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  • Burning and throbbing in not so good place...

    Is it just me or when I have a flare up it seems to radiate to my "girlie" area too. I hate this....

    I am trying to get pregnant and when I have a flare it makes it very difficult to do so.



    Diagnosed with IC 3-30-2003

    Flare ups 1 time a month lasts for days.

  • #2
    Oh it's not just you, I had the same things happen to me. I believe that all the nerves are so close together in that area, that it spills over... I used to keep frozen water bottles around - they fit perfectly between my legs and on the vulvar area for when it was acting up. It helped me out immensely!!!
    Hugs,
    Tracey
    How do you eat an elephant? One bite at a time...

    Harry arrived 2/23/09!



    *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    IC Diet Cheat Sheet:
    http://www.ic-network.com/diet/2009icdietlist.pdf



    Dx's:
    IC dx'd Nov 2004
    Lymphocytic Colitis dx'd July 2005
    Possible IBS
    Current IC Meds
    Vistaril 25mg in the evening
    Previous IC Meds taken:
    Cystoprotek - 2 caps 2x's a day
    Elmiron, 100mg 3x's a day
    Ditropan, 5 mg 3x's a day
    Others:
    Wellbutrin 150mg 2x's a day for Anxiety/IBS
    Pepcid 40mg a day for GERD
    Zytrec for Nasal Allergies
    Align Probiotic daily for IBS

    Comment


    • #3
      oh good idea.....I should do that.....

      normally I am in pain while at work then go home and am ok for the most part....so really can not sit at work with something in between my legs like that. LOL



      Diagnosed with IC 3-30-2003

      Flare ups 1 time a month lasts for days.

      Comment


      • #4
        LMAO! Now you would be the talk of the place!!!! Hmmm, what about a cold pack? They are flat, maybe you could find a "discreet" way to be um, chilling??
        Hugs,
        Tracey
        How do you eat an elephant? One bite at a time...

        Harry arrived 2/23/09!



        *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        IC Diet Cheat Sheet:
        http://www.ic-network.com/diet/2009icdietlist.pdf



        Dx's:
        IC dx'd Nov 2004
        Lymphocytic Colitis dx'd July 2005
        Possible IBS
        Current IC Meds
        Vistaril 25mg in the evening
        Previous IC Meds taken:
        Cystoprotek - 2 caps 2x's a day
        Elmiron, 100mg 3x's a day
        Ditropan, 5 mg 3x's a day
        Others:
        Wellbutrin 150mg 2x's a day for Anxiety/IBS
        Pepcid 40mg a day for GERD
        Zytrec for Nasal Allergies
        Align Probiotic daily for IBS

        Comment


        • #5
          Nope its not jut you.. I have that feeling even though im not flaring
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment


          • #6
            Yeah this stinks.....
            I go pee 50 million times get the burning feeling....then it stops...wipe and stand up and WAM there is the burning and pain from the other area.
            I get so down and depressed sometimes....
            I can not take my neurontin since my husband and I are trying to get pregnant. So, that does not help.



            Diagnosed with IC 3-30-2003

            Flare ups 1 time a month lasts for days.

            Comment


            • #7
              Oh I've been right there!! Believe me, you have my sympathies!!!!!!!!
              Hugs,
              Tracey
              How do you eat an elephant? One bite at a time...

              Harry arrived 2/23/09!



              *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

              IC Diet Cheat Sheet:
              http://www.ic-network.com/diet/2009icdietlist.pdf



              Dx's:
              IC dx'd Nov 2004
              Lymphocytic Colitis dx'd July 2005
              Possible IBS
              Current IC Meds
              Vistaril 25mg in the evening
              Previous IC Meds taken:
              Cystoprotek - 2 caps 2x's a day
              Elmiron, 100mg 3x's a day
              Ditropan, 5 mg 3x's a day
              Others:
              Wellbutrin 150mg 2x's a day for Anxiety/IBS
              Pepcid 40mg a day for GERD
              Zytrec for Nasal Allergies
              Align Probiotic daily for IBS

              Comment


              • #8
                Thanks



                Diagnosed with IC 3-30-2003

                Flare ups 1 time a month lasts for days.

                Comment


                • #9
                  You are very much not alone.

                  This is one of those things where it's okay to feel relieved that other people are suffering like you. It seems bizarre sometimes, but we all understand what a relief it is to know other people understand what is going on with you.
                  http://www.TheCraftyEwe.etsy.com

                  Comment


                  • #10
                    I am sorry you are in pain and flaring. Sex always does it to me too. It is so cruel that something that is so meaningful causes us such pain. I hope your flare passes soon and that you will get pregnant very soon.

                    Hugs,
                    Amy

                    Comment


                    • #11
                      Thanks. I hope so too. I want to get pregnant sssooo bad. I am so ready. I thought I was this cycle but obviously that did not happen. And my doc will not give me any other meds since we are trying to get pregnant.

                      There are so many meds out there I do not know why I can not get some help



                      Diagnosed with IC 3-30-2003

                      Flare ups 1 time a month lasts for days.

                      Comment


                      • #12
                        Why dont you ask your dr about lidocaine gel.. that might help you and should not be harmful to you if you are trying to get pregnant.. Just a thought...
                        Hugs
                        Ronda

                        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                        Link to Patient Handbook:
                        http://www.ic-network.com/handbook/

                        Diet Reference Sheet:
                        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                        Meds I have Tried:
                        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                        Lexapro< Bad reaction to this med!
                        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                        Dx With IC in Nov 2006 with Hydro/Cysto
                        Hydro/Cysto Caused Bladder to Rupture.

                        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



                        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                        Comment


                        • #13
                          Oh good idea.....dumb question but where do you put that??



                          Diagnosed with IC 3-30-2003

                          Flare ups 1 time a month lasts for days.

                          Comment


                          • #14
                            You can put it anywhere down there...It stops the burning and pain...I have even squirted some inside me..
                            Hugs
                            Ronda

                            ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                            Link to Patient Handbook:
                            http://www.ic-network.com/handbook/

                            Diet Reference Sheet:
                            http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                            Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                            Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                            Meds I have Tried:
                            Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                            Lexapro< Bad reaction to this med!
                            Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                            Dx With IC in Nov 2006 with Hydro/Cysto
                            Hydro/Cysto Caused Bladder to Rupture.

                            Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



                            ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                            Comment


                            • #15
                              to inlove96:
                              In regards to the coldpack between your legs-- if your office place is like mine, you could still put it there, and you could where a shaw or if you have a small blanket (which I do-- I use to have a heater- but they took all the heaters away, saying it was a hazard). Anyway, I use the icepack and put either the shaw or blanket and no one notices.

                              Comment

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