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First day back at Uni and I had to leave

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  • #1

    First day back at Uni and I had to leave

    It's been on-going since Thursday. I really don't want to miss next week. I had some pancake mix with no extra ingredients added, but there were grains in it that weren't on the IC list at all.

    It's also about time for my hormonal flare, but usually it's just burning and not these god-awful spasms.


    Any tips for handling spasms?? Baths with salts just drain me and make me nauseous. The water has to be super hot for any effect. Ice-pack and heating pack make it bearable, but I can't go to school with that. Ditropan isn't working for this! Usually ditropan solves everything for me. My mom's Soma kind of helps, but not enough to let me leave the house.

    Should I ask my doctor for something stronger for these freak flares?? What do you suggest?? Right now I'm on Utira-C and ditropan.
    • 27 year old student
    • Had symptoms since I was 5
    • Been on forums since '07, knew I had this since then, received mild treatment without true diagnosis due to anxiety. Diagnosed by symptoms on 4/08/11.
    • Had first horrible flare in 07, bad doctors, had to research IC myself to clue in onto what it was. After following the diet I went into remission.
    • Big flare in 09 due to an untreated bladder infection. Went back into remission in 2012.
    • Symptoms returned 4/1/15. All of my remissions have ended in April-May or September-October. It sounds like a connection to seasonal allergies to me..


    Currently: Continuous Birth Control, vaginal valium (10/6/11), Elmiron (4/08/11), UTA (4/08/11), continuous Trimethoprim for infections (10/6/11), Heating pad, Benedryl, harsh diet

    What I know works: Benedryl, diet, birth control, UTA, valium, ditropan, soma

    What didn't work: Elavil, vistaril (12/22)
    Tags: None
    • #2
      I take hyoscyamine for bladder spasms when needed. The one have is Levsin SL --- when I feel spasms, dissolving one under the tongue every four to six hours will help me within a day or two.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

        Comment

        • #3
          Thanks Donna. Is it easy to get a doctor to prescribe it? My urologist just suggested vaginal valium so I guess I'll go with that first, but if that doesn't work then I'll aim for hyoscyamine.
          • 27 year old student
          • Had symptoms since I was 5
          • Been on forums since '07, knew I had this since then, received mild treatment without true diagnosis due to anxiety. Diagnosed by symptoms on 4/08/11.
          • Had first horrible flare in 07, bad doctors, had to research IC myself to clue in onto what it was. After following the diet I went into remission.
          • Big flare in 09 due to an untreated bladder infection. Went back into remission in 2012.
          • Symptoms returned 4/1/15. All of my remissions have ended in April-May or September-October. It sounds like a connection to seasonal allergies to me..


          Currently: Continuous Birth Control, vaginal valium (10/6/11), Elmiron (4/08/11), UTA (4/08/11), continuous Trimethoprim for infections (10/6/11), Heating pad, Benedryl, harsh diet

          What I know works: Benedryl, diet, birth control, UTA, valium, ditropan, soma

          What didn't work: Elavil, vistaril (12/22)

            Comment

            • #4
              My uro has prescribed it without hesitation. It's kind of expensive but well worth it.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.               [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

                Comment

                • #5
                  Hm it appears that Utira-C (the urine color changing stuff) already has hyoscyamine in it with some other stuff. Would you say that hyoscyamine by itself works better?

                  Does it change the color of urine?
                  • 27 year old student
                  • Had symptoms since I was 5
                  • Been on forums since '07, knew I had this since then, received mild treatment without true diagnosis due to anxiety. Diagnosed by symptoms on 4/08/11.
                  • Had first horrible flare in 07, bad doctors, had to research IC myself to clue in onto what it was. After following the diet I went into remission.
                  • Big flare in 09 due to an untreated bladder infection. Went back into remission in 2012.
                  • Symptoms returned 4/1/15. All of my remissions have ended in April-May or September-October. It sounds like a connection to seasonal allergies to me..


                  Currently: Continuous Birth Control, vaginal valium (10/6/11), Elmiron (4/08/11), UTA (4/08/11), continuous Trimethoprim for infections (10/6/11), Heating pad, Benedryl, harsh diet

                  What I know works: Benedryl, diet, birth control, UTA, valium, ditropan, soma

                  What didn't work: Elavil, vistaril (12/22)

                    Comment

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