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How long do your flares last?

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  • How long do your flares last?

    So, I had my son 8 months ago, and I have pretty much been in a flare since. Either that or my IC has gotten really bad. Ive done everything and not even a cystoscope helped.
    I am the mother to my beautiful son Parker Thomas.
    I have had IC for 10 years, and I also have migraines, endometriosis, pelvic adhesions, osteopenia, peptic ulcers, fibromyalgia, and PFD.
    I am currently prescribed Effexor XR 150 for depression/anxiety, 50mcg Fentanyl patch, Percocet for breakthrough pain, Klonipin for sleep and anxiety, and d-amphetamine salt xl for ADHD and excessive daytime sleepiness due to my pain meds, Pyridium, 10 mg of Valium (inserted vaginally to relax pelvic floor muscles, and I do bladder instillations once a day consisting of a mixture of 3cc Sodium Bicarbonate, 5CC Lidocane, & 22cc of Heparin. I also regularly use a prescribed TENS unit for pelvic pain, along with lots of rest in bed with my four, four-legged furry friends. (I once heard called "fur-therapy")
    There is always something beautiful around you, sometimes you just have to look for it!

  • #2
    Hmm, flares can last a variety of time. I can see how child birth and the stress of change could cause a flare.

    Are you following the IC diet? Also drinking plenty of water can help. If your flare is causing alot of bladder pain and burning, it can help to drink about 1/4 tsp of baking soda in a glass of water. Only do this if you don't have any blood pressure problems though. It tastes awful but it can help.

    It might help if you describe some of the symptoms of your flare, that way we can give you some ideas that might be of help.

    Wishing you pain free days,

    Link to the patient information, everything from What is IC? to Disability

    American Urological Association Clinical Guideline
    Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom


    • #3
      every icer is different.
      <a href=";current=Picture005.jpg" target="_blank"><img src="" border="0" alt="Photobucket" ></a>


      • #4
        Originally posted by Linda May View Post
        every icer is different.
        Agreed. And even flares themselves with the same person can be different. My diet flares typically pass within 24 hours but my stress flares have gone on for weeks & weeks.

        I hope it gets better for you! 8 months is a long time to flare!

        "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."


        • #5
          Mine too pass within a day or two though I have been generally worse for a few months at a time which finally seems to be passed. Mostly if I eat something or drink something that makes me flare I'll feel it for 24-48 hours.

          Gelnique for frequency/urgency - works great
          Macrobid after sex
          Prilosec, continuous birth control pills
          synthroid .088mg, mucinex-d, restasis

          Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

          Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

          IC Diet Link:
          AUA 2011 Guidelines to diagnosing and treating IC overview-
          AUA 2011 Guidelines to diagnosing and treating IC PDF:
          Great treatment flowchart on page 19 of the pdf


          • #6
            Mine generally appear about 20 minutes after I eat or drink something that doesn't agree with my bladder, and pass in about 4-6 hours. I know... I'm incredibly lucky. It's made it super easy to figure out what I can and can't eat!
            Symtoms started July 2010.
            Severe pelvic floor pain only.

            2 time PT graduate!
            In medical remission since August 2011; able to eat and drink anything I want currently.

            IC meds:
            200 mg Elmiron in the morning
            100 mg Elmiron @ night
            Macrobid after intercourse

            03/11 07/11 01/12
            If at first you don't succeed: 07/26/2013!


            • #7
              My IC flare returned after the birth of my daughter on 6/30/09. I have been in pain off and on. I have only had a few good weeks out of this almost 2 year period. Before the birth I was in remission for 5-6 years. I am not sure what brought this on other than having the baby, c-section, or the strep b found in the urine after birth. I still don't know why mine happens.. It sucks... I know that much.. I am constantly going to the bathroom. I have not been told that I have PFD.


              • #8
                Mine used to last a couple of days, but now I've been in one for 4 months, so I'm not sure what normal is.

                Hope you feel better.
                ~Star B.

                Interstitial Cystitis
                Chronic Fatigue
                Neurally Mediated Syncopy


                • #9
                  Mine used to last a couple of days for bad pain, but during the past 2 years, they sometimes come for 2-4 months. Then I resort to a strict IC diet, pain pills and heating pads. Then one day, it seems to magically disappear for a few weeks. I treasure those times.


                  • #10
                    You can always tell when it's bad, because that's when I find my way back here. If I"m good, I never think about looking here.