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What can stop the pain in the urethra and surrounding muscles?

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  • What can stop the pain in the urethra and surrounding muscles?

    On Dec 1 I was doing my physical therapy and somehow crossed my legs up in a stretch which later in the day proved to be a very painful mistake. I went from a nice pain level of 3 up to a 9 just from reaching high into a cupboard (this was after I had done alot of strenght training after the initial mistake). At the time of doing the initial exercise I had some discomfort but really didn't think much of it because I always have discomfort/pain somewhere. I am very hypersensitive to just about everything so pain gets exagerated in my body. I ended up taking some Hydrocodone that I had left over from my breast cancer surgery to try and cut the pain. It even hurt to breathe, I had pain from my vagina straight up my core. Bending in any direction was not possible. I laid in bed for 9 days trying to calm the muscles down figuring I pulled or tore something in the pelvic floor. I had talked to both physical therapists and they agreed that rest was what was needed. My bottom felt like I had tried to lift up a truck. I have been severely deconditioned over the last few years due to other medical issues and had been hitting the PT pretty hard so over doing it seemed logical. I had been very flexible at the time. I started to feel a bit better and was walking 7000 steps but still could not bend, lift, sit comfortably until the 18th when I squatted down to pick something up and was back to square one in bed. On the 23rd I was in ER per my Drs instructions because it had gotten so bad that I could no longer dry the lower part of my body, barely get out of bed and my pain was at a 8+ unable to sleep even with the Hydrocodone. Of course all tests showed I was healthy which at least told me nothing was terribly damaged as far as the muscles go. They gave me a Fentanyl patch and sent me to pain management and my Dr. Pain management gave me 1 month of Fentanyl and off to my gyn. He said it was all my urethra and bladder and gave me a very painful instillation (everyone in the waiting room could hear me). 3 days later I am feeling overall better but I still can't do a simple stretch like happy baby (on back with knees by your chest) for 5 seconds without the pain in the urethra jumping up to a 7-8 even though I'm still on the Fentanyl and Hydrocodone. I have a call in to my Dr for instructions, we are waiting on labs for mycoplasma/ureaplasma cultures. I have been using Diazepam vaginally for 7 years and am now back on Elmiron. I had been off of it for awhile because my bladder had been happy. He's talking about putting me on Nortriptyline but I am very worried about that. I had been on it until an allergist raised it up so high that it caused all sorts of side effects and it took almost 2 years to get off of it and get rid of those side effects. Does it really help that much with urethral pain? I'm thinking I still have issues from the injury that are just taking forever to go away, especially since I still can't really bend over far (getting better verrrrry slowly). I am now walking 10,500 steps a day. On the week of the 23rd I was doing about 300 steps a day so I am making great progress there. If I could get back into stretching again I would be a happy camper and could start getting off of these meds asap.

  • #2
    If you injured a muscle by stretching to reach something, it could be that you need more time for recovery. It does sound like you are making good progress. I hope it continues.


    Donna
    Stay safe


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    • #3
      It could be muscle spasms, especially if you had injured a muscle. Most women with ic develop pelvic floor dysfunction, so you may also look into that. I get spasms that start in my urethra and progress to my bladder and vaginal walls. I take hydroxyzine every night and when it starts with hydrocodone. If that doesn't help i take zanaflex (muscle relaxer) and as a final effort ativan (benzo). I think most women take vaginal valium, often compounded with zanaflex, but i don't tolerate it well.
      Jamey

      dx
      IC, endometriosis, cervical dysplasia, bi-polar, trichotillomania (hair pulling disorder), scoliosis, fibroid breast disorder, chronic fatigue, arthritis in hands, temporal lobe seizures
      meds
      buspar 30mg, atarax 100mg, norco 10mg 30/week for pain, vimpat 100mg 2/day, trileptal 600mg 2/day
      flare strategyestrace cream, lidocaine jelly, and ice pack on urethra. ativan .5mg for severe flares only

      Life's not about waiting for the storm to pass. It's about learning to dance in the rain.
      (and looking for rainbows)

      Comment


      • #4
        How are you feeling now? I am in agony with my urethra and I have no idea what has caused it!

        Comment


        • #5
          I'm on a high dose of hydrocodone daily and still end up at a pain level of atleast 2-3. My urethra is definitely where my worst pain is even though i have "classic" ic ( hunners ulcers) and don't consider myself to currently be in a flare. I have alot of burning and a gotta go feeling. The worse the gotta go feeling gets, the harder it is to empty my bladder completely and the worse frequency gets. After a day or two of that I can't walk without it feeling like someone is punching me in the bladder every step I take. My dr gave me the muscle relaxer about 6 months ago and i can usually get it under control after a dose or two. When they did your instillation did they look with a camera? It might be worth having your uro do a scope (camera) and looking for lesions if not. That way they can also biopsy some areas. When i started out i had staph staph and strep embedded in my bladder wall. The staph showed up in my urine at first but when my cultures came back clean and my symptoms hadn't improved she went in and took biopsies and tissue for culture. I had DMSO instillations for 6 months along with monthly bladder wall sample cultures. One last thing, have you consulted a gynecologist just to cover all your bases?
          Jamey

          dx
          IC, endometriosis, cervical dysplasia, bi-polar, trichotillomania (hair pulling disorder), scoliosis, fibroid breast disorder, chronic fatigue, arthritis in hands, temporal lobe seizures
          meds
          buspar 30mg, atarax 100mg, norco 10mg 30/week for pain, vimpat 100mg 2/day, trileptal 600mg 2/day
          flare strategyestrace cream, lidocaine jelly, and ice pack on urethra. ativan .5mg for severe flares only

          Life's not about waiting for the storm to pass. It's about learning to dance in the rain.
          (and looking for rainbows)

          Comment


          • #6
            My Gyn takes care of my IC, so many urologists missed that I had IC and just kept handing me drugs and sending me on my way. I was scoped 7 years ago and everythig looked fine at that time. This is from a muscle injury and my gyn is the one who gave me the instillation which helped alot. All the muscles down in the pelvic floor are just mad, sore, and tight right now. I was told it could take a few months for things to calm down. I just started doing the simplest of stretches on my back (with the help of my physical therapist) this week. I am just starting to be able to cross my legs for 15 seconds, bend over just a bit. This is going to be a long recovery until I can really get back into strenghtening again. The urethra has calmed down, until I over do my stretching then it lets me know right away. He did take some test cultures and everything (as always) came back fine. I am now walking 11,000-12,000 steps per day and starting to do the simplest of chores that have barely any weight or bending to them. I am on a muscle relaxer and Hydrocodone. Would hate to think what the pain would be like without them. One day at a time and taking it very slow so I don't injure my self again.

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            • #7
              So I'm assuming you're doing pelvic floor therapy then? I've heard of alot of other women using tens and biofeedback. Unfortunately ic is a progressive disease so please take it easy and let yourself heal. It will be worth it in the long run. Once you've injured those muscles they may never be the same though. If you can find an ic specialist within a couple hours of you it would definitely be worth the drive. I don't know what I'd do without mine. If your pain doesn't get any better i would ask for a scope to see if there are any lesions in your urethra or anywhere else.
              Jamey

              dx
              IC, endometriosis, cervical dysplasia, bi-polar, trichotillomania (hair pulling disorder), scoliosis, fibroid breast disorder, chronic fatigue, arthritis in hands, temporal lobe seizures
              meds
              buspar 30mg, atarax 100mg, norco 10mg 30/week for pain, vimpat 100mg 2/day, trileptal 600mg 2/day
              flare strategyestrace cream, lidocaine jelly, and ice pack on urethra. ativan .5mg for severe flares only

              Life's not about waiting for the storm to pass. It's about learning to dance in the rain.
              (and looking for rainbows)

              Comment

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