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Lets make a list of good and safe urologists to see!

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  • Lets make a list of good and safe urologists to see!

    Please note that, for legal reasons, negative comments about specific physicians are not allowed on the IC Network. Also, there is a list on this site, which includes only physicians who have been recommended by other IC patients. To find the list, go to http://www.ic-network.com and click on the link to find a care provider. Donna

    I see so many posts from the people new to IC and people wondering if they have IC but can't get a diagnosis because they can't find a good urologist that knows a lot about IC. Then there are the horror stories like mine. I was forced by my insurance to go to a in-plan urologist who claimed to specialize in IC. Well, because of his lack of knowledge I almost died from a simple cystoscopy/hydro and now I have to have my bladder and urethra removed because of the damage he caused! He ruptured my bladder and then denied it and my bladder died and I almost died too! I wish I had known ahead of time that he was no good I would have fought my insurance harder or somehow paid cash to see a urologist that came recomended by someone with IC themselves! I am so infuriated that I can not yet warn people not to see this doctor, but as soon as I can you will see warnings all over this site!
    We the patients need to make a list of doctors that we had good experiences with, ones we ourselves trust, it should be by area. This way anyone wherever they may live can hopefully find a urologist that they can feel good about seeing, really cut back on the dangerous trial and error of finding the right doctor. The only way a doctor should be recomended and put on this list is if we saw them ourselves or if a close friend or relative did. Please lets do this for all of our fellow sufferers and future sufferers, it could really help, unlike the list of doctors that the ICA sends out. They obviously do not check out their doctors at all before recomending them, I hate to say it but the doctor that destroyed my bladder and left me to die is on their list! This terrifys and infuriates me!!!!! They will put any doctor thats pays a fee to say that they specialize in IC on this list. Now the list does say that these doctors asked to be put on it and the ICA cannot guarentee how good they are, but still people trust this list and it is a reconmendation, an advertisement for these doctors and many ICers are going to be suckered into seeing them and believieng they are safe, when not all of them are!
    Please lets make a safe list that we can actually trust!
    I will start, I am in L.A. and I see Dr. Raz at UCLA, I highly recomend him, he saved my life.

    I wasn't sure where to post this, I hope the right people see it and we can start our list!
    Thank you,
    Lara
    Last edited by ICNDonna; 12-09-2005, 03:05 AM.

  • #2
    Dr. Kenneth Peters, Birmingham Michigan..one of the top 10 ic specialist in the united states. also known as dr. god
    'The will of God will never take you where the Grace of God will not protect you.'

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    • #3
      Dr. Barbara Bassil and Dr. Oneeka Williams Boston, Massachusetts
      Minds are like parachutes-they ony function when they are open.
      -Thomas DeWar-



      ICN Newbie Volunteer


      *ICN Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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      • #4
        Such a list already exists

        There is already a list of physicians who have been recommended by IC patients on this site. If you go to the IC Network home page at http://www.ic-network.com and click on "Find a Medical Care Provider" you will find that physicians are listed by state and city.

        Donna
        Stay safe


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        • #5
          Donna's right; there is a list available at the link she has given you. I personally have had excellent luck with Dr. Ragi Wiygul in Memphis (although I can say now that she is moving to Knoxville -- she's sent letters out to her patients announcing this so I feel comfortable saying this on the boards now) and Dr. Robert Evans in Greensboro, NC. Both are recommended by the ICA and I believe both may actually be on the board of the ICA!
          ****
          Jen

          *Diagnosed with severe IC in 2004
          *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
          *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
          *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

          **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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          • #6
            Hey Tig, is Dr Peters out of the Beaumont Urology Clinic thingy?? Have you seen him? Since the inlaws live in R.O., and Beaumont is 3 miles away, lol - that's where I have been toying with getting established at some point.

            Know any good gastros there???
            Hugs,
            Tracey
            How do you eat an elephant? One bite at a time...

            Harry arrived 2/23/09!



            *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            IC Diet Cheat Sheet:
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            Dx's:
            IC dx'd Nov 2004
            Lymphocytic Colitis dx'd July 2005
            Possible IBS
            Current IC Meds
            Vistaril 25mg in the evening
            Previous IC Meds taken:
            Cystoprotek - 2 caps 2x's a day
            Elmiron, 100mg 3x's a day
            Ditropan, 5 mg 3x's a day
            Others:
            Wellbutrin 150mg 2x's a day for Anxiety/IBS
            Pepcid 40mg a day for GERD
            Zytrec for Nasal Allergies
            Align Probiotic daily for IBS

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            • #7
              Bad Dr. on ICA list?

              Dr. ****, MD of Marion, Ohio told my patient that people with Downs Syndrome do not get IC! How Wrong he is! He also gave me information that was not correct about Interstitial Cystitis and he is on the ICA list of doctors that are recomended.
              Last edited by ICNDonna; 12-09-2005, 03:00 AM. Reason: Negative comment about specific physician.

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              • #8
                Its totally sick right? We should all complain to them. I feel a lot better now though that I know we have a list here on this site! I am sorry I didn't know there was one, I have only looked at the message board part. Could we put it up here somehow, like up at the top with IC announcements or something. Then people could keep adding on to it and people like me who only look at the message board can see it. It should be one of the main catagory's up at the top, you know the first ones you see as soon as you get on this message board. It would really help a lot of people who don't have a urologist or they need a new one. Just a suggestion. Thank you, this site helps so much!
                Lara

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                • #9
                  I just saw this guy he was nice.
                  Steven W. Siegel, M.D.
                  Location(s)
                  Minneapolis ? Pelvic Floor Center

                  Woodbury ? CornerStone Medical Specialty Centre ? Woodbury

                  Biography
                  Dr. Siegel is the Director of the Metro Urology Centers for Female Urology and Continence Care. He established this center of excellence after moving to Minnesota in 1993. Previously, he was the Head of the Section of Female Urology and Urodynamics at the Cleveland Clinic in Cleveland, Ohio. He graduated from the University of Michigan Medical School, and completed his urology residency at the Cleveland Clinic in 1986. Dr. Siegel is internationally recognized for his work related to urinary incontinence and voiding dysfunction. He is responsible for training urologists and gynecologists locally and throughout the nation in specialized techniques, and continues to actively participate in the education of fellows and residents, lectures, clinical research, and publication in medical journals. Several of Dr. Siegel?s former fellows have been recognized as ?Top Doctors? and ?Top Doctors for Women? in the Twin Cities metro area. He received the Christina Manthos Award for demonstrating extraordinary mentoring skills in supporting the careers of female urologists from the Society of Women in Urology in 2011. He was also honored with the David C. Utz Award for Urological Advancement and Innovation from the Minnesota Urological Society in 2002. He is a recent Past President of the North Central Section of the American Urological Association (2010), and Chairman of the Practice Standards Committee of the Society of Female Urology and Urodynamics. He previously served as a founding member and President of the International Society for Pelvic Neuromodulation.

                  Clinical Interests
                  Female Urology
                  Neuro-Urology
                  No Scalpel Vasectomy
                  Pelvic Pain
                  Urinary Incontinence and Voiding Dysfunction

                  Residency
                  Cleveland Clinic Foundation; Cleveland, OH

                  Medical School
                  University of Michigan; Ann Arbor, MI

                  Undergraduate/Graduate Education
                  University of Michigan; Ann Arbor, MI

                  Certification
                  National Board of Medical Examiners
                  American Board of Urology

                  Licensure
                  Minnesota, Wisconsin

                  Assistant
                  Mary

                  Direct Dial/Voice Mail
                  651-999-7081

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