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  • the last hr

    I have screamed and cried in the worst pain ever. My flare has been going on for almost 3 weeks now. Plus I have pee'd 4 times in the last hr. is this normal?

  • #2
    Sounds like a bad flare, but have you been tested for UTI???

    When I get to that point where I am crying and consumed with my pain, that means it's time to start doing something to relax and distract. Hot bath while listening to my favorite music on my ipod, walk the dog, call a friend who I know will make me laugh, get out into the garden, give myself a pedicure, if I've been on the internet too much I may need to get off the computer, if I haven't been on and I'm feeling isolated, then maybe it is time to reach out for support as you are doing...ANYTHING to stop my mind from where it is going.

    Peeing 4 times an hour is very normal for an IC flare. Peeing 10 times an hour is normal during a flare!

    Sorry you're hurting.

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    • #3
      To me with all of the pain you have been reporting, you really need to go to ER and DEMAND they do more tests b/c it sounds like something serious is going on. My mom had kidney disease really bad and it took going back to dr. er for someone to finally diagnosis her with a distended kidney and a contricted ureter which was causing her excruicating pain.. it sounds like you have someone more along those lines?? Maybe not the same as my mom but if you are this in this much pain you need to demand answers... good luck
      -Pammylynn Rose
      Wishing everyone a pain free bladder day!


      Painful symptoms start in May 2011
      Diagnosed with IC in Aug 2011

      MEDICATIONS
      Elmiron
      Axert (only for rare migraines)
      Strict IC diet
      Gluten/dairy/egg free diet


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      • #4
        I'm not too familiar with your history. Pammylynn may be right. If this is something way above and beyond what you are used to feeling, it may definitely need checking out. If there is someting else going on besides an IC flare, you need to know.
        I'm so sorry for your pain, I have been there (((hugs)))

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        • #5
          I have to agree that a trip to ER is a good idea. Please let us know how you are tomorrow.


          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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          • #6
            This morning I feel okay. Sore but okay. Lets see how I feel after work or after I eat. I'm doing a strict IC diet although something has to be triggering such pain. I had an ultrasound done less than 2 weeks ago and it showed normal uterer tubes and kidney's. I also tested negative for a uti less than 2 weeks ago and the culture was negative. I do go to the urologist tomorrow!!! I'm so grateful.

            I'm so thankful for all the support I have found here that you guys give me. It's nice to know when I'm not alone. And yes I was on the verge of the er. My husband even asked if we should go. Our ER is let's say not very competent. So if I can save myself another bill then I will by distracting myself from this pain. Thank you all for being so informative.

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