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I just want to cry..
I am not sure I can do this anymore. The pain is so horrible. And there is nothing I can do. I take my meds.. I use heat.. I finally got the cath thing down so I am atleast able to drain my bladder which btw even when empty feels totally FULL.. I want to crawl in bed and just cry.. I laid there last night trying to get comfortable enough to get some sleep.. Finally around 3:50am I finally got to sleep.. The pain is awful.. and I cant seem to find relief around any corner. I go to the ER and they tell me there is NOTHING they will or can do for me because I am on enough stuff to kill a horse. I just need this pain to go away. I am seriously considering letting them just remove my bladder and be done with it.. I just dont know anymore. My mom keeps saying think positive.. positive thinking will help.. but I dont think she really realizes how hard that is when you are in so much pain you are ready to just reach up inside of you and rip your bladder right out of your body. I am going to be going back to my urologist this week.. but first I am gonna go to my doc that is handling all my pain management and see what his advice is. Maybe they will admit me just to get me comfortable.. I can only pray they will because I just dont know how much longer I can handle this.
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With all the pain in the world comes love and hope.. For someday they will find the cures for all the pain we suffer and just take it all away and we can again be pain free and enjoy life..
and remember those who suffer the same pains and sorrows are usually the ones with the most understanding hearts
Hugs and Loves
Melinda
Multiple health issues.. IC , Type 2 diabetic, Knee problems (7 surgeries), Fibromyalgia, Cystoscope with botox injections done on 11/17/11, Hystorectomy in 2005, Asthma, Migraines, High BP, High colestoral, pseudotumor cerebri and Depression.. -
It's good that you'll be seeing your doctors very soon.
I hope they have some answers for you.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
Melinda, I'm sorry you're still in such pain.
Prayers that you'll get the help you need soon.
Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure.
I've found answers...so can you...keep the hope.
11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
8/2010 Surg gallbladder
TREATMENTS (updated 4/15)
IC Diet since 8/2009 (Able to vary 4/15)
Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
*DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret
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