Hello all, I haven't been on here in quite some time because I have been in (what I consider to be) a remission for I would say the past 6 months. I was practically pain free. I could go for up to 4 hours during the day without feeling the "urge/pain" to use the bathroom. I could sleep about 4-5 hours (with the help of vaginal Ativan/baclofen/lidocaine combo), get up to use the bathroom, then maybe sleep for another hour, get up once more to use the bathroom, and then sleep a tiny bit more. Live was getting better and most days, I forgot I had IC completely. I could eat whatever I want and was not in pain. Aside from doing instills, I felt like the girl I used to be before I got sick. It was absolutely wonderful. I was really starting to live life again. I want to lose some weight, and last Tuesday, I was feeling ambitious and motivated so I did 20 minutes on the treadmill and lifted a couple of weights. The IC is now back full force. *This one 30 minute session at the gym ruined me.... It would appear that, I myself, have caused the end of my remission and am devastated beyond words.* It is almost like I flipped an "ON" switch, and everything has come back. The urgency, frequency, unrelenting nocturia, agonizing pain, everything has returned. The Dr. increased the Ativan in my suppositories to try to "nip this in the bud," but it is not working. I feel the way I did at the height of my pain. I truly thought (probably foolishly) that I could live a normal, pain free life and was doing it...but now I have ruined it and the guilt is overtaking me. Does anyone have any suggestions as to what I can do to get back into remission? Is it too late for me to get back into the remission I was in?
I would appreciate any and all advice. I am doing an instill a day now (lidocaine, heparin, sod bicarb, sterile water and 2 Elmiron capsules) and using the heating pad, and using the suppositories at night. Last night I even used 2 suppositories, and it didn't help much. It is now day 6 of this torture and I can't take it. Thank you so very much for listening.
I would appreciate any and all advice. I am doing an instill a day now (lidocaine, heparin, sod bicarb, sterile water and 2 Elmiron capsules) and using the heating pad, and using the suppositories at night. Last night I even used 2 suppositories, and it didn't help much. It is now day 6 of this torture and I can't take it. Thank you so very much for listening.
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