The only medications I take are Lyrica and Ambien daily.
In May I had my entire bladder reconstucted and asked them NOT to give me pain medication. I also had my urethra removed and closed shut. This means I had my whole insides taken out, apart, and reconstructed. It was a 9.5 hour surgery and I was in ICU for 3 days and the Hospital for 7 days. I had an inscision from 2 inches above my belly button all the way down into my pubic bone. About 16 inches long with over 28 staples holding the two halves of me together. I had tubes and bags coming out of everywhere! I had two holes in my abdomen made, one going into the left side of me and a permanent one made out of my intestines on the right hand side of me which is called my stoma. That is where I get my urine out from. I did not touch a pain medication while there except for one Vicoden the day I began physical therapy. The doctors were begging me to push my Fentanyl button but I refused because I did not want to take the narcotics. I was in pain, but I pushed through it.
So... you know I am in severe pain or I would not be asking for this sort of pain medication.The tailbone and PNE pain is so horrific right now, I don't care anymore, I just want some relief and now they are giving me a hard time.
I asked a pain management clinic in my travels why they were so nice to cancer patients who were in pain. She told me that they would not ever become addicted because they were only going to be on medication a short time and if they did become addicted it would not matter because some of them were going to die. (This is quite absurd) But see I am NOT going to die anytime soon?? It doesn't make sense why chronically ill patients have to fight so hard to get the help they need.
There may come a day where I may not be in pain anymore. Miracles DO often happen.... But for the times that I need some help, I would appreciate a doctor that understands this!
Why??
I just needed to get those thoughts and questions out of my mind and off of my chest so I can focus on continuing to effectively communicate with the doctors that I am lucky enough to have. Sometimes we all just need to talk out our feelings before we can continue to fight for our rights while dealing with chronic illnesses.
Kara
In May I had my entire bladder reconstucted and asked them NOT to give me pain medication. I also had my urethra removed and closed shut. This means I had my whole insides taken out, apart, and reconstructed. It was a 9.5 hour surgery and I was in ICU for 3 days and the Hospital for 7 days. I had an inscision from 2 inches above my belly button all the way down into my pubic bone. About 16 inches long with over 28 staples holding the two halves of me together. I had tubes and bags coming out of everywhere! I had two holes in my abdomen made, one going into the left side of me and a permanent one made out of my intestines on the right hand side of me which is called my stoma. That is where I get my urine out from. I did not touch a pain medication while there except for one Vicoden the day I began physical therapy. The doctors were begging me to push my Fentanyl button but I refused because I did not want to take the narcotics. I was in pain, but I pushed through it.
So... you know I am in severe pain or I would not be asking for this sort of pain medication.The tailbone and PNE pain is so horrific right now, I don't care anymore, I just want some relief and now they are giving me a hard time.
I asked a pain management clinic in my travels why they were so nice to cancer patients who were in pain. She told me that they would not ever become addicted because they were only going to be on medication a short time and if they did become addicted it would not matter because some of them were going to die. (This is quite absurd) But see I am NOT going to die anytime soon?? It doesn't make sense why chronically ill patients have to fight so hard to get the help they need.
There may come a day where I may not be in pain anymore. Miracles DO often happen.... But for the times that I need some help, I would appreciate a doctor that understands this!
Why??
I just needed to get those thoughts and questions out of my mind and off of my chest so I can focus on continuing to effectively communicate with the doctors that I am lucky enough to have. Sometimes we all just need to talk out our feelings before we can continue to fight for our rights while dealing with chronic illnesses.
Kara
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