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  • CBD really work?

    My PCP doc left and the new one won't give me pain medicine. Tried finding one that would and found just one but they were a snot. High and mighty acting and I refuse to kiss their butt. I am not an addict and I will not be treated like one. Been on pain medicine for 15 years and I did it right all those years. I do know you can't trust anyone but there are limits on what must be done to get those pills. Don't mind signing the paper and peeing in a cup but this PCP doctor has rules of their own so nope...sorry....I will go without. They all pushed marijuana on me. It's legal now in NY State. Think it is just sad how everyone is so concerned about the addicts but forgets about the people that medicine was made for. I say do away with every medicine for pain including Tylenol and EVERYONE has to deal with pain with nothing for it. I tried finding CBD but there are so many how do I pick the right one? No pharmacist could help me. Plus has anyone tried using it after going off pain meds and have it actually help?

  • #2
    First of all, I'd like to say to the IC Network.

    Try not to blame your doctor's office --- unfortunately, most states have strict regulations about prescribing pain medications --- and, unfortunately, we who have long term need for pain control are the ones who can end up suffering because of the addicts. In order to have less problems with pain management medications, I see a pain specialist --- they are in a specialty that allows them to prescribe pain medications over the long haul. I still have to have a new prescription every month and have to pee in a cup at regular intervals, but they are so nice in my pain doctor's office that it isn't too bad.

    I use hemp lotion for a neck problem, but am not familiar with any of the marijuana products that are ingested.

    Sending healing wishes,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      I just didn't hit it off with that one PCP doctor and my new PCP doc won't do the pain script but the thing for me is the pain management places won't accept me for Interstitial Cystitis. Don't have a clue why. Just told no. That's why my old PCP did the pain script for me and nothing near by within 50 miles for me to try and 50 miles would be to far for me to even try to get to pain management. I have been trying to get off of it over the years but always went back on due to pain and no sleeping and peeing hundreds of times. I always feel guilty about using it and have arguments with family about it. Which then I tell them to stop their medicine . If I have to they have to and it shuts them up. Used to take Algonot but I see there is none to be found now due to Covid but I am trying CystaQ but at $57 a month not sure I can afford it. I'm glad you have a good pain management place to find help. You're one of the lucky few.

      Comment


      • #4
        Donna does your pain management have a rule when they call you MUST ...and I mean MUST....drop everything right then and there and go show them your bottle? If you don't you lose the pain medicine? That one doctor I found had that rule too which she made out that was a rule she made up on her own. I'm not doing that. I found this out by talking to someone who has a family member who is in assisted living...in a wheel chair ..has no clue what is going on mentally and yet the pain management forced that family member to show up or lose it. They had to find a way to get that family member from the assisted living place to pain management because the assisted living place does not transport the people anywhere. If all you have to do is pee in a cup /sign a paper you are one of the few lucky ones left.

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        • #5
          When I'm due for the required urine test, I go to the lab in the doctor's office --- there's a bathroom right there and the lab person stands outside the door so I hand the container to her on my way out. Before electronic refills were allowed in Oregon, I would wait until the sample was tested, then was handed my new prescription. This always took place at my regular appointment to have my pain pump filled.

          Different states have different rules, which doesn't make things easier for us.

          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            Hello countrygal55,

            Do I feel CBD helps me as an add-on treatment? Yes. My local medical dispensary helped me pick out a bottle of CBD. Mine is a liquid in a dropper bottle. I'd say it shaves about a half-point off whatever number I'm at on the 10-scale. That's not much by itself, but as part of a treatment plan, it's good. CBD is also slightly relaxing, which I think most people could enjoy right now. Maybe you'll laugh, but my cat's veterinarian diagnosed her with anxiety, and even my little cat takes CBD at night now.

            Now, do I feel CBD would be enough to help me by itself? Absolutely not. If you can't get the opioid pain medication that America's current moral panic revolves around, I have doubts that CBD enough could be a substitute, although I think it would be worth a try. But at the rare times now when I have significant pain, I use THC or I use kratom. Please always check what is legal in your area. To keep daily pain away, I use Lyrica, although that is for my bile reflux rather than IC. (As a side note, I had the same problem with my bile reflux that you had with your IC: the closest pain clinic said they wouldn't be able to see me for that condition. It's known to be a very painful condition, significant more so than acid reflux, so that was frustrating to hear. But my GP treats me now and he is so nice. I suspect some pain clinics have a list of what they are and aren't willing to treat.)

            Donna, always good to log in and your posts, by the way.

            Donna,

            Chronic conditions: IC, bipolar disorder, Lown-Ganong-Levine syndrome, Raynaud's disease, bile reflux, scoliosis
            Current IC treatments: menstrual suppression
            Daily treatments for other conditions: Neurontin, Zyprexa, Cymbalta, Modafinil
            As-needed treatments for other conditions: Klonopin, Ambien

            Comment

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