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Never endng flare

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  • Never endng flare

    I have been in a constant flare since Feb . A long time ICer and the days of having my pitty parties are becoming more frequent . I am not sure if the disease is getting worse or I am just getting older and finding it hard to cope . I think IC is winning right now and I am just so over myself I do not know what to do any longer . I do not have burning issues just pressure frequency and urgency . I feel as if i my bladder is a giant basketball I lug around all day . I do not know what the new normal is for me . Sorry to be a downer but I just cant get out of my own way tonight

  • #2
    I'm sorry you are in a long flare and that it is making you feel upset. I pray that you will feel comforted too. I understand the basketball feeling... I have that feel too.

    I find that if I take a b & o suppository that nasty feeling will go away somewhat. Its just a thought - I also find that if I try to stretch out the time between voids that can help too - sometimes the more I void, the worse that feeling gets. These are just some thoughts... I hope that is helpful for you.

    Praying for you,

    Current Meds:
    1 Elmiron 100mg 3x a day
    1 Cimetidine 300mg 2x a day
    4 Gabapentin 300mg 3x a day (3600mg)
    1 - 2 Atarax 25mg at bedtime
    1 baclofen 10mg 3x a day as needed
    200mg of Pyridium 3x a day (usually do in cycles - on for a week or two as needed) - I am very careful about this.
    2 belladonna and opium suppositories as needed for pain daily.
    Bladder instillations (Lidocaine, Heparin, & Sodium Bicarbonate)

    I have tried but failed -
    lidocaine instillations, heparin instillations, oxybutynin by mouth also called ditropan, tylenol 3s with coedine, cyclobenzaphrine, Ativan, vesicare, Oxytrol patches worked for 3 to 4 years and then failed, I tried Uracyst and had some success but my urologist felt that it was not successful so we moved on to trying something else. .


    • #3
      Are you on any medications? I find that smooth muscle antispasmodics work pretty well to reduce frequency. The one I take when needed is hyoscyamine.

      I hope you find something to help.

      Warm hugs,
      Stay safe

      Elmiron Eye Disease Information Center -
      Elmiron Eye Disease Fact Sheet (Downloadable) -

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help:


      Diet list:

      AUA Guidelines:

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Anyone who says something is foolproof hasn't met a determined fool


      • #4
        Have you discussed your issues with your Uro? there are solutions that can help. I suggest you see your Uro ASAP.
        <a href=";current=Picture005.jpg" target="_blank"><img src="" border="0" alt="Photobucket" ></a>


        • #5
          thanks for your thoughts and prayers . I have tired many treatments : elmiron Cystoprotek, many many antispasmodics ,elavil, atarax , DMSO and Rescue installations . In 2007 I went back on Elmiron and Cystoprotek after a 5 yr lapse along with DMSO treatments and they helped alot but this year stopped working . So now I am back to rescue installations and sticking with valium, elmiron and cystoprotek along with various pain meds . Honestly I feel like IC is winning and destroying my life at times . I am having trouble finding the positive any more


          • #6
            Try Prelief. I had a UTI a few weeks ago and it left me in a very bad flare, burning, frequency, spasms. I had my Uro check a second urine specimen to see if the antibiotic had killed the bactria. The test showed no signs of infection. I was desperate and started taking Prelief several times a day. After about 3 days, I was out of the flare. I've continued to take the Prelief because I went to their web site to read some amazing reviews. A lot of ICers found 100% relief by daily use of this product. Here's the link so you can read it for yourself: