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My first terrible flare in years -- what to do?

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  • #1

    My first terrible flare in years -- what to do?

    Hi,

    I'd like to give some backstory. My husband and I are trying to get pregnant and are going on fertility treatments in a couple of weeks. I've been taking Enablex 7.5mg for 3 years and it controls my pain very well -- so well that my bladder feels normal. I also take Depakote for migraines, but my neurologist told me that if I'm trying for a pregnancy I had to go off Depakote right away. I weaned myself completely off Depakote and then out of nowhere my frequency and pain came back with a vengance. I upped my Enablex to 15mg but can't tolerate the stomach cramps this dosage gives me.

    I'm seeing my urologist next week to figure out what's going on and come up with other treatment options. But I'm puzzled -- can Depakote really help IC symptoms? Until I see my Dr. I'm going to take a dose of Enablex in between 7.5mg and 15mg.

    Any feedback would be a much appreciated. TIA!
    Current Treatments: Enablex 7.5/day

    Previously Treatments: Elmiron 300mg/day, DMSO instillations, Elavil 12.5mg/night, Detrol LA
    4mg/day

    Other ailments:
    Migraines: Imitrex, Treximet
    Anxiety/Depression: Klonopin 3mg/day
    Mood Swings: Seroquel 300mg/night
    Tags: None
    • #2
      I did a quick search on depakote and it sounds like it does help relax some of the nerves so it might, as a side benefit, help with IC symptoms. I think it would be a good idea to discuss this with your doctor.


      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

        Comment

        • #3
          Thanks very much for looking this up, Donna. I had no idea that Depakote had this side benefit. I'll discuss this with my Dr. next week.

          I'm going to go back on Depakote today until the fertility treatments start in a couple weeks.
          Current Treatments: Enablex 7.5/day

          Previously Treatments: Elmiron 300mg/day, DMSO instillations, Elavil 12.5mg/night, Detrol LA
          4mg/day

          Other ailments:
          Migraines: Imitrex, Treximet
          Anxiety/Depression: Klonopin 3mg/day
          Mood Swings: Seroquel 300mg/night

            Comment

            • #4
              It doesn't surprise me that the Depakote has an effect on IC. I notice my IC symptoms coincide very often with my migraines.

              I do hope you feel well soon. Good luck with everything.
              Frances

              Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

              Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

              Other conditions: Migraines, allergies, mild IBS.

              "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

                Comment

                • #5
                  Hi Toto,

                  I feel for you since I suffer from migraines and IC. It's interesting that both conditions started at the same time -- in summer 1998. Fortunately when I get a migraine I take Treximet. Have you tried Treximet? It's a miracle migraine killer with no side effects to IC or anything else.
                  Current Treatments: Enablex 7.5/day

                  Previously Treatments: Elmiron 300mg/day, DMSO instillations, Elavil 12.5mg/night, Detrol LA
                  4mg/day

                  Other ailments:
                  Migraines: Imitrex, Treximet
                  Anxiety/Depression: Klonopin 3mg/day
                  Mood Swings: Seroquel 300mg/night

                    Comment

                    • #6
                      I take Relpax for my migraines and it doesnt bother my bladder. It does make me urinate a little more but no pain or burning.

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