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Flare has lasted months. Everyday is a struggle

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  • Flare has lasted months. Everyday is a struggle

    Hi! I am new here and just wanted to tell a group of people that understand what I am going through. I am hoping it might help me cope a little better.

    I have been having a flare up for months. Everyday I wake up and pee and am in pain. It feels like my bladder is constantly on fire. Does anyone else have this symptom with IC?

    I feel hopeless. My boyfriend does not understand and I feel like a failure of a girlfriend because I never want to have sex because it burns.

    It makes me extremely irritable and I feel sadden that I live everyday in pain. I am tired a lot and when I spend time with my friends, I can't wait to go home because I am in so much pain.

    How do you all deal with this disease? Do any of you get down on yourself and depressed about being "sick"?

  • #2
    Re: Flare has lasted months. Everyday is a struggle

    First of all, I'd like to say to the IC Network family.

    I do understand what you are going through. Have you tried keeping a detailed diary to see of you can identify some triggers that are causing you pain? Since we can be so different, it could be that there are some things that are a problem for you, but not with everybody --- it could be well worth the effort of keeping the diary.


    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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