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Flaring with Elmiron

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  • Flaring with Elmiron

    I have been very blessed that Elmiron has worked wonders for me for years. I have small blups here and there with frequency, especially while riding in a car. A few mild flares that feel like a UTI coming on, but they only last a few hours, nothing serious...until now. For about a week now its been on and off. Today, it feels like a big time flare. The pressure and pain and getting worse as the day goes on.

    What I want to know is, is it normal to have a major flare while taking Elmiron?
    This has never happend to me and I've been on it or about 8 years now.

  • #2
    Have you been checked to make sure you don't have a UTI? That's always the first question. The next question is if you've done anything that could have provoked the pelvic muscles: sex, different exercise routine, long car ride, tight clothing, stress?
    Elmiron doesn't address the muscle issues that can come along with IC, so a muscle flare could be the culprit. If so, heat, ice or muscle relaxants might help. Just the first thoughts that came to mind...

    Wishing you relief soon,

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest

    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!


    • #3
      Thanks for the tips Kadi. It lasted the rest of that day and it's been tapering off. Just about gone now. I don't now what triggered it. I didn't do anything out of the ordinary. If/when it happens again I'll try the heating pad before it gets a grip. Thanks again.