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    ICNDonna
    ICN Staff

  • ICNDonna
    replied
    Frances: Our kidneys are constantly releasing small amounts of urine into the bladder. That's why you can manage to keep squeezing a tiny bit out. However, straining like you mention will almost always increase pain. Sometimes sitting on a heat pad will help with spasms.

    And please do get your prescriptions filled and begin taking them.

    Sending gentle hugs,
    Donna

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  • Toto
    ICN Member

  • Toto
    replied
    Thanks Andrea. Your post actually helped me a lot. Your situation was FAR worse than mine. Knock on wood... I've had a couple good days. It's like a miracle has happened when a couple good days go by! And I've decided to start taking meds for the condition without fear or guilt.

    Hope you are getting better by the way!

    Leave a comment:

  • nineteenwinters
    No longer active

  • nineteenwinters
    replied
    I SO relate to this. You are me a month ago. It was what ultimately made me go to the ER. The clinic I go to is awesome but she couldn't give me any meds because without scans (which they didn't offer) she didn't know what to give me.

    Then I met with my first Uro (really sweet, caring man) but I don't think he understood the severity of not being able to sleep for days. He said, "Here's some Vesicare and Flomax samples; I'll schedule you for bladder ultrasound and a cysto." The only problem was it was a month away! I would not have made it a month. By that time I was so tired that I could barely walk even to the bathroom. I tried diapers to see if I just peed in them would I get any sleep. Sadly that didn't work. I can't pee lying down.

    Then 2 days after the Uro appointment I was in bed getting set up for work (I work from home). It was at that moment I knew I had get better. My mom got off work to take me and she said, "If they won't give you anything to feel better we WILL be coming back again and again until they do." Bless her. She's always supported me. She took so much time off work to shuttle me around to various medical places and she would go in with me to the exam rooms. At that point I couldn't speak correctly from the lack of sleep and I couldn't remember anything these doctors were telling me so she kept track for me. But there are sometimes moments when I realize as supportive as she is of me she'll never fully understand because she doesn't have IC.

    My bladder didn't feel like it was emptying fully either. But oddly every ultrasound I have had shows me emptying fully. With the medication (and when I am not flaring) that feeling has gone away.

    *hugs* I am glad you're finally getting some medication; it made a world of difference to me. The Xanax I got helps to calm my bladder in social situations (I have social anxiety disorder) and/or places where it's really cold which makes me have to go a lot. And just getting rid of the spasms with Vesicare totally changed my life. I went from going every 5 minutes to going an hour. And at night instead of needing to go every 15 minutes I was able to go 3 hours. Those 3 hours saved my life. There IS hope. It might not feel like it yet for you but it WILL get better.
    ICNDonna
    ICN Staff
    Last edited by ICNDonna; 08-29-2011, 02:21 AM.

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  • Toto
    ICN Member

  • Toto
    started a topic Can't sleep...ugh!

    Can't sleep...ugh!

    Here I am posting here and not sleeping... WHY? Because I have to pee every five minutes. I actually got so desperate I sat on the toilet and continued peeing for about 10 min. I'd push and then be finished. Then if I tried hard I could push more... and so on. It's as though my bladder won't empty. My pee is white and I stopped drinking at 9pm. What the heck!!!! This is the third time I think that this has happened to me this week. Have no idea what is going on!

    Just want to vent because I have no one to tell these complaints too. My mom sympathizes but doesn't get it entirely. This stinks...

    The other night I took a Klonopin at 2am out of desperation. I just took another now hoping to God that it stops the flare. Or else I'll be up all night!

    This was the push I needed to go to get the scripts filled tomorrow. This flare and the other one a few nights ago, literally hit me out of the blue. Bamn!

    The PT and Gabapentin will take a long time to work. So bummed but trying not to lose hope.
    ICNDonna
    ICN Staff
    Last edited by ICNDonna; 08-29-2011, 02:18 AM.
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