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if you've read my story you know I haven't officially been diagnosed yet. But my gyno is 99% sure I have IC and I feel absolutely horrible. I have felt so bad for 2 weeks now. I was started back on Emilron and the diet 2 weeks ago. I've had 3 rescue solutions in the last week and plan to go in tomorrow for my 4th. I was given Tyelnol 3 enough to last 3 days (although my urology appt. is still a week away) with no refills so I'm almost out of those and ibuprofen does nothing with this severe pain. This flare is more horrible than the one that made them think and test for it last yr. This is really depressing me and I just want some relief. Sorry I guess I just needed a place to vent and talk.
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When you go in tomorrow, I suggest you ask for additional pain meds to last until your uro appointment. Ibuprofen is a problem for many ICers so you might want to be cautious using it.
DonnaStay safe
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
Yeah I have heard several of you guys tell me this. Since it doesn't touch the pain I don't know why I even bother.Comment
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I'm so sorry you are feeling bad. I hope you get some kind of relief soon.Frances
Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.
Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)
Other conditions: Migraines, allergies, mild IBS.
"If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)Comment
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I used cold packs for below and hot pad on tummy area. That really helps on a bad day. Have you tried this?-Pammylynn Rose
Wishing everyone a pain free bladder day!
Painful symptoms start in May 2011
Diagnosed with IC in Aug 2011
MEDICATIONS
Elmiron
Axert (only for rare migraines)
Strict IC diet
Gluten/dairy/egg free diet
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btw- not sure if you now this but for some ppl ibuprofen makes it worse.. I know that totally stinks and maybe not the case for you. I only take a little. Mostly I do the baking soda with water because that works wayyyy better!-Pammylynn Rose
Wishing everyone a pain free bladder day!
Painful symptoms start in May 2011
Diagnosed with IC in Aug 2011
MEDICATIONS
Elmiron
Axert (only for rare migraines)
Strict IC diet
Gluten/dairy/egg free diet
Comment
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ops sorry you already addressed the ibuprophen, sorry.Originally posted by Pammylynn8 View Post-Pammylynn Rose
Wishing everyone a pain free bladder day!
Painful symptoms start in May 2011
Diagnosed with IC in Aug 2011
MEDICATIONS
Elmiron
Axert (only for rare migraines)
Strict IC diet
Gluten/dairy/egg free diet
Comment
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I'm so sorry you're suffering like this. Have you considered seeing a urologist who is familiar with treating IC? I too went to my gyno when the symptoms first hit and he treated it like a UTI. When the pain continued he told me to see a urologist.
In my opinion you need to be on drugs specifically for IC. Elmiron works for many -- it worked for me for years. Another effective drug is Enablex which I'm on now. Enablex combined with Depakote works well for me. I'm almost symptom free on this drug cocktail. But every IC patient is different in terms of what works and what doesn't.
I urge you to see a urologist and try specific IC meds in order to find relief. Good luck and keep us posted!Current Treatments: Enablex 7.5/day
Previously Treatments: Elmiron 300mg/day, DMSO instillations, Elavil 12.5mg/night, Detrol LA
4mg/day
Other ailments:
Migraines: Imitrex, Treximet
Anxiety/Depression: Klonopin 3mg/day
Mood Swings: Seroquel 300mg/nightComment
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Melissa I am seeing a IC urologist on the 8th. My gyno is just trying to keep me comfy through the flare and until the appt. He's been so kind! I always use heating pads. I've probably fried my insides.Comment
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