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  • Indwelling catheter for coping with IC??

    Hi,

    I cannot stand having to pee every 10-20 minutes!! It makes interviewing for jobs horrible/awkward, work itself completely debilitating, outings inconvenient, and social situations completely warped.

    I have tried using thick pads for incontinence but I could not relax my muscles enough to allow myself to pee in them. I'm not sure if it was because I felt too strange doing this, or due to intense PFD. Probably PFD, because I have tried several times to void in a pad and could not do it.

    I am toying with the idea of wearing an indwelling catheter with a pouch attached to my leg under my clothes so that I can function better and be able to hold down a job easier with my extreme frequency. My frequency is not just bad in a flaire; it's been like this constantly for the past year and 5 months. Has anyone tried this before? Is it safe? I'm afraid that if my bladder gets used to never having urine in it, it won't be able to hold any urine at all if I stopped using the indwelling cathater. I wouldn't want to use it when I'm not at work, because I'd want to see if the meds are actually helping my bladder become somewhat functioning again.

    Thanks,
    Lisa

  • #2
    I had a foley catheter with leg bag for a week after a surgery and was extremely relieved when it came out. The catheter itself can be irritating unless you are just laying around --- plus the band holding the leg bag wanted to slide down my leg. I just stayed at home and rested for that week.

    Have you tried any of the smooth muscle antispasmodics. The one I take is hyoscyamine. It definitely helps me with spasm-related frequency.

    Sending healing thoughts,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      I'd love to know how the hyoscyamine works. Is this something you take when a flare hits. Does it calm down the frequency?

      I too have been considering a pad of some sort for driving. When I heard about the catheter that was even more appealing. But I can imagine, as Donna said, it's not comfortable and I'd be trading one discomfort for another.

      I'm looking forward to the answers here so that I too can drive and engage in job meetings in a more comfortable manner.
      Frances

      Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

      Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

      Other conditions: Migraines, allergies, mild IBS.


      "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

      Comment


      • #4
        The hyoscyamine I take is Levsin SL -- if I'm having pain, I dissolve one or two under my tongue and it definitely helps. It's not horribly expensive, but not one of the cheaper drugs.

        I forgot to mention in my response that catheters increase the potential for infections.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          Thanks Donna. I want to ask the doctor about that.
          Frances

          Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

          Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

          Other conditions: Migraines, allergies, mild IBS.


          "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

          Comment


          • #6
            I have never heard of using Levsin for the pain. I'm going to look that up. About pads, I have days that are literally every 5 mins and I bought pads. I tried a few times becuz I have to be gone 45 to take and pick up kids from school. Its really uncomfortable and embarrassing peeing in ur pants. I find if I go 3 times its soaks thru to my clothes. So I deal with holding it and the pain and urgency that goes along with it.

            Comment


            • #7
              Levsin stops the spasms, which are what causes my pain.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #8
                Oh Ok Thanks Donna.

                Comment


                • #9
                  Hey poodle, I'd love to have an update, what did you and the doc decide on?
                  21 years old
                  dx: severe OAB, mild/moderate IC, depression, PTSD, agoraphobia, chronic fatigue, IBS, peripheral neuropathy

                  ♥ looking for a way or medication to help stop spasms ♥

                  Comment

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