Hi everyone,
I am having a horrible flare. I was hospitalized 2 weks ago for 6 days because of inflamation in my chest around my ribs - the prednisone I was on is done and my chest started hurting again and making it hard to breath so I started taking ibuprophen last night and all day today --- it is helping my chest, but suddenly tonight my bladder is having shocks that stop me in my tracks, and so much pain that I couldn't move from one room to another for about an hour (and I live alone so that is scary). I have B&O but they are hardley touching it. I woudl stop the ibuprophen, but I don't want to be back in the hospital again ... I do have a hard time tolerating any other NSAIDS because they make me throw up, even Ibuprophen does that sometimes but not today thankfully. I just don't know what to do, because it's either ibuprophen and bladder torture, or IV medication in the hospital. I can't go back on prednisone because it makes my heart beat weird. This chest swelling is sort of a cronic thing in the wintertime - they don't know why.
any ideas??? I know that God is with me in this - and that is awesome because right now I don't have anyone else to turn to, and I think that is the hardest part is having to do this all alone. my parents and siblings are nice, but they have their own lives and i am alone.
I am having a horrible flare. I was hospitalized 2 weks ago for 6 days because of inflamation in my chest around my ribs - the prednisone I was on is done and my chest started hurting again and making it hard to breath so I started taking ibuprophen last night and all day today --- it is helping my chest, but suddenly tonight my bladder is having shocks that stop me in my tracks, and so much pain that I couldn't move from one room to another for about an hour (and I live alone so that is scary). I have B&O but they are hardley touching it. I woudl stop the ibuprophen, but I don't want to be back in the hospital again ... I do have a hard time tolerating any other NSAIDS because they make me throw up, even Ibuprophen does that sometimes but not today thankfully. I just don't know what to do, because it's either ibuprophen and bladder torture, or IV medication in the hospital. I can't go back on prednisone because it makes my heart beat weird. This chest swelling is sort of a cronic thing in the wintertime - they don't know why.
any ideas??? I know that God is with me in this - and that is awesome because right now I don't have anyone else to turn to, and I think that is the hardest part is having to do this all alone. my parents and siblings are nice, but they have their own lives and i am alone.
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