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  • #1

    IC Awareness Ribbon

    This is a picture of my daughter wearing her brand-new IC Awareness Ribbon shirt. We bought the shirt from Moonheart's IC Team Store (www.cafepress.com/The_IC_Team). Everybody go buy one! Remember, Moonheart is donating 10% to the ICN.

    You can click on the picture to see larger view.

    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn
    ___________________________________________________

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


    On the Beach with IC
    Tags: None
    • #2
      Thanks Carolyn! She looks beautiful!

      Remember, that's only one style (maybe we'll talk Carolyn into posting hers), there are many more styles as well as mousepads, mugs, stamps, etc.....

      Thanks for supporting The ICN and IC research!!!

      Good job guys!
      http://www.TheCraftyEwe.etsy.com

        Comment

        • #3
          Gifts - CafePress
          http://www.cafepress.com/the_ic_team.132150326#
          Looking for the ideal Gifts? Come check out our giant selection of T-Shirts, Mugs, Tote Bags, Stickers and More. CafePress brings your passions to life with the perfect item for every occasion. ✓Free Returns ✓100% Satisfaction Guarantee ✓Fast Shipping


          Here's one with the IC blue butterfly (or a reasonable facsimile lol)
          http://www.TheCraftyEwe.etsy.com

            Comment

            • #4
              Well, thanks, it's not the most flattering picture of Susannah but the shirt came out great! LOL I did get a shirt for myself also, put you won't see me modeling it any time soon. Let another family have a turn.

              Oh, and we got a refrigerator magnet, because heck, you can always use more of those!
              Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
              Wishing you happiness and good health, and all the best out of life.

              Peace, Carolyn
              ___________________________________________________

              Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


              On the Beach with IC

                Comment

                • #5
                  your daughter is very beautiful
                  'The will of God will never take you where the Grace of God will not protect you.'

                    Comment

                    • #6
                      So nice ... Yes I bought 2 shirts from her and was very pleased with my purchase...
                      Last edited by leelee88; 05-11-2007, 05:42 PM.
                      Hugs
                      Ronda

                      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                      Link to Patient Handbook:
                      http://www.ic-network.com/handbook/

                      Diet Reference Sheet:
                      http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                      Meds I have Tried:
                      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                      Lexapro< Bad reaction to this med!
                      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                      Dx With IC in Nov 2006 with Hydro/Cysto
                      Hydro/Cysto Caused Bladder to Rupture.

                      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                        Comment

                        • #7
                          Thank you, Cindy.
                          Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                          Wishing you happiness and good health, and all the best out of life.

                          Peace, Carolyn
                          ___________________________________________________

                          Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                          On the Beach with IC

                            Comment

                            • #8
                              Originally posted by leelee88
                              So nice ... Yes I bought 2 shirts from her and was very pleased with my puchase...
                              Hmmmm....do I sense another model hmmmm?

                              Oh, and thank you all for the kind comments. It makes me feel really good and that I'm contributing something to eradicating this darn disease!

                              I ran into an old friend at the store tonight and ended up telling her about IC. She said that she was on antibiotics for an infection right now, and I said, yes, it's pretty much like having an infection 24/7. She was absolutely horrified that anything like that existed!
                              http://www.TheCraftyEwe.etsy.com

                                Comment

                                • #9
                                  She is so pretty! I think the shirts look great too! Great job, Moonheart!

                                    Comment

                                    • #10
                                      what does the saying on the butterfly shirt mean?
                                      current meds:
                                      cytotec 200mcg twice daily
                                      toprol
                                      allegra

                                      ONLY 3 MEDICATIONS!!! YAY! Would never have dreamed this is possible

                                      dx: hashimoto's thyroiditis 1998
                                      dx: interstitial cystitis via cystoscopy with hydrodistention and biopsy 2003
                                      dx: endometriosis 2003
                                      dx: innapropriate sinus tacchicardia 2005

                                      meds tried but failed:
                                      elavil (6months)- severe tachycardia
                                      elmiron (1yr6mo.)- no improvement, nausea, hair loss, stomach ulcers
                                      a bunch of others



                                      Me and my best friend's baby (also my Godson!)

                                        Comment

                                        • #11
                                          Thanks Amy!

                                          The saying under the butterfly is just the latin name of the butterfly. Looks kind of cool though eh?

                                          I'm going to be putting up more and more butterfly pics. I found an excellent resource for the pictures that I can use for many different types. I will be doing a calendar and posters as well as framed prints soon.

                                          Thanks again!
                                          http://www.TheCraftyEwe.etsy.com

                                            Comment

                                            • #12
                                              Moonheart asked me to post for her that she is having trouble getting this site to load; she doesn't want you guys to think she is ignoring you.
                                              Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                                              Wishing you happiness and good health, and all the best out of life.

                                              Peace, Carolyn
                                              ___________________________________________________

                                              Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                                              On the Beach with IC

                                                Comment

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