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I am waiting for an appt for a consult with a new urologist.Actually she is a urogyn that specializes in IC. When I finally get to meet this Dr I will ask if she can manage my pain. I like my pain Dr but I do not like the idea of seeing different Drs and it would be easier to pay one co-payment a month instead of two. Also I never liked the feeling I get when I am sitting in the waiting room waiting to be seen at the pain management clinic. I guess it is the stigma associated with being on painkillers. I feel like I am always explaining my condition to everyone and I hate it! Why are we made to feel like a drug addict because we are in pain? Does anyone have their pain managed by their urologist?
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My Uro does all my meds including the pain meds. The only one he said he couldn't do was the bc. -
Most uros won't rx pain meds because they don't understand them and lots of them don't believe in them. If you've got a good pain mgmt doctor that listens to you and controls your pain youre better off staying where you are rather than taking the chance of messing up a good thing by switching doctors. It's really hard to get a pain doctor to understand why our bladders hurt us so badly. If I were you I'd stay where you are. I understand about the 2 copays, but it's better than trying to convince someone all over again that you need pain meds.*IC-- Summer 2004; PFD--October 2005
*Fibro--Fall 2000; CFS-- Fall 2000
*MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis
Total Abdominal Hysterectomy--adenomyosis--9\08
04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.Comment
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Mine does..Knock on wood, I'm waiting for some to be approved! I dont need the marcotics very often, once every 6 months or so. So he is usually ok about refilling for me.Kimi
Diagnosed 04/2003 Age 19
Kidney Stones 09/2005 Age 21
Medications:
Effexor 150-Depression
Topamax-Migraines
Urelle-Ic
Vicodin-Intense Pain From IC
Past Treatments:
Elmiron- Made My Stomach Sick And Broke Out In Hives.
Hydroxyzine-Ic
Pyridium-Ic
Tramadol-Ic
DMSO-Did Treatments In 2003
Heparin Treaments-2003 Through 2005
Lily My Baby Girl!!!
Pugs..Proof God Has A Sense Of Humor...
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My uro is the one that gives me my Tramadol. He refuses to give me anything stronger. His justification is he doesn't want me adicted to anything. I can sort of understand that.
My first uro I saw would give me Rx after Rx for narcotics and thought the pain was all in my head (even after HE diagnosed me)...that was confusing and why I switched.
Medical "Issues":
IC
GERD
Tachycardia(resting rate is 125-130
)
Medicastions:
Tramadol-as needed (IC)-50mg
Elmiron 200mg twice a day
Levsin .125mg 1-2 pills 4 times a day
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My uro manages my pain as well. I haven't had any problems getting the meds I need most of the time. I am just not used to having to go every month. My prior uro used to give me enough for 3 months and I only had to see her if I needed an implant adjustment or had other problems. She has moved to the other end of my state now, but she recommended this new doctor instead of the one that took her place. I saw her a couple of times and couldn't stand her and I don't think she knew that much about IC either!Comment
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I love you puggy
my doc will treat my pain, but seeing I have pther issues that require pain meds, I don't bother asking him, I let my reg doc handle that department.'The will of God will never take you where the Grace of God will not protect you.'
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My uro manages my pain. I don't need high-powered full time medications, however.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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My Urogyn is currently prescribing me tramadol (Ultram) to the tune of 30 a month. He didn't really want to, but I insisted (big drama.) Don't know how long he will continue to help me out. We will see. I mostly only need the meds during/before/after my period, but on those days, I need more than one Ultram, so I end up using close to all the 30 a month when all is said and done.
Blessings,
LoriComment
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I see a pain management doc and have been stable on the same meds for 7 months. Most of the uros I have seen will not do long term pain management.
Hugs,
Barb
(Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)
[SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
:angel: IC Angel Volunteer Coordinator :angel:
:) Contact me via PM or e-mail if you would like to help
I have learned all about life in 3 words: It goes on! :D--Robert Frost
PCOS 7/85
RSD 7/94 :headbang:
Endometriosis 9/98 :toilet:
Antiphospholipid antibody syndrome 9/99
Kidney stones--too many to count
Factor V Leiden mutation 10/02
IC 6/03 :evilsmile
Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
"Spirit is an invisible force made visible in all of life"--Maya Angelou
"Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]Comment
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My primary doctor gives me pain pills for other health reasons and it helps my bladder also, so there is no need to ask for pain pills with my uro.
TrishannComment
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I also see a urogyn. They specialzie in IC and PFD. They will prescribe pain meds but I don't need anything really strong.Mom to:
Ella~born 10/14/03
Travis~born 5/8/06
Meds:
Elmiron~2pills 2X a day
Elavil~50mg at bedtime
Had great results with this for almost 2 years. Currently in a flare since 1/9/07
Trying Urised, lidocane cream, Cystoproteck and now Benadryl at night to try and stop it.Comment
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I used to have my urologist manage my pain when I was living in TN; when I moved to NC, my urologist offered to manage it but we decided it would be too much of a pain to drive 45 minutes to an hour every month to get a new prescription. So, we found a pain clinic closer to my home that would manage me.****
Jen
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.Comment
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I have a pain management doc who handles my pain. The only thing that my Uro gives me is the Elmiron. When I was there last month, he suggested that when I see my family doctor next time that I get a muscle relaxer -- why he wouldn't prescribe it I don't know. (fortuntely, I didn't have to wait that long, as my pain management doc prescribe Zanaflex for me, its not helping and she told me when I see my family doctor next week to ask him for something else.)Comment
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I have been to 3 different Uros since my IC was diagnosed several years ago. They have always handled my pain meds. I have tried the longer acting pain meds, but Lortab seems to work the best for me. We are just trying to find something that will work through the night since my pain really flares during the night. Right now I am on Lyrica, Valium, Amitriptiline and Lortab, plus my sleep med.Comment
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