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  • Have you been to a pain clinic?

    I am supposed to go; I have an appointment and I am wondering if anyone here has ever been to one, and did they help? I hate to go because it makes me feel like I am giving up.
    IC for 10 years
    Comorbid vulvulitis, depression,
    Happily married
    Lucky to have this forum
    I feel your pain (in more ways than one)
    What I miss most: fruit and eating normally

  • #2
    Yes, I go to one each month, and it is extremely helpful. It's not giving up; it's just one more step in your fight to beat IC and live a normal, productive life. If the pain clinic can help you do that with medication or other things, then I say, more power to you
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3
      I also see my Pain Mgmt Dr. once a month. It has made a dramatic difference for me. Before I went there, most days I could not get out of bed all day, due to the pain. Activites that most people take for granted were entirely off limits for me because of the pain. Now I am able to do a few things in small increments that I couldnt before. (Like play with my son for 15 min, go to church, do some of the housework, cook, etc.) Before I had pain meds, I couldnt do any of those things. The pain was so bad, at times I had trouble talking, because my mind was thinking of the pain instead of whatever words I needed to say.

      For me, having pain medication has made a dramatic difference in my quality of life. I dont know any ICer who has not been glad they took the step to get their pain treated by a Pain Dr.

      I know it feels like you are giving up, but actually you are doing the opposite, you are taking charge. You are taking control of things by saying to yourself, "I have suffered with this long enough. I deserve to have my pain treated. I owe it to myself, my family and friends to be the best me I possibly can, and if takes pill to take the pain away that is holding me back, then so be it! There is no difference in my taking a pill for to treat my disease, than for diabetics to take insulin for theirs. They didnt ask for their disease, and I didnt ask for mine. But, it would be just as foolish and irresponsible for me to ignore the syptoms of my disease as it would be for them to ignore theirs."

      I hope you like your new doctor and you have good luck with pain management. If you start thinking again that it is giving up, please remember, there's noone out there giving out trophies for suffering!

      Sending hugs and luck your way,
      Amy

      Comment


      • #4
        Yes, I also go to a pain clinic, every 3months, unless I'm having problems and need to see the PA/NP more often. Going has changed my life around, specially since I think I'm worse now then I was a handful of years ago. With my pain medicines, I'm able to go to work and do the things I want to do at home- yes I'm still out of the loop quite a bit, but I can enjoy my life, which includes family, friends from work, etc. Granted, a lot of times, especially on Saturday, I take the time and go back to sleep after everyone goes to work, because if I didn't do that I don't think I could go and do anything else.
        If you are thinking of going, don't think anymore just do it. It will change your life around. Good luck - hope you the best of luck. Let us know how it turns out.

        Comment


        • #5
          What do they do exactly?

          I get spaced out on pain meds and I can't work and I can't work because of the pain. SOmething tells me I'm not the only one this happens to
          IC for 10 years
          Comorbid vulvulitis, depression,
          Happily married
          Lucky to have this forum
          I feel your pain (in more ways than one)
          What I miss most: fruit and eating normally

          Comment


          • #6
            Well, right before my first appointment with my pain clinic, they sent me a questionnaire in the mail (along with insurance forms to fill out). The questionnaire covered things like: what I'd been diagnosed with, how long I'd been having pain, where the pain was (in fact, I think there was even a diagram of a body that allowed me to shade in areas that hurt), what the pain was like (there was a list of words like "cramping", "burning", "shooting", "electric", "aching" and others, and I had to circle the ones that applied), medications I had tried for the pain, medications that WORKED, medications that DID NOT work, medications I'd had a bad reaction to, what I was taking/doing now... it was a pretty long questionnaire.

            I had to bring the completed questionnaire to the first appointment. At that appointment, the pain doctor and I discussed my answers to the questionnaire, and she asked even a few more questions. She had had only one or two IC patients, and wasn't an expert back then -- but she has done a LOT of research since then and is now pretty darn good.

            Anyway, based on what you talk about, you will work out a plan with the doctor. You should mention your worries about being "spaced out" during this part of the appointment.

            Since I was going to be taking narcotics, I had to sign an "opiate contract" -- this is a form stating that I will/will not do certain things (I will only get narcotics from the clinic -- unless it's an emergency room visit or pain meds in the recovery room after surgery, I will only fill scripts at one pharmacy, I will agree to take random drug tests if they deem necessary, I will bring all pills to each appointment so they can count them if they want, etc.)

            Then I was given prescriptions.

            Now, I go back once a month for maintenance and to get new prescriptions. At the monthly appointments the doc always asks how things are working out, and if it's not good we make changes as needed. I can also call and speak to them, but they are pretty lousy at calling me back...

            Other than that, they are great ...



            Remember, though, a good pain clinic should offer other services besides narcotics -- they should understand and be able to prescribe stuff like Neurontin and Lyrica for nerve pain, they should be able to perform nerve blocks of all types, they should be able to do injections for painful joints, and they should be able to refer you to a counselor that deals with people who have chronic pain if you like. They should also have contacts in the physical therapy world.
            ****
            Jen

            *Diagnosed with severe IC in 2004
            *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
            *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
            *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

            **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment


            • #7
              pain management was the best thing for me. Give it a try
              NEW YORK YANKEES ROCK THE HOUSE. 26 WORLD SERIES CHAMPIONSHIPS, THE MOST EVER\

              GO YANKEES
              :woohoo: :woohoo:

              Comment


              • #8
                Pain management rocks. I think Sarojini hit the issue right on its head. I might add though, if you're willing to go to the clinic, give it some time to get your meds adjusted that you need.

                Also, in the meantime and otherwise, I would advise not to go to the ER for extreme pain and then tell them you have a pain mgmt doctor. They usually don't want to touch you.

                Anyway, good luck. That has been my experience.

                April
                Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

                Comment


                • #9
                  I see a pain mangement doc as well and it is the best decision I have mede. It provides stable, controlled relief that is individualized to your needs and lifestyle.

                  Hugs,
                  Barb
                  (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

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                  Comment


                  • #10
                    I agree completely. When you get to where you need your meds changed because of your body's tolerance level, they take care of that too if they are good pain specialists. Just another plus to using them.
                    Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

                    Comment


                    • #11
                      Thank you all--this is great info
                      IC for 10 years
                      Comorbid vulvulitis, depression,
                      Happily married
                      Lucky to have this forum
                      I feel your pain (in more ways than one)
                      What I miss most: fruit and eating normally

                      Comment


                      • #12
                        I know that God is always at work in my life!
                        I just posted a question about pain management clinics and then saw this thread!
                        Thankyou so much for all of your information for Randi and I and everyone!
                        You are A BLESSING! to me and others!
                        Georgia L
                        Faith is not believing God can; Faith is believing God will!

                        Comment


                        • #13
                          Hi Randi... please let me know how things go at your appointment. You are not alone. I just posted a question just like yours! You will be in my prayers!
                          Georgia
                          Faith is not believing God can; Faith is believing God will!

                          Comment


                          • #14
                            Yes, please keep us updated...Georgia and Randi. We want to know how your experiences are when you go to a pain specialist. Before getting the one I have now, I went through some really horrible ones. So, I guess I am saying to you to be careful about the one you choose. See what kind of reputation he or she has....I don't know but, in my case, it has seemed like I have had to be more cognizant of pain management physicians and that they check out.

                            Good Luck and God Bless.
                            Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

                            Comment

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