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Ever since I started experiencing bladder symptoms, they've always been limited to severe frequency/urgency (which is QUITE enough, thankyou 
) without pain. The Desmopressin has been helping me to sleep 4-5 hours at a time at night without having to get up, which has been a godsend really. There are still nights when I have flares, but those have gotten to be fewer. I still sleep with an ice cube wrapped in a towel between my legs every night.
However, during the last few days right at the very end of every time I urinate, it feels like my bladder is about to fall out. It feels like my bladder/urethra are lined in sandpaper, and the burning lasts for about 20 minutes at the most. This happens even with my steady flow of Pyridium and using Lidocaine in my urethra. I've never had pain as a part of my urinary issues, even when I've had a UTI, so this is brand new. Drinking baking soda/water and milk seems to help a little bit, but only until it's passed though my system.
I'm really scared that this is the beginning of a new, awful, long-term symptom for me. What could've caused this sandpaper feeling? Nothing in my diet or meds has changed and it only started a few days ago.
I've been afraid that I'm just biding my time until the pain of IC starts too, in addition to my other symptoms. I'm trying not to let myself believe this too much, but these new symptoms are scary.
) without pain. The Desmopressin has been helping me to sleep 4-5 hours at a time at night without having to get up, which has been a godsend really. There are still nights when I have flares, but those have gotten to be fewer. I still sleep with an ice cube wrapped in a towel between my legs every night.However, during the last few days right at the very end of every time I urinate, it feels like my bladder is about to fall out. It feels like my bladder/urethra are lined in sandpaper, and the burning lasts for about 20 minutes at the most. This happens even with my steady flow of Pyridium and using Lidocaine in my urethra. I've never had pain as a part of my urinary issues, even when I've had a UTI, so this is brand new. Drinking baking soda/water and milk seems to help a little bit, but only until it's passed though my system.
I'm really scared that this is the beginning of a new, awful, long-term symptom for me. What could've caused this sandpaper feeling? Nothing in my diet or meds has changed and it only started a few days ago.
I've been afraid that I'm just biding my time until the pain of IC starts too, in addition to my other symptoms. I'm trying not to let myself believe this too much, but these new symptoms are scary.
I've found answers...so can you...keep the hope.
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