodynia but it doesn't bother me a lot,only when I do something to really upset the nerves. You might have some PFD flare going but I also find that a lot of bumping around disturbs my bladder. It really hates that sort of thing.

    The only thing I know to do when I have over done things with my bladder is to get lots of rest, soaks in a warm tub and either hot or cold in between your legs, whichever feels better. Sometimes I use a heating pad on my bladder but for me I don't get much relief with that, many others do though. You will get better, take care of yourself. If you notice things not getting better over time, definately call your Dr, you could have something else going on too.

    Sandra
    Link to the patient information, everything from What is IC? to Disability
    http://www.ic-network.com/patientlinks.html

    American Urological Association Clinical Guideline
    Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
    http://www.auanet.org/content/guidel...ent_ic-bps.pdf

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    • #3
      Thank you so much.. I thought maybe it was nerve pain after the dr said that there was no infection. That part of it did go away but the bladder pain is still there. Uh... I hate my bladder....lol
      _____________________________________________

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      • #4
        dont regret it

        dont regret it...it was fun....heating pad....aloe vera pills.....hot bath....book.....
        Quit ELMIRON due to hair loss
        Cystoprotek ROCKS!

        find me on FACEBOOK -
        search my email [email protected]

        Current Meds:
        AM Cystoprotek & ATARAX 50mg
        Dinner CYSTOPROTEK
        PM Elavil 25mg

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        • #5
          Exercise

          I am a newbie, I got my IC diagnosis this past Tuesday. So....last summer when I went for a bike ride and then felt a flare up...that wasn't my imagination, the bike ride really could cause irritation????

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          • #6
            Hi Karen,

            Welcome to the ICN. You are so right about riding a bike. It is really bad for people with IC or vulvodynia. Some people find that getting a different seat helps with the problem. Sitting with so much pressure on the pelvis can cause a lot of irritation.

            How are you doing now?

            Sandra
            Link to the patient information, everything from What is IC? to Disability
            http://www.ic-network.com/patientlinks.html

            American Urological Association Clinical Guideline
            Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
            http://www.auanet.org/content/guidel...ent_ic-bps.pdf

            Comment


            • #7
              How am I doing?

              This past Tuesday I had my first "rescue" treatment and I have the second one scheduled for April 7th. I am taking Amitriptyline at night before bed to keep my bladder relaxed during the night. I have felt great all week, barely any discomfort. A little while ago, I went for a brisk walk, and during the walk, I started feeling discomfort. I am so bummed. Can a walk really set it off?????

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