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so excited with new doctor!!

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  • so excited with new doctor!!

    hey guys i just wanted to write to let everyone know that after months and months of crazy doctors and all the other drama i have been through i have found the sweetest family doctor. i explained my whole situation to him seeing as i have a million other things wrong with me other then IC and he actually didnt look at me like i was crazy, i know you all have had this happen to you where you go to a new doctor and they ask you all the medications you are on and why and they look at you with this blank stare like " well what so you want me to do" he is actually very involved with my diabetes seeinf as my sugar has been so so high for a really long time. he has tried a couple different pain meds with me which i am greatful for seeing as nothing that i was trying was seeming to work at all. but i think i have found something that does, he prescibed me oxycontin 40 mg twice a day and oxycodone for break through pain. it seems to be working really well. i just wanted to let everyone know that i think i have found a doctor that wasnt a quack and actually listeins to my issues and tried to do something about them unlike all the other doctor that look at me like in the quack. okay thanks for letting me ramble on and on everyone.
    Elmiron 100mg three times daily,Oxycontin 40mg twice daily, Ditropan 5 mg twice daily,mg once daily,oxycodone as needed

    Lexapro 20 mg daily,Hyzaar 100-25 mg daily,Norvasc 5mg daily,Nexium 40 mg daily,Zocor 20 mg daily, Metformin 2000mg twice daily,Singulair 10 mg daily,Phenergan 25 mg as needed,Zomig 5 mg as needed,Advair 500/50,Nuva Ring

    High blood pressure,Diabetes,Asthma,Migraines,Panic Attacks

  • #2
    I reallly hope that this will be your magic help... good luck
    'The will of God will never take you where the Grace of God will not protect you.'


    • #3

      Sounds like you've finally got the right one. Boy, why is it sooo hard to find the right doctor. I wish your new doctor had a clone where I live. I am trying to get my letter composed to tell my current pain mgt. dr. I want to discontinue being 'treated' by him. This center is very strict about rules and regulations, i.e. patient swapping (as the office manager referred to it). I call it having a doctor who understands my conditions and knows how to treat them. Currently my doctor only has me at about 60 pain contol. I deserve 100% and he acts aloof and as if he could care less. I know which dr. I want to change to, but my current one has to 'agree' to let me change! Is this ridiculous or what!!!! It makes no sense. Anyway, congrats on finding 'the one'. The meds you have been prescribed for pain are the ones I SHOULD be taking, but my doctor doesn't understand I.C. and how painful it is. Wish me luck and lots of prayers!

      -Bladder surgery to correct reflux-'68
      -Terribly painful periods, [email protected] 13 (most likely due to endometriosis, no dx then)
      -4 gyn surgeries since 2003 to remove cysts, ovaries, endometriosis and uterus
      -DX'd w/I.C. before 3rd gyn surgery, but sure I've had it since childhood
      -Gastrointestinal allergies to nuts and shellfish - {I would like to know if there is some connection of gastro allergies to I.C.?}
      PTSD (sexual abuse by teenage boy when I was 4 and s. abuse by adult male who was friend of my Dad's - my parents still don't know)
      -DX'd with IBS in 2000
      -Rhabdomyolysis in 2001 (has not returned)
      -DX'd with Eosinophilic Esophagitis (Asthma of the Esophagus) 3/07
      -DX'd with TMJ in 2000-wear splint
      -Hydrodistention and Cystoscopy w/ biopsy of tissue in bladder-2003
      -DX'd with Epilepsy -2000
      -SSS (Selective Sound Sensitivity)-wear earplugs most of the time to screen out certain noises
      -DX'd with Fibromyalgia (2006)

      Medications:MS [email protected],Hydrocodone-10/650:up to 4day,Levothyroxine,Soma,Clonazepam,Vesicare,Keppra (anti-seizure),Flovent FHA 220mcg (swallowed for E.E.),Elmiron,Instillations-5+per week for flares,Lidocaine,Cysta-Q,Prelief, Dulcolax,Baby Aspirin(for FM),God blessed me w/2 boys: Devin-14 and Logan-9, Jim, my husband of 18+ years who sort of understands what I.C. is...still working on educating him!, my springer spaniel "Wookie" ('cause he makes sounds like 'Chewbacca' from "Star Wars" when my son plays with him) and the most important 'medicine' of all...PRAYER...because ONLY God knows the answer to why we are all going through this awful I.C.!


      • #4
        That's great! I'm so glad you've found a wonderful doctor who understands all your physical problems! Doctors like that are hard to come by!

        Hugs, Sandy
        *IC-- Summer 2004; PFD--October 2005
        *Fibro--Fall 2000; CFS-- Fall 2000
        *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

        Total Abdominal Hysterectomy--adenomyosis--9\08

        04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.


        • #5
          :woohoo: Good for you.

          Shopping??? Did someone mention shopping? I'll get my hat... ;-)

          Where I can be found most days.

          Link to the ICN Patient Handbook:

          Link to the IC Diet:

          IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


          • #6
            I'm so happy for you

            *Diagnosed with severe IC in 2004
            *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
            *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
            *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

            **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


            • #7
              I am so thrilled for you. It is awesome when you find "the doc" who understands your pain and treats you like a human being. You can actually look forward to the future as opposed to just trying to get through today.

              (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

              [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
              :angel: IC Angel Volunteer Coordinator :angel:
              :) Contact me via PM or e-mail if you would like to help
              I have learned all about life in 3 words: It goes on! :D--Robert Frost
              PCOS 7/85
              RSD 7/94 :headbang:
              Endometriosis 9/98 :toilet:
              Antiphospholipid antibody syndrome 9/99
              Kidney stones--too many to count
              Factor V Leiden mutation 10/02
              IC 6/03 :evilsmile
              Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
              "Spirit is an invisible force made visible in all of life"--Maya Angelou
              "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]


              • #8
                That is great! :woohoo: I think it is the best feeling when you finally find that one doctor who you can trust and rely on. I am so happy for you.