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Please note that, for legal reasons, negative comments about specific physicians are not allowed on the IC Network. Also, there is a list on this site, which includes only physicians who have been recommended by other IC patients. To find the list, go to http://www.ic-network.com and click on the link to find a care provider. Donna
I see so many posts from the people new to IC and people wondering if they have IC but can't get a diagnosis because they can't find a good urologist that knows a lot about IC. Then there are the horror stories like mine. I was forced by my insurance to go to a in-plan urologist who claimed to specialize in IC. Well, because of his lack of knowledge I almost died from a simple cystoscopy/hydro and now I have to have my bladder and urethra removed because of the damage he caused! He ruptured my bladder and then denied it and my bladder died and I almost died too! I wish I had known ahead of time that he was no good I would have fought my insurance harder or somehow paid cash to see a urologist that came recomended by someone with IC themselves! I am so infuriated that I can not yet warn people not to see this doctor, but as soon as I can you will see warnings all over this site!
We the patients need to make a list of doctors that we had good experiences with, ones we ourselves trust, it should be by area. This way anyone wherever they may live can hopefully find a urologist that they can feel good about seeing, really cut back on the dangerous trial and error of finding the right doctor. The only way a doctor should be recomended and put on this list is if we saw them ourselves or if a close friend or relative did. Please lets do this for all of our fellow sufferers and future sufferers, it could really help, unlike the list of doctors that the ICA sends out. They obviously do not check out their doctors at all before recomending them, I hate to say it but the doctor that destroyed my bladder and left me to die is on their list! This terrifys and infuriates me!!!!! They will put any doctor thats pays a fee to say that they specialize in IC on this list. Now the list does say that these doctors asked to be put on it and the ICA cannot guarentee how good they are, but still people trust this list and it is a reconmendation, an advertisement for these doctors and many ICers are going to be suckered into seeing them and believieng they are safe, when not all of them are!
Please lets make a safe list that we can actually trust!
I will start, I am in L.A. and I see Dr. Raz at UCLA, I highly recomend him, he saved my life.
I wasn't sure where to post this, I hope the right people see it and we can start our list!
Thank you,
Lara
I see so many posts from the people new to IC and people wondering if they have IC but can't get a diagnosis because they can't find a good urologist that knows a lot about IC. Then there are the horror stories like mine. I was forced by my insurance to go to a in-plan urologist who claimed to specialize in IC. Well, because of his lack of knowledge I almost died from a simple cystoscopy/hydro and now I have to have my bladder and urethra removed because of the damage he caused! He ruptured my bladder and then denied it and my bladder died and I almost died too! I wish I had known ahead of time that he was no good I would have fought my insurance harder or somehow paid cash to see a urologist that came recomended by someone with IC themselves! I am so infuriated that I can not yet warn people not to see this doctor, but as soon as I can you will see warnings all over this site!
We the patients need to make a list of doctors that we had good experiences with, ones we ourselves trust, it should be by area. This way anyone wherever they may live can hopefully find a urologist that they can feel good about seeing, really cut back on the dangerous trial and error of finding the right doctor. The only way a doctor should be recomended and put on this list is if we saw them ourselves or if a close friend or relative did. Please lets do this for all of our fellow sufferers and future sufferers, it could really help, unlike the list of doctors that the ICA sends out. They obviously do not check out their doctors at all before recomending them, I hate to say it but the doctor that destroyed my bladder and left me to die is on their list! This terrifys and infuriates me!!!!! They will put any doctor thats pays a fee to say that they specialize in IC on this list. Now the list does say that these doctors asked to be put on it and the ICA cannot guarentee how good they are, but still people trust this list and it is a reconmendation, an advertisement for these doctors and many ICers are going to be suckered into seeing them and believieng they are safe, when not all of them are!
Please lets make a safe list that we can actually trust!
I will start, I am in L.A. and I see Dr. Raz at UCLA, I highly recomend him, he saved my life.
I wasn't sure where to post this, I hope the right people see it and we can start our list!
Thank you,
Lara
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