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  • bubbe1
    replied
    Originally posted by Tuckersmom View Post
    Laurie, I stick to the IC diet, except for decaffeinated coffee. I take the Prelief right before I drink a mug or two of it. I am so thankful that because of Prelief, I am not deprived of this one comforting pleasure.

    My little Tucker is seven years old now, and he is such a joy. He is my first ever little house dog. I never realized what joy and companionship pets can bring to our lives.
    Thanks again, Cathy.

    Pets are amazing. Our 15 year old Zachary,(min. poodle), can make me smile no matter how awful I feel.

    Leave a comment:


  • Tuckersmom
    replied
    Laurie, I stick to the IC diet, except for decaffeinated coffee. I take the Prelief right before I drink a mug or two of it. I am so thankful that because of Prelief, I am not deprived of this one comforting pleasure.

    My little Tucker is seven years old now, and he is such a joy. He is my first ever little house dog. I never realized what joy and companionship pets can bring to our lives.

    Leave a comment:


  • bubbe1
    replied
    Originally posted by Tuckersmom View Post
    Laurie, I have suffered with constipation since I was 17 years old (I'm now 55). Virtually all the meds I am on have constipation as a side-effect. Add the Prelief to that mix and you can about imagine. However, I have been taking Lactulose syrup (prescription), mineral oil (1 tablespoon per day), and generic Miralax (prescription) every day for several years. Now that I have added the Prelief a couple of weeks ago, I am having to take 2 doses of Miralax (generic) daily, but am still only using 1 tablespoon of the mineral oil, and 1 tablespoon of the Lactulose syrup.
    Thanks, Cathy. I think I'll try the Prelief,(I do take it now, but only once in a while if I'm dying to eat something that will cause a problem) and deal with the side effects.

    BTW, I love your little "doglet"!

    Leave a comment:


  • Tuckersmom
    replied
    Laurie, I have suffered with constipation since I was 17 years old (I'm now 55). Virtually all the meds I am on have constipation as a side-effect. Add the Prelief to that mix and you can about imagine. However, I have been taking Lactulose syrup (prescription), mineral oil (1 tablespoon per day), and generic Miralax (prescription) every day for several years. Now that I have added the Prelief a couple of weeks ago, I am having to take 2 doses of Miralax (generic) daily, but am still only using 1 tablespoon of the mineral oil, and 1 tablespoon of the Lactulose syrup.

    Leave a comment:


  • bubbe1
    replied
    flare

    Originally posted by Tuckersmom View Post
    I know this will probably sound too simplistic, but try Prelief. I had a UTI a few weeks ago that left me in an unbearable flare. In desperation, I started taking this product. Within 3 days, I was completely out of the flare. I went to Prelief's web site and after reading some amazing reviews about how other ICers had found complete relief from their symptoms by simply using Prelief several times each day, I have decided to continue to take it. Here's the link to the reviews:

    http://www.akpharma.com/prelief/testimonials.html
    Cathy,
    Did you have any problems with constipation from the Prelief and how many are you taking a day?
    Thanks very much,
    Laurie

    Leave a comment:


  • wizbe
    replied
    Still - flaring but better than it was

    Hello there:-)

    Well. as you all know these past two weeks has been a huge struggle for me. In the past week I have only worked maybe 12 hours of my job and I haven't been able to work even then at my workplace. I've had to work from home most of that time. It has been difficult.

    I have had two uracyst treatments since Tuesday and this has done a bit better and then my doctor prescribed 2mg of diazepam - three times a day as needed. I have seen a difference with this.

    With that being said, I am still in pain and I cannot drive more than 10 - 15 minutes. I wonder how I am going to make a five hour drive in a week from tomorrow??? I am not sure. I am hoping someone may drive me to the airport so that I can go and get the hydrodistension done.

    I hope that the sitting starts to come soon. I just find when I sit - my entire pelvis spasms and then I want to pee, pee, pee.

    But with that being said I am extremely thankful that the pain has gone down. Hopefully, I will be able to work longer hours tomorrow. Taking one day at a time for now.

    Thank you everyone for your help. NOw I must curl up and read a book before let my dog in.

    Thanks once again,
    Wizbe

    Leave a comment:


  • Mothergoose
    replied
    The muscel relaxants can cause retention too?

    Leave a comment:


  • wizbe
    replied
    Hi Mothergoose!

    The retention did get better. I stopped all antispasmodics for one day so that it would calm down. It did. I think the retention was actually caused by all the narcotics that the ER had given me - morphine, hydromorphone, demerol, etc. I am really watching the medication that I am taking at the moment so that this calms down. When I sit, my pelvic muscles just spasm and my bladder goes nuts - so that is the part that I am trying to work out now. I went to the doctor today and had another instillation done as well as I got a script for muscle relaxants. We'll see how that works. I'm still not back to work per say - I have only worked maybe 12 hours this week in total. I haven't been able to and I refuse to allow this flare to continue by trying to do things anyway. I am learning that when my bladder says OUCH OUCH, then I better rest it. So that's what I have been trying to do!

    I hope your infection clears up soon Mothergoose! That is brutal. Know of my prayers for you. About the root canal - make sure you see someone about that soon. It needs to be checked out - tooth infections can cause a lot of other problems if they are dealt with.

    Blessings,
    Wizbe

    Leave a comment:


  • Mothergoose
    replied
    Did your instil help with your retention?

    Sometimes I am told I am in retention because the pain is so bad from IC pain either, from a uti or IC flare, that my bladder can't relax to pee. Not my onle retention problem but it makes it worse for me.

    My Dr. dosen't do instils, he is afraid of infections ( I am really prone to infections and I have a really hard time getting rid of them), but we got to the same uro and if the uro told him to try it he would.

    So just wondering if the instil worked for the retention and if your retention was as still as bad when you finally got to go see your own Dr. and what did he think about it? My next app with the uro is Sept 7th, my gp could call him and get the instructions of what he would want the instil to be.

    I hope you told him how the ER treated you in both places, and all that happened to you while he was away.

    I have been praying things are going better for you these last few days.

    I was haveing lots of problems with retention, I went into total retention 2x's in the last month.

    My retention is doing better than it has in a long time. Just for a week or so, but the last few days IC symptoms have decided to bother me and they have been pretty good for a few months. I guess I can't get away from both at the same time.

    I don't know if it was from the total retenion and acting like a hydro for me as eash time I had a very lg volume of urine, over 60 oc or 3 liters.

    Or if it is all the ab's I have been on in the last while, I took 10 days of Cipro, then off a week and 14 days of cefiximene, and then 13 days of Levo. I know this sounds like a lot of Ab's and I don't like taking that many, but I have had a stuborn infection, and now my symptoms have now finally improved. This is often the case with me, I don't just take these on my own I have beening see my dr weekly and takling to him on the phone at least once a week. Also keeping track of temp and voiding diary as per his request.

    The previous month I did have a gap of a couple of weeks between I am not too sure so maybe my timing is off a bit. I was on an Ab's for 21 days for a tooth infection, but not an ab's that helps the bladder type of infection, but taking all of these,it did clear up a throat and ear infection I had been battling for months, not a bad enough of infection to be prescribed ab's, but a raw throat and ear ache just the same. Maybe it all was from the infected tooth, whole knows, my throat amd ear feel better too after taking the ab's for the tooth.

    I had a root cannel on the tooth 6 weeks ago and it is still sore so I thinkIi have to go see a dental specialist if it doesn't settle down by Aug. It is not really sore now, I notice it everytime I bite down on it so something is not right. My dentist is also thinking it my be aother tooth as well. So we will see.

    Anyways for me Ab's do help my bladder I assume that it must in part be from the anti inflamatory effect.

    Have a good day MG

    Leave a comment:


  • wizbe
    replied
    doctor today

    So I went to the doctor today - my own doctor. He was very helpful. He did an instill - it worked for a while but I'm still pretty tender, sore, can't sit down proper... however, hopefully it will get better. I know it is... going to keep praying.

    Thanks everyone for your help. I'll keep you updated!
    Wizbe

    Leave a comment:


  • Mothergoose
    replied
    I am sorry I looked for the 2 page article I found to medical professionals explaining IC, but I could not find it so I can't send you the link.

    Sorry MG

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  • Mothergoose
    replied
    Pyridium, Elavil, oxytrol patch, gravol

    All of these meds can make my retention worse, sometimes I can take them once in a while and at low doses. Have you increased the amount you are taking for this flare maybe they are causing the retention.

    Sometimes thing I take will be fine then all of a sudden start causing me retention. My experience is any med that increases my retention, if I stop it it takes about 3 days before I start to pee normal for me again.

    If you can't pee you need to go back to the ER and have your bladder drained, this may actually give you some much needed relief from the pain.

    I think and this is just my opinion, if you felt something, drop this needs to be checked out, I am not sure the ER will do this but maybe now that you can't pee they will, since it could be causing the problem, total retention is an emergency.

    Is your own GP back this week, if so go to his office and say you need to be seen right away, if you are told he is too busy just stand your ground and say you are not leaving till you get to talk to him for a few mins.

    If he calls the ER and explains whats happening, they should treat you better, maybe they treated you that way because they all seem to be so afraid of people who they consider to be drug seekers, which you are not, but they maybe figure this because for what ever reason the pain meds are not working for you, and you need more than a normal situation would call for.

    Also they don't understand that with IC, it can change the reaction you get from medications.

    You can go to the IC Association site and print out a 2 page IC information sheet for medical care providers, I will go look for it for you and send you the link so you can print it out, it gives the basics for nurses and Dr's about IC.

    In any event you need to seek some medical attention today, I too live in a small town and I know they like people to go in early if they need help so uro offices etc. are still open in the bigger centers, and they can still do blood work etc.

    Please go to your Dr. or the ER something is not right, sooner you figure it out the better.

    Good luck MG

    Leave a comment:


  • ICNDonna
    replied
    Have you tried one of the medications, mostly prescribed for men, which help relax those muscles so you can urinate? The ones I immediately think of are cardura, hytrin, and flomax.

    I hope you feel better soon.

    Donna

    Leave a comment:


  • wizbe
    replied
    Not going too well. . . what should my next step be?

    Okay... so I did urinate two times today. I really feel like I need to pee really bad and I go to the washroom and nothing will come out. I am in a lot of pain because of this. I do not want to go back to that hospital because of the way I was treated the other night... but this is ridiculous. I have never experienced anything like these - I just people would understand.

    It would be nice to only pee two times a day if there was no pain involved. If there was no pain involved and I could just go and pee, I would be extremely happy - it would be like a miracle considering I always use the washroom at least 20 times a day... but that's not the way it is - there is lots of pain involved, many urges to urinate, many times sitting on the toilet but no luck... I don't know what to do. . .

    I am so embarassed to go back there - although I know I shouldn't be. But what do I do? What's my next plan of action?

    I have tried not thinking about the pain... I've journalled, I've prayed, I've read books, I've watched movies, and I've come online... as I lie down with knees bent (that's the only way I feel somewhat comfortable). This is craziness... crazy retention - I have never experienced anything like this.

    I must try again - without straining... I hope I will be able to sleep tonight - but with this need to use the washroom and not be able to, it feels somewhat slim but I must remain positive! Just needing some advice of what my next steps should be.

    Leave a comment:


  • Tuckersmom
    replied
    Whenver I have trouble urinating --- especially in a public restroom --- I put my hands over my ears to block out distractions and try to relax. Some people put the water in the bathroom sink running, and that helps them go. I have read on here that when some people can't go, they relax in a hot bath and just urinate in the water. Maybe even try a shower. With the warm water raining over you, it might help you to go. Also, if you have a dog or a cat that you could pet while on the toilet, that may distract and relax you enough, so that you could urinate. (My little dog loves to stand at my feet and be petted while I'm sitting on the loo). Hope you get some relief soon --- and yes, prayer is the best thing you can do. We acknowledge our need and ask for His help. There is nothing too hard for the Lord.

    Leave a comment:

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