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Anyone in or near Raleigh, NC? Looking for new pain doc

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  • Anyone in or near Raleigh, NC? Looking for new pain doc

    My doc is having mental issues and is going to be retiring. Though I think he might totally upend my care plan before that happens. He's trying to make a graceful exit, but it's not turning out that way. I'm looking for a new doc, but with the current feelings on pain medication I'm at a loss as to who to even call. If anyone is in or near Raleigh, NC can you message me please? I need to figure this out soon.

    Thanks!!
    Nanc

  • #2
    Robert Evans clinic at Wake Forest might have some suggestions for you on who they refer pain patients to!! Just google Robert Evans Urologist and you'll find his clinic info!
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

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    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






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    • #3
      Hello....I am a patient of Dr. Evans and have been going to him for years. Pain is a big part of my IC symptoms and I live with it daily. I even had to retire early because of IC. I’m not sure what your current care plan is but it would be worth a shot to talk to him. He is one of the leading urologist on IC. I have been pleased with his care. He has certainly given me ideas and natural ways of trying to cope with this chronic disease. As well as pain meds to make me comfortable. All physicians are concerned about the opioid crisis. I feel like the government is trying to choose our meds. An IC patient is a totally different individual from most and I feel the governing bodies need to leave well enough alone for those who have chronic pain. Dr. Evans has been an advocate for this cause and feels pretty much the same way I do. Yes you have those who abuse the pain meds and then you have those of us who don’t because we need it to function. It would be worth the effort to try to get in to see him. He has offices in Greensboro and Winston Salem, NC Best of luck to you....

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      • #4
        Originally posted by SC Grits View Post
        Hello....I am a patient of Dr. Evans and have been going to him for years. Pain is a big part of my IC symptoms and I live with it daily. I even had to retire early because of IC. I’m not sure what your current care plan is but it would be worth a shot to talk to him. He is one of the leading urologist on IC. I have been pleased with his care. He has certainly given me ideas and natural ways of trying to cope with this chronic disease. As well as pain meds to make me comfortable. All physicians are concerned about the opioid crisis. I feel like the government is trying to choose our meds. An IC patient is a totally different individual from most and I feel the governing bodies need to leave well enough alone for those who have chronic pain. Dr. Evans has been an advocate for this cause and feels pretty much the same way I do. Yes you have those who abuse the pain meds and then you have those of us who don’t because we need it to function. It would be worth the effort to try to get in to see him. He has offices in Greensboro and Winston Salem, NC Best of luck to you....
        to the IC Network.

        I have to agree with you --- I know there is substance abuse, and I'm aware that there are those who will go to any length to obtain drugs --- but there just has to be a way for us to get the help we need without jumping through so many hoops. Doctors are also having to live with the regulations --- pain management specialists are about the only ones who can prescribe full time medications, and, at least in Oregon, can only prescribe a thirty day supply via a written prescription for every refill.

        Also --- I have heard many good things about Dr. Evans.

        Sending warm healing thoughts,
        Donna
        Stay safe

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

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        • #5
          I'm actually already a patient of Dr. Evans, though I live nearly 2 hours away so its been a few years since I've seen him. I wouldn't have won disability without him! When I was very first his patient, he mailed my pain scripts to me, though I'd be shocked if he's been allowed to continue this practice in today's climate (this was 8-10 years ago). I started using a local Uro though. What I'm sayin is, if I was capable of driving to see him monthly, I wouldn't be surprised if he WOULD help me........but I can't. I don't have transpo at all and have difficulty getting to my GP that I see monthly that's only 20 minutes away from me. So, I'm stuck attempting to find a doc here in Raleigh or at worst, perhaps in Cary or I could maybe do Durham, even.

          Since I made my original post things have gotten much, much worse. My doc's behavior has become utterly inexplicable and rarely has any basis in medicine at all. I'm on disability & live on $900 a month, with no other income and no car. I pay someone gas to take me to my appt monthly & we go to the pharmacy immediately after, so it's all done in one shot. Before the holidays, October I think, my doc suddenly said I needed to start having my script written for every 28 days. I thought it was odd, like what was the diff between 28 & 30, but he pulls weird **** all the time so I just went along. The next appt was around THanksgiving and he said he would have to go out of town, so my script would have to be for 21 days (meaning my appt was too). Ok, fine. Did that. Next appt he claimed he was going out of town again for Xmas, so he put me in for 21 days again. Ok, fine, makes sense. But then the next appt, as I'm walkin out, I see the script is written for 21 days AGAIN. I was in a rush, so just said "What......you have to go out town again?" He said, "Yeah....maybe". So....next appt, he once again, tries to set me up for 21 days. This time I finally protest. Doing this is doubling my appts per month,the gas I have to buy, and was staggering the rest of my scripts so they didn't fill at the same time, adding another trip monthly to the pharmacy. He said "It has to be every 21 days now, for opiate scripts, or your insurance won't cover it". I said, "That can't possibly be true. I'm going to call my insurance company and check". That's when he started to wobble, and he said "Well, at your NEXT appt, we'll start scheduling you for 28 days again and see if it covers". This doc has lied to me about numerous things from what certain medications do, to setting up other unnecessary appts. He has a tiny practice that is predominantly medicaid/medicare patients and he brazenly does things that are obviously to make more money. So long as they haven't interfered with me personally, I've never cared, though it's unprofessional as hell. BUT THIS DOES. So, the next appt comes around....the one where he said we'd switch back to 28days........aaaaaaaaaaaaaand, he scheduled me for 21 days AGAIN. I said, "Wait....we were going to go back to 28 days", to which he said, "No, we're doing 21".......I say, "But I called my insurance company and they DO cover scripts/appts for up to THIRTY, not just 28, days"....and he's finally honest and says, "This has nothing to do with insurance". I asked, "But wait........last time you told me IT WAS about insurance. So, if it isn't about insurance, why are you doing it? (I think explained why the extra appts were a burden on me, which he knew anyway, since I've been his patient for nearly 8 years)".......to which he abruptly answered, "Look, if you don't like it, find another doctor", which is ALWAYS his answer when he doesn't wish to explain himself. When he cut my meds a year ago, to 1/4 of my daily intake, he outright REFUSED to tell me why and then added, "And if you don't like it, find another doctor". I had been hospitalized due to pneumonia and during my stay they lowered my pain meds, because I was having dizzy spells. Even though I told them I was having heart issues (which I was), they ignored me, told me it was due to my pneumonia which lowered my lung compacity mixed with taking my Oxy. I stayed in for 3 days for IV antibiotics & when I left, the doc said she wanted me on the lower amount of Oxy until my antibiotics were gone, then I was to go back on my regular amount. I asked if she was telling my GP that, she said "yes". When I got to HIS office, he went even further than she did, lowering my amount another 20mgs a day and told me that THAT would be my regular amount going forward.....he refused to tel me why. Recently, nearly a year after this, he made a smart ass comment to me about not wanting to give me too much Oxy during the holidays because "you might overdose like last time". Now THAT made me snap to attention. "WHAT?", I asked "WHAT are you talking about". He then made reference to my hospitalization a year previous and said I had overdosed! I COULDN'T FREAKIN BELIEVE IT! I said, "I was there for pneumonia! I didn't overdose on anything. And if you don't beileve me, I know you've got the records from the hospital......go and look at them RIGHT NOW. They'll have my blood and urine tests, and I know because I take Oxy they ran drug panels. I didn't overdose, not even close to it. It had been almost 6 hours since I'd taken ANY medication of any kind before I went to the hospital. Have you thought that this whole time? That I overdosed? Is that why you lowered my medication?"......I've kept my cool with this guy for years now, but nearly lost it there. I was just STUNNED. And instead of actually addressing what was being said, he just waved his hand and said, "Well, whatever.....".......then refused to speak about it anymore.

          I'm just completely beside myself at this point. I really thought that perhaps, after months of seeing how poorly I was doing on the lower does he might at least rise it back up to HALF of what I'd been taking for years, but he's even suggested lowering it further. In the last year I've stopped leaving my house. I only go out twice a month. Most days are spent in bed and ALL days are spent in sweatpants and pajamas. House chores rarely get done. My life simply STOPPED. And no one will help me. I can't find another doctor, and I just don't know what to do. A recent poll showed 40% of docs in NC have stopped prescribing pain meds for any reason at all. Because I have IC normal "pain clinics" won't take me.......and all the regular GPs are terrified to take on chronic pain patients. I'm stuck with a maniac who won't listen, can't seem to keep track of what my condition actually IS or what I have and haven't done and genuinely just doesn't care.

          If anyone knows of any doc treating IC that's within a 30 minute drive of Raleigh NC, will you pls help me? I've tried to be stoic and brave about all this and I don't know how well that's served me, to be honest. Reporting this man while I'm his patient & can't find anywhere else to go will only hurt ME (though make no mistake, I'm reporting him the second I'm out the door) and I think contacting a lawyer would put me in the same situation.

          I can't do this anymore. I looked back on the last year the other day and was just shocked at how downhill I've gone. I did this thing where you're asked to write down how many "usable" hours you've had in a week.......when you were up and functioning in anyway. Id had a week where I'd had to go out twice so I figured it wouldn't be so bad. I was honest. And it was ELEVEN HOURS. I had ELEVEN USABLE HOURS IN ONE WEEK. That isn't living, its existing. So, I've got to stop stewing and expecting the situation to suddenly change on it's own. I desperately need help and I need to start asking anyone I can to help me find it.

          Thanks guys. Sorry to be dramatic. I've clearly let this go too far.

          Boohiss

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