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They won't give me the pain medication!

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  • Moonheart
    replied
    Originally posted by toby75
    Kara

    I read the list of drugs you are allergic too. What type of reaction do you have to those drugs?

    I didn't see you list any hydrocodone or oxycodone. Although they are both derived from the same type of opiates. Vicoden,Lortab,lorcet,norco are hydrocodoens. Percocet, Percodan, oxycontin (time released) are from oxycodone.

    Another one is Darvocet, but is the weakest pain relief there is, which probably would not control your pain.

    I just weened myself off of oxycontin and lortabs. Problem I am having is my bladder pain came back with a vengence. I had to go to the bathroom every 15 minutes and the urge never left me. I was forced today to get percocet, I wanted so bad to be done with the narcotics and I made it through the w/ds but my bladder is in a tailspin. I just went through 6 nights of not sleeping at all, and when I mean at all, I mean maybe 1 hour a night and that was with prescription sleep aids, you name it. I took a percocet this morning and my bladder feels great. I just don't understand.


    Do you have trouble sleeping at night? Do you have urgency that is so bad you cannot lay in bed without the constant feeling of having to urinate???
    I have that when I'm not on narcotics. I have to go every 15-20 min. and it's absolutely devastating. It drives me to distraction really. Totally unbearable.

    Leave a comment:


  • Mel53H
    replied
    Kara, How about Darvon?

    Leave a comment:


  • IC SARAH-CPP
    replied
    Kara,
    I just wanted to chime in that the pill form of the fentanyl is called Fentora(sp) and is supposed to work really well. I read the clinical study information on it and it sounds promising. And many doctors and insurance companies seem to be more willing to prescribe it, maybe because it is cheaper and in a pill form?? Not sure, just a guess.
    I know this wont help if they wont give you anything but maybe for the future? I dont know what to say except I am thinking of you and sending hugs.
    Love Sarah

    Leave a comment:


  • toby75
    replied
    Kara

    I read the list of drugs you are allergic too. What type of reaction do you have to those drugs?

    I didn't see you list any hydrocodone or oxycodone. Although they are both derived from the same type of opiates. Vicoden,Lortab,lorcet,norco are hydrocodoens. Percocet, Percodan, oxycontin (time released) are from oxycodone.

    Another one is Darvocet, but is the weakest pain relief there is, which probably would not control your pain.

    I just weened myself off of oxycontin and lortabs. Problem I am having is my bladder pain came back with a vengence. I had to go to the bathroom every 15 minutes and the urge never left me. I was forced today to get percocet, I wanted so bad to be done with the narcotics and I made it through the w/ds but my bladder is in a tailspin. I just went through 6 nights of not sleeping at all, and when I mean at all, I mean maybe 1 hour a night and that was with prescription sleep aids, you name it. I took a percocet this morning and my bladder feels great. I just don't understand.


    Do you have trouble sleeping at night? Do you have urgency that is so bad you cannot lay in bed without the constant feeling of having to urinate???

    Leave a comment:


  • mayray518
    replied
    i hear you

    In 1992 when I got IC and was diagnosed a year later no one would give me pain meds. I had been a paralegal for 17 years, had no history of drug abuse and was told by various urologists "You just want drugs" "this disease does not warrant pain meds" even tho it is a horrible diagnosis at least now people can get into pain management groups that will help them, drs that understand chronic pain. I will never get over the humiliation I suffered. I was in horrible chronic pain and treated like s____ on top of it all. No one knows what we go through. Thank God for sites like this (no internet in 1992) that people can correspond with each other and get references to good drs.

    Leave a comment:


  • ICLori
    replied
    Oh, Kara, I'm so sorry you are not getting the help you need right now. I hope the doctor will speak with you directly soon, maybe it's only his staff that is being difficult, and not him. I hope you find something soon that will help you.

    Blessings,
    Lori

    Leave a comment:


  • Kara29
    replied
    I will ask about the Opana

    Jen,

    I will ask about the Opana. Thank you for the info. Unfortunately, this doctor is turning out to not be helpful. I will have to wait until the 26th when my primary doctor returns. He says he wants to be around when he gives me something new due to all of my Allergies. I think that is fair and safe. It just sucks so bad to have to keep waiting. I have one Opana pill at my house. The last pain management clinic had me try 2 of them but I don't recall anything bad happening with it. I would like to ask one of my doctors if I can try it again. It's worth a try! I'm up for trying anything under the care of one of my doctors. I am pretty upset about this pelvic pain specialist not calling me for 3 days. I'd like to know the reason for that so it does not happen again. From now on I am going to tell the "gate keepers" of that office that I need to speak directly to him and that it's something I wish to only discuss with him. They don't need to know. It's personal at this point and too complicated for them to possibly understand.

    Sandra,

    Feel free to call anytime. I am going home Sunday.

    HUGS!

    Kara

    Leave a comment:


  • sandramac
    replied
    Kara Im so sorry you are having to go threw all this, Im praying for yourself & your mom! I will call you there tomorrow night .let me know when is a good time for you.sending love & Hugs & support .Sandra & family

    Leave a comment:


  • Sarojini
    replied
    Kara, I try to keep up on pain management issues... there are a couple new things coming out.... one is called Opana, which is a new synthetic drug (oxymorphone). It is supposed to combine the best of oxycodone and morphine without the side effects, and has a potency about 20 times that of morphine.

    They are also coming out with a buccal form of fentanyl, if I am not mistaken. It's a pill that you stick in between your teeth and cheek and allow to dissolve, rather than a lollipop.

    Most doctors don't know about these, but Opana is definitely on the market now, and the buccal form of fentanyl should be out, if not now, shortly.

    Leave a comment:


  • RobinD
    replied
    So sorry to hear about your problems. I am praying for you

    Robin

    Leave a comment:


  • Kara29
    replied
    Thank You

    Thank You Sandy!

    The office has closed for the day so I will be stuck another weekend like this. Oh well. At least I did my part and made the phone call to try.

    Kara

    Leave a comment:


  • SandyRN
    replied
    I know you understand the lollipops but I found a great page from the American Cancer Society that might help your DOCTOR understand it. They do, however, suggest using the patch with the lollipops. Doubt this will help you but I wanted to see if I could find something.

    The oxycontin might be worth trying. It's meant to be long acting and taken every day at regular times, but I dont see why you couldnt take it as you needed it.

    http://www.cancer.org/docroot/CDG/co...yl_citrate.asp

    Another thought.......why don't you ask for a SMALL dose of the patch, like 25 mcg? That might be enough to get into your system to give you a bit of relief without the added side effects? I know fentanyl comes in IV form, but trying to get that...well, it would be easier pulling teeth.
    Last edited by SandyRN; 02-16-2007, 08:38 AM.

    Leave a comment:


  • Berkshire Road
    replied
    I'm so sorry. I have no suggestions (I do fine with standard issue narcotics) but just wanted to offer my sympathy.

    Leave a comment:


  • Kara29
    replied
    The problem

    The Doctor that was trying to help me is just my Radiologist. He can't prescribe. He has already called this doctor to explain everything. Apparently the message got lost in translation somewhere and now I have to explain it.

    I wanted to just go home but Allen says there is three feet of snow there and it's still coming down. 6 foot snow drifts. He wants me to stay put and not come home, which is not like him to say unless it's really, really BAD.I have to stay with my Parents the weekend. The Pelvic Pain appt with this doctor was to be next Thursday so I may as well just stay here. Only problem is, I don't want to see this doctor right now.

    I've been all over the east coast for pain relief.

    Kara

    Leave a comment:


  • ihurttoo
    replied
    Kara,

    I am so sorry that they are not being helpful there. Maybe the Dr. that made the recommendations can call this Dr. and talk to him about it. I definately think it would help, if he would be willing to do it. Or, maybe he will be willing to R/X it himself, since they won't.

    Whatever happens, I hope that one of your Drs. will come thru for you and find something that will help you feel better.

    Love and hugs,
    Amy

    Leave a comment:

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