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Frustrating and PAINFUL flare

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  • #1

    Frustrating and PAINFUL flare

    I'm new to the network and would love any help I can get! I am 23 years old and have had IC for about a year and a half. I am in the middle of my first real flare. I have been flaring for almost 2 months. I had the hydro-distention and urethral dilation and it didn't help at all. My symptoms are completely managed by baking soda when I'm not in a flare. I take in once in the morning and I'm good. I can even have soda, coffee, and alcohol. I may need an extra dose here or there but it is very much under control. That being said, I'm very resistant to start medications that are primarily used for maintenance. I tried Levsin, Pyridium, Toradol, Aloe Vera, hydrocodone and drinking copious amounts of water. Nothing seems to help. I have extreme cramping after I empty my bladder. It feels like intense menstrual cramps only lower, like someone squeezing my bladder. The cramps are continuous but severe after I void. I have horrible lower back pain that at times radiates on both sides up to my middle back. I can take the burning, when it happens, and keep it under control with baking soda. I cannot seem to do anything about this pain. The only thing that helps me at all is the heating pad. All I need to do is to get out of the flare and I will be fine. Any help would be amazing! Thank you all for listening!
    Jessie
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    • #2
      I suggest you give the diet a try and avoid things like sodas, coffee, and alcohol for a while to see if that helps.

      I hope your flare ends soon.

      Warm welcoming hugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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        • #3
          Sorry, I guess I forgot to mention I had done all that. I haven't had anything to drink other than water for over two months. I eat a completely bland diet. No acidic things, no red sauces, no chocolate, very bland. I am drinking copious amounts of water. : ( Thanks for your help!

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            • #4
              Drinking not enough water or to much can cause my pain to increase.

              Before I knew I had IC an emergency room nurse told me to try drinking more water....I was already drinking a gallon a day ....no wonder I hurt so bad for weeks.

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