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Help! I need to rant about this terrible flare have been having for the last couple of weeks. I don't get frequency as bad as some people on here I only go about 20 times a day and maybe twice at night. However I have terrible urethra burning and awful pelvic pain. I don't want to leave my couch the pain is so bad and that's with pain killers. Luckily I have a great doctor who I keep calling and keeps seeing me and helping me. (I see him on Tuesday about the pain and burning). I just don't know what to do with myself. 
my friends want to go to a movie tonight but I can't sit in a theater for two hours in this much pain. I hate taking these pain killers around the clock but I feel as if I have no choice because I have to keep up with my kids. Luckily I'm a stay at home mom but its still exhausting. The laproscopy I had and childbirth pain is nothing compared to the pain I'm having lately. I swear it's a 9 and I usually have a high pain tolerance. The pain gets ten times worse if I have to go to the bathroom and hurts right after I void and then lessen a bit until the next time. The pain is in very specific places so I'm wondering if maybe I have hunners ulcers in those areas. I just don't know what to do with myself, I feel like telling the doctor put in a suprapubic catheter because I can't take the burning anymore!! I feel as if this disease is ruining my life at times!!
Does anyone else have similiar flares like this? Thanks for letting me rant and I'm so glad this sight is here, I'm not sure what I would do if something like this wasn't here for people with IC.
Jessica
Take: elmiron 2twice a day
Cymbalta once a day
Prosed ds as needed
Lydocaine gel for sex
Tramadol as needed
Oxycodone as needed
Orthro Evra Patch continuously
Diagnosed with severe IC April 2011
Suffered for 8 years without a diagnoses
I'm 23 and have always had issues but when I was 16 things got much worse. I saw urologists, pediatricians, and gynecologists and nobody had any answers it was either in my head or an infection. Finally found a wonderful doctor who diagnosed me with IC
my friends want to go to a movie tonight but I can't sit in a theater for two hours in this much pain. I hate taking these pain killers around the clock but I feel as if I have no choice because I have to keep up with my kids. Luckily I'm a stay at home mom but its still exhausting. The laproscopy I had and childbirth pain is nothing compared to the pain I'm having lately. I swear it's a 9 and I usually have a high pain tolerance. The pain gets ten times worse if I have to go to the bathroom and hurts right after I void and then lessen a bit until the next time. The pain is in very specific places so I'm wondering if maybe I have hunners ulcers in those areas. I just don't know what to do with myself, I feel like telling the doctor put in a suprapubic catheter because I can't take the burning anymore!! I feel as if this disease is ruining my life at times!!Does anyone else have similiar flares like this? Thanks for letting me rant and I'm so glad this sight is here, I'm not sure what I would do if something like this wasn't here for people with IC.
Jessica
Take: elmiron 2twice a day
Cymbalta once a day
Prosed ds as needed
Lydocaine gel for sex
Tramadol as needed
Oxycodone as needed
Orthro Evra Patch continuously
Diagnosed with severe IC April 2011
Suffered for 8 years without a diagnoses
I'm 23 and have always had issues but when I was 16 things got much worse. I saw urologists, pediatricians, and gynecologists and nobody had any answers it was either in my head or an infection. Finally found a wonderful doctor who diagnosed me with IC
Jessica, I know exactly how you feel. I'm currently in a flare that's almost 2 weeks old myself. About all I can tell you is keep taking you meds and make sure you are drinking enough water top keep your urine diluted and hopefully your bladder will calm down soon. Are you sticking to the IC diet? It helps me most of the time but somtimes I flare regardless. That's whats happening to me right now. I hope you get to feeling better real soon.
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